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Fragile X Foundations Sign Merger Agreement
Date:11/5/2007

ny parents who have always supported us. I'm personally looking forward to increasing my time in fundraising efforts that will continue to expand our scientific knowledge of Fragile X."

Since its inception in 1984, The National Fragile X Foundation has sought to be a comprehensive information and support resource for everyone in the Fragile X community, including individuals with Fragile X, their families, and the professionals who work with them. In recent years, the foundation has greatly increased its efforts to promote both legislative advocacy and research funding. The research component will become stronger again as the merger with CFXF takes effect.

"We've always admired the Conquer Fragile X Foundation as a valuable ally in helping to advance everyone's knowledge of Fragile X," said Robert Miller, NFXF executive director. "When the opportunity presented itself to formalize a relationship, our board of directors saw nothing but positives for all concerned.

Under terms of the agreement, eight members of CFXF's Board of Directors will join the existing 16 members of the NFXF Board of Directors, and CFXF President Karen Fay will become "Conquer Fragile X Programs Director" within the NFXF. Hollin will continue to operate from his twin bases in Palm Beach and Philadelphia as he concentrates on strengthening his Fragile X fundraising network along the eastern seaboard.

The term "Fragile X" is used to denote three conditions caused by a mutation in the Fragile X gene, which is located on the X chromosome. The conditions are:

-- Fragile X syndrome (FXS) -- The most common known cause of inherited

mental impairment, it can cause a variety of effects, from mild

learning disabilities to severe mental retardation. It affects more

boys than girls, and is almost always evident in childhood, when

children fail to meet usual developmental milestones.

-- Fragile X-associated tremor/ataxia syndrome (FXTAS
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SOURCE The National Fragile X Foundation
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