Navigation Links
Fragile X Foundations Sign Merger Agreement
Date:11/5/2007

WALNUT CREEK, Calif., Nov. 5 /PRNewswire-USNewswire/ -- Two nonprofit foundations devoted to the support, treatment and eventual cure of people affected by genetic conditions known collectively as "Fragile X" have agreed to a formal merger as of October 31, 2007. The California-based National Fragile X Foundation (NFXF) and Florida-based Conquer Fragile X Foundation (CFXF) will now join forces to bring vastly expanded services to the Fragile X community.

The agreement calls for the NFXF to add CFXF as an affiliate fundraising and research arm. Those activities have been a powerful focus for CFXF since its founding by Chairman Harris Hollin in 1999.

Working closely with Scripps Florida biomedical research institute, the CFXF sponsors an annual Fragile X Research Conference in Palm Beach, among many other activities. Those efforts are expected to continue and even gain momentum with the merger, given the NFXF's own research funding and its activities through nearly 50 state chapters. The biennial NFXF International Conference should also serve as a powerful complement to the CFXF Research Conference, increasing both fundraising resources and scientific collaboration in the effort to find better treatments and an eventual cure for Fragile X.

"There comes a point when you want to be more focused than ever on your primary goals, and then you look for some way to achieve that focus," said Hollin, who will now become a director emeritus of the NFXF.

"Raising funds to support scientific research has always been the bedrock of the Conquer Fragile X Foundation, and it has become obvious to me in recent years that we could be even more effective if we could reduce the administrative demands on our organization by affiliating with a larger partner. The NFXF has a solid infrastructure with a truly national scope. Their resources will allow CFXF not only to focus more on fundraising, but also to offer more support and education activities for the many parents who have always supported us. I'm personally looking forward to increasing my time in fundraising efforts that will continue to expand our scientific knowledge of Fragile X."

Since its inception in 1984, The National Fragile X Foundation has sought to be a comprehensive information and support resource for everyone in the Fragile X community, including individuals with Fragile X, their families, and the professionals who work with them. In recent years, the foundation has greatly increased its efforts to promote both legislative advocacy and research funding. The research component will become stronger again as the merger with CFXF takes effect.

"We've always admired the Conquer Fragile X Foundation as a valuable ally in helping to advance everyone's knowledge of Fragile X," said Robert Miller, NFXF executive director. "When the opportunity presented itself to formalize a relationship, our board of directors saw nothing but positives for all concerned.

Under terms of the agreement, eight members of CFXF's Board of Directors will join the existing 16 members of the NFXF Board of Directors, and CFXF President Karen Fay will become "Conquer Fragile X Programs Director" within the NFXF. Hollin will continue to operate from his twin bases in Palm Beach and Philadelphia as he concentrates on strengthening his Fragile X fundraising network along the eastern seaboard.

The term "Fragile X" is used to denote three conditions caused by a mutation in the Fragile X gene, which is located on the X chromosome. The conditions are:

-- Fragile X syndrome (FXS) -- The most common known cause of inherited

mental impairment, it can cause a variety of effects, from mild

learning disabilities to severe mental retardation. It affects more

boys than girls, and is almost always evident in childhood, when

children fail to meet usual developmental milestones.

-- Fragile X-associated tremor/ataxia syndrome (FXTAS) -- A condition

affecting premutation carriers (mostly males and in rare cases,

females) over age 50, causing balance, tremor and memory problems.

-- Fragile X-associated premature ovarian insufficiency (FXPOI) -- A

condition affecting premutation carriers characterized by early

menopause and its associated effects, sometimes appearing as early as

the teen years.

For more information about The National Fragile X Foundation, visit http://www.FragileX.org, or call 1-800-688-8765.


'/>"/>
SOURCE The National Fragile X Foundation
Copyright©2007 PR Newswire.
All rights reserved

Related medicine news :

1. $21.8 Million NIH Grant for Fragile X Research
2. Stem cell research produces a key discovery for Fragile X Syndrome
3. Brain Defect Helps Drive Fragile X Syndrome
4. Arrow International Urges Shareholders To Vote for Approval of the $45.50 Teleflex Inc. Merger and for the Current Board of Directors
5. Kyphon Announces Special Meeting Date to Vote on Proposed Medtronic Merger
6. ISS and Glass Lewis Recommend Cholestech Stockholders Vote FOR Merger
7. Glass Lewis Recommends Arrow Shareholders Vote on the White Proxy Card for Merger With Teleflex and for Current Board of Directors at Arrow Annual Meeting
8. Exceptional Childrens Foundation Merger with Kayne Eras Center Creates One of States Most Comprehensive Nonprofits Serving the Disabled
9. GSI Securitization Completes Merger and Domicile Transfer
10. Hologic Sets Special Meeting of Stockholders to Vote on Proposed Merger with Cytyc Corporation
11. AdCare Health Systems, Inc. Reports Discontinuation of Definitive Merger Agreement with Family Home Health Services, Inc.
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... ... October 13, 2017 , ... Global Healthcare Management’s 4th Annual Kids Fun ... NJ. This free event, sponsored by Global Healthcare Management’s CEO, Jon Letko, is ... is geared towards children of all ages; it is a non-competitive, non-timed event, which ...
(Date:10/13/2017)... ... October 13, 2017 , ... “The Journey: From the Mountains to the ... save lost souls in the Philippines. “The Journey: From the Mountains to the Mission ... of the Bible. She has taught all ages and currently teaches a class of ...
(Date:10/12/2017)... Orleans, LA (PRWEB) , ... October 12, 2017 , ... ... centers in the U.S., announced today its plans to open a flagship location in ... will occupy the former Rooms To Go store next to Office Depot in the ...
(Date:10/12/2017)... (PRWEB) , ... October 12, 2017 , ... ... AccentCare, a leader in post-acute health care, have expanded their existing home health ... Home Health. , AccentCare has been operating a joint venture home health company ...
(Date:10/12/2017)... ... October 12, 2017 , ... Leading pediatric oncology experts ... Washington, D.C., for the 49th Congress of the International Society of Paediatric Oncology ... of the Center for Cancer and Blood Disorders at Children’s National, and ...
Breaking Medicine News(10 mins):
(Date:9/28/2017)... -- Cohen Veterans Bioscience and Early Signal Foundation announce ... home sensors for real-time monitoring of patients with trauma-related ... organization focused on disruptive health solutions for rare disorders ... to record and integrate behavioral, cognitive, physiological and contextual ... ...
(Date:9/25/2017)... 25, 2017   Montrium , an industry ... today—from the IQPC Trial Master Files & Inspection ... that EastHORN Clinical Services has selected eTMF ... TMF management. EastHORN, a leading European contract research ... increase transparency to enable greater collaboration with sponsors, ...
(Date:9/22/2017)... , Sept. 22, 2017  As the latest ... Senators Bill Cassidy (R-LA) and Lindsey ... notes that the medical device industry is in an ... device tax, the 2.3% excise tax on medical device ... they also want covered patients, increased visits and hospital ...
Breaking Medicine Technology: