Navigation Links
GP bodies support guidelines for use of patient records in medical research
Date:6/28/2009

The two leading bodies representing GPs in the UK have backed a call by the Wellcome Trust for clearer guidance for GPs to ensure medical records can be safely used in research.

Patient records in general practice surgeries are a unique resource of information which can help medical researchers improve their understanding of disease, develop potential new treatments and improve patient care. The increasing use of electronic records should make it easier for researchers to use this information.

The public are generally supportive of this research: two-thirds of people would consider allowing personal health information to be shared for research purposes. However, this information is both sensitive and private and the public, patients and healthcare professionals must all have confidence that the security of personal information is safeguarded.

Today, the Wellcome Trust, the UK's largest medical research charity, publishes guidelines for best practice in the use of patient records for research purposes. The report was reached during a national consensus meeting held in 2008 with GPs, researchers and patient groups.

The guidelines Towards Consensus for Best Practice have been endorsed by the British Medical Association (BMA), the independent trade union and professional association for doctors and medical students, and the Royal College of General Practitioners (RCGP), the professional membership body for family doctors in the UK and abroad.

Three overarching principles form the basis on which the guidelines were agreed. They are:

  1. Patient confidentiality and privacy must be safeguarded
  2. GPs and healthcare professionals should play the role of patient's advocate
  3. Public awareness and understanding of the use of records in research should be improved.

"We welcome the endorsement by the BMA and the Royal College of General Practitioners of the guidelines for the use of patient records from general practice for research," says Sir Mark Walport, Director of the Wellcome Trust. "There are over 44,000 GPs in the UK, and their support is essential if we are to maintain trust in how patients' medical records are accessed for research purposes. The public strongly support medical research and researchers in turn must support the public by working to the highest standards."

"This report provides valuable guidance to GPs," says Dr Vivienne Nathanson, Head of Science and Ethics at the BMA. "The first priority of GPs must be to deliver high-quality healthcare. But they must also protect patients if their records are to be used in research and ensure that the confidentiality of patient data is safe and secure at all times."

RCGP Chairman Professor Steve Field said: "Quality research has enabled us to make some amazing advances in the treatment and care of our patients. GPs and researchers need to work in partnership to ensure that we gain the best evidence to guide future improvements .GPs will find these new guidelines extremely useful, they are an excellent first step towards ensuring best practice."

The report includes guidelines on the use of anonymised, coded and identifiable data from patient records, and the use of privacy-enhancing technologies, including safe havens, encryption and honest brokers. It also sets out recommendations on how to identify potential participants for a particular study, how they should be approached, the level of consent required and the provision of sufficient information that a potential participant may make an informed decision on whether to participate.


'/>"/>

Contact: Craig Brierley
c.brierley@wellcome.ac.uk
44-207-611-7329
Wellcome Trust
Source:Eurekalert

Related medicine news :

1. MMR Information Systems, Inc. Receives Licensing Proposal Involving the Companys Anti-CD20 Antibodies
2. Autoantibodies may be created in response to bacterial DNA
3. Beverly Hills Cosmetic Plastic Surgeon Andrew T. Cohen, MD Helping New Moms Restore their Bodies with a Mommy Makeover
4. ForteBio Launches New Biosensor for Kinetic Analysis and Screening of Human IgG Antibodies
5. Orange County Plastic Surgeon Dr. Semira Bayati Helping Women Restore their Bodies after Childbirth with Mommy Makeover
6. South Carolina Plastic Surgeon Helps New Moms Restore their Bodies with a Mommy Makeover
7. Peregrine Pharmaceuticals Awarded Broad New U.S. Patent for Anti-Viral Applications of Phospholipid-Targeting Antibodies
8. Strong Bodies Battle Better
9. Biosimilar Monoclonal Antibodies in Oncology Will Approach Blockbuster Status by 2017
10. Playboy founder embodies American Dream; changes American culture
11. Sigma-Aldrich and Atlas Antibodies Announce the Release of 2,000 New, Highly-Validated Prestige Antibodies
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/17/2017)... ... January 17, 2017 , ... A prescription medication bottle, pocket knife, ... Cradle to Cradle Product Design Challenge , the Cradle to Cradle Products ... six circular design challenges scheduled to run through early 2018. The challenges are presented ...
(Date:1/17/2017)... (PRWEB) , ... January 17, 2017 , ... Neil H. ... financial planning assistance to communities throughout the region, is launching a charity drive to ... disease is by far the deadliest killer in America, and is responsible for 1 ...
(Date:1/17/2017)... (PRWEB) , ... January 17, 2017 , ... SC&H Group, ... firm as a Principal in its IT Advisory Services practice . Rossi is ... months as market demand for strategic IT guidance grows, and the practice continues to ...
(Date:1/17/2017)... (PRWEB) , ... January 17, 2017 , ... ... to visualize, detect, and eliminate cyber threats in real-time, today announced a strategic ... provider, headquartered in Selangor, Malaysia. Joining other Seceon partners, TechLab Security has become ...
(Date:1/17/2017)... (PRWEB) , ... January 17, 2017 , ... ... families from two offices in Tyler, has announced the latest beneficiary of their ... Wish Network, a nonprofit organization dedicated to fulfilling the dreams of terminally ill ...
Breaking Medicine News(10 mins):
(Date:1/17/2017)... 2017 According to a new market research report "Neural Network ... Software), Vertical, and Region - Global Forecast to 2021" published by MarketsandMarkets, the ... by 2021, at a Compound Annual Growth Rate (CAGR) of 33.2%. ... ... MarketsandMarkets Logo ...
(Date:1/17/2017)... and KANSAS CITY, Mo. ... Hospitals Neonatal Consortium (CHNC) has selected Velos and ... visionary data management and multicenter initiatives. ... comprised of 32 Neonatal Intensive Care Units at ... . The consortium provides a benchmark of ...
(Date:1/17/2017)... --  Tocagen Inc ., a clinical-stage, cancer-selective gene therapy company, today ... and pharmaceutical development at Tocagen, will present at Phacilitate Cell ... in Miami . Details of ... ... viruses - what to do when and why Date and Time: ...
Breaking Medicine Technology: