Navigation Links
First Huntington's disease center established in Washington, D.C., area
Date:7/19/2012

WASHINGTON -- Georgetown University Medical Center in collaboration with MedStar Georgetown University Hospital announce the launch of the Huntington Disease Care, Education and Research Center. With support from the Griffin Foundation, the Huntington Disease Center is the first comprehensive, multidisciplinary center to focus on treatment, patient education and research of the disease in the Washington, D.C. area.

Huntington disease (HD) is a hereditary, progressively degenerative brain disorder for which there is no cure, and only one approved treatment for symptoms. HD causes involuntary body movements, cognitive decline, and a host of behavioral disturbances that slowly diminish the ability to walk, talk and reason. Treatment of a person with HD involves a skilled clinical team to make an accurate diagnosis and provide comprehensive care. About 30,000 people in the United States have HD and about 150,000 individuals carry a 50 percent risk of having inherited the fatal HD gene.

"Caring for those with Huntington disease and their families takes a comprehensive and tailored approach," explains MedStar Georgetown University Hospital President Richard Goldberg, MD. "MedStar Georgetown and Georgetown University Medical Center are assembling a team of specialized neurologists, psychiatrists, social workers and other specialists as a part of the new Huntington Disease Center. Up until now, people with HD have been underserved in the Washington, DC area. This Center changes that."

The joint endeavor will be lead by GUMC's Ira Shoulson, M.D., who will serve as interim director of the Center. Shoulson, a professor in the Department of Neurology, is a leading researcher in Huntington disease and founder of the Huntington Study Group, an international academic consortium of clinical researchers.

There will be two clinical co-directors of the Center representing the critical collaboration necessary of neurology and psychiatry in caring for patients and their families. They are Fahd Amjad, M.D., an assistant professor in the Department of Neurology and a member of MedStar GUH's Movement Disorders Program; and Thomas Cummings, M.D., an assistant professor in the Department of Psychiatry.

"Huntington disease is devastating for entire families emotionally, socially and economically," says Howard J. Federoff, M.D., Ph.D., executive vice president for health sciences at Georgetown University Medical Center (GUMC) and executive dean of Georgetown's School of Medicine. "Delivering comprehensive care, or cura personalis -- care of the whole person, is central to the mission of the new Center. It will also give considerable focus on research to discover new approaches to both treat the symptoms and slow the progression of the disease."

Recognizing the multidisciplinary, collaborative effort needed for a successful care and research program for Huntington disease, MedStar GUH and GUMC marked the launch of the Huntington Disease Center with an inaugural symposium that assembled some of the nation's leading experts in care, education and research of Huntington disease.

Through the funding of Huntington Disease Center, the Griffin Foundation hopes to assist in the creation of a model center for the care of Huntington disease patients that provides the clinical support, education and services desperately needed by families and caregivers in the Washington, D.C. area.

In addition to the MedStar GUH location, the Huntington Care, Education and Research Center plans to establish two community-based clinics in Virginia and Maryland to improve access and reduce travel time and inconvenience faced by those with Huntington disease.


'/>"/>

Contact: Karen Mallet
km463@georgetown.edu
Georgetown University Medical Center
Source:Eurekalert

Related medicine news :

1. Study Gives First Evidence That Adult Human Lungs Can Regrow
2. Hookah smoking increasingly common among first-year college women
3. Sohn Conference and Damon Runyon Cancer Research Foundations name first pediatric research fellows
4. Scientists first to see trafficking of immune cells in beating heart
5. First-of-its-kind approach nanomedicine design effectively targets cancer with decreased toxicity
6. First Is Viewed as Best When Making Quick Decisions
7. Heuer M.D. Research Announces CardiaShred™ - First Medical Doctor Formulated, Heart Healthy Weight Loss, Energy and Lean Muscle Building Supplement
8. Massage Industry Heavyweights Team Up for First-Ever Massage Documentary
9. Health interventions for clergy must counteract need to put others first
10. FDA Approves First New Weight-Loss Drug in More Than a Decade
11. Ecig Advanced Sponsors Lexington's First Annual Vaping Event
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/5/2016)... ... 05, 2016 , ... The Lymphoma Research Foundation (LRF) – ... serving the lymphoma community through a comprehensive series of education programs, outreach initiatives ... Tasting Event at the La Gorce Country Club in Miami Beach on March ...
(Date:2/5/2016)... (PRWEB) , ... February 05, 2016 , ... Give ... allow users to search for and donate to Give To Cure’s campaign that is ... app that lets users make and share payments through a smart device. In 2015 ...
(Date:2/5/2016)... ... 2016 , ... Stuart Bentkover, MD, FACS is thrilled to announce ... most effective tattoo removal today, Dr. Bentkover is the only doctor in Central Massachusetts ... PicoSure has been approved by the Food and Drug Administration (FDA) as a safe ...
(Date:2/5/2016)... ... February 05, 2016 , ... California Mobile Kitchens ... debut of their latest mobile kitchen model, featuring customizable stainless steel interiors and ... commercial kitchens for use anywhere in the U.S. Many of their units can ...
(Date:2/5/2016)... (PRWEB) , ... February 05, 2016 , ... Susan ... Medicare San Luis Obispo users can expect to see in 2016. To view the ... most significant changes will directly impact many San Luis Obispo seniors who rely on ...
Breaking Medicine News(10 mins):
(Date:2/4/2016)... Calif. , Feb. 4, 2016  Edwards Lifesciences ... patient-focused innovations for structural heart disease and critical care ... accelerated share repurchase (ASR) agreement with Morgan Stanley & ... stock.  This repurchase is part of the Company,s previously ... the Company,s common stock.  --> ...
(Date:2/4/2016)... , Feb. 4, 2016 Wegener ... Global Markets Direct,s, ,Wegener Polyangiitis - Pipeline ... Wegener Polyangiitis,s therapeutic pipeline. This report provides ... Polyangiitis, complete with comparative analysis at various stages, ... (MoA), route of administration (RoA) and molecule type, ...
(Date:2/4/2016)... 2016  Omnicell, Inc. (NASDAQ: OMCL ), a leading ... systems, today announced results for its fiscal year and ... --> GAAP results: Revenue for the ... million or 4.1% from the third quarter of 2015, ... quarter of 2014. Revenue for the year ended December 31, ...
Breaking Medicine Technology: