Navigation Links
Fragile X Foundations Sign Merger Agreement
Date:11/5/2007

WALNUT CREEK, Calif., Nov. 5 /PRNewswire-USNewswire/ -- Two nonprofit foundations devoted to the support, treatment and eventual cure of people affected by genetic conditions known collectively as "Fragile X" have agreed to a formal merger as of October 31, 2007. The California-based National Fragile X Foundation (NFXF) and Florida-based Conquer Fragile X Foundation (CFXF) will now join forces to bring vastly expanded services to the Fragile X community.

The agreement calls for the NFXF to add CFXF as an affiliate fundraising and research arm. Those activities have been a powerful focus for CFXF since its founding by Chairman Harris Hollin in 1999.

Working closely with Scripps Florida biomedical research institute, the CFXF sponsors an annual Fragile X Research Conference in Palm Beach, among many other activities. Those efforts are expected to continue and even gain momentum with the merger, given the NFXF's own research funding and its activities through nearly 50 state chapters. The biennial NFXF International Conference should also serve as a powerful complement to the CFXF Research Conference, increasing both fundraising resources and scientific collaboration in the effort to find better treatments and an eventual cure for Fragile X.

"There comes a point when you want to be more focused than ever on your primary goals, and then you look for some way to achieve that focus," said Hollin, who will now become a director emeritus of the NFXF.

"Raising funds to support scientific research has always been the bedrock of the Conquer Fragile X Foundation, and it has become obvious to me in recent years that we could be even more effective if we could reduce the administrative demands on our organization by affiliating with a larger partner. The NFXF has a solid infrastructure with a truly national scope. Their resources will allow CFXF not only to focus more on fundraising, but also to offer more support and education activities for the many parents who have always supported us. I'm personally looking forward to increasing my time in fundraising efforts that will continue to expand our scientific knowledge of Fragile X."

Since its inception in 1984, The National Fragile X Foundation has sought to be a comprehensive information and support resource for everyone in the Fragile X community, including individuals with Fragile X, their families, and the professionals who work with them. In recent years, the foundation has greatly increased its efforts to promote both legislative advocacy and research funding. The research component will become stronger again as the merger with CFXF takes effect.

"We've always admired the Conquer Fragile X Foundation as a valuable ally in helping to advance everyone's knowledge of Fragile X," said Robert Miller, NFXF executive director. "When the opportunity presented itself to formalize a relationship, our board of directors saw nothing but positives for all concerned.

Under terms of the agreement, eight members of CFXF's Board of Directors will join the existing 16 members of the NFXF Board of Directors, and CFXF President Karen Fay will become "Conquer Fragile X Programs Director" within the NFXF. Hollin will continue to operate from his twin bases in Palm Beach and Philadelphia as he concentrates on strengthening his Fragile X fundraising network along the eastern seaboard.

The term "Fragile X" is used to denote three conditions caused by a mutation in the Fragile X gene, which is located on the X chromosome. The conditions are:

-- Fragile X syndrome (FXS) -- The most common known cause of inherited

mental impairment, it can cause a variety of effects, from mild

learning disabilities to severe mental retardation. It affects more

boys than girls, and is almost always evident in childhood, when

children fail to meet usual developmental milestones.

-- Fragile X-associated tremor/ataxia syndrome (FXTAS) -- A condition

affecting premutation carriers (mostly males and in rare cases,

females) over age 50, causing balance, tremor and memory problems.

-- Fragile X-associated premature ovarian insufficiency (FXPOI) -- A

condition affecting premutation carriers characterized by early

menopause and its associated effects, sometimes appearing as early as

the teen years.

For more information about The National Fragile X Foundation, visit http://www.FragileX.org, or call 1-800-688-8765.


'/>"/>
SOURCE The National Fragile X Foundation
Copyright©2007 PR Newswire.
All rights reserved

Related medicine news :

1. $21.8 Million NIH Grant for Fragile X Research
2. Stem cell research produces a key discovery for Fragile X Syndrome
3. Brain Defect Helps Drive Fragile X Syndrome
4. Arrow International Urges Shareholders To Vote for Approval of the $45.50 Teleflex Inc. Merger and for the Current Board of Directors
5. Kyphon Announces Special Meeting Date to Vote on Proposed Medtronic Merger
6. ISS and Glass Lewis Recommend Cholestech Stockholders Vote FOR Merger
7. Glass Lewis Recommends Arrow Shareholders Vote on the White Proxy Card for Merger With Teleflex and for Current Board of Directors at Arrow Annual Meeting
8. Exceptional Childrens Foundation Merger with Kayne Eras Center Creates One of States Most Comprehensive Nonprofits Serving the Disabled
9. GSI Securitization Completes Merger and Domicile Transfer
10. Hologic Sets Special Meeting of Stockholders to Vote on Proposed Merger with Cytyc Corporation
11. AdCare Health Systems, Inc. Reports Discontinuation of Definitive Merger Agreement with Family Home Health Services, Inc.
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/19/2017)... ... 2017 , ... Bio-Optronics Inc. is proud to announce the ... to seamlessly integrate and streamline the way researchers prepare and conduct patient visits. ... and improving efficiency significantly for users – a first in the CTMS industry. ...
(Date:1/19/2017)... , ... January 19, 2017 , ... Students interested in ... Donation Awareness Scholarship competition., The winner will earn a $1,000 scholarship and have his ... begins Feb. 1, and the deadline is May 31, with the winner announced on ...
(Date:1/19/2017)... ... January 19, 2017 , ... Workrite Ergonomics announced this week ... Tranquility privacy panel system was designed to deliver the ideal blend of acoustic ... and provide the visual privacy required to maintain concentration levels and increase productivity. ...
(Date:1/19/2017)... ... ... Allegheny Health Network (AHN) officials today announced a bold new step to ... services in the greater Pittsburgh region. Starting January 23, patients who call AHN by ... same afternoon. , AHN is the first healthcare provider in the ...
(Date:1/19/2017)... , ... January 19, 2017 , ... ... protection and financial planning services to communities throughout eastern Georgia, is embarking on ... heart disease. , Heart disease kills more Americans every year than anything else, ...
Breaking Medicine News(10 mins):
(Date:1/19/2017)... 2017 Shire plc (LSE: SHP, ... Food and Drug Administration (FDA) has acknowledged receipt of ... (NDA) for SHP465, a long-acting, triple-bead, mixed amphetamine salts ... treatment for Attention-Deficit/Hyperactivity Disorder (ADHD). The FDA is expected ... 2017, the designated Prescription Drug User Fee Act (PDUFA) ...
(Date:1/19/2017)... 19, 2017 While various ... about reducing the FDA,s regulatory strictness as a ... medical drug industry, many of the leading biotech ... trials and development of advanced drug treatments and ... recent developments include:  Moleculin Biotech, Inc., (NASDAQ: ...
(Date:1/19/2017)... The Global Therapy Partnering Terms and Agreements ... deals and agreements entered into by the world,s leading ... Top deals by value - Deals listed by company ... The report provides understanding and access to the partnering ... healthcare companies. The report provides an analysis of ...
Breaking Medicine Technology: