Navigation Links
First Huntington's disease center established in Washington, D.C., area
Date:7/19/2012

WASHINGTON -- Georgetown University Medical Center in collaboration with MedStar Georgetown University Hospital announce the launch of the Huntington Disease Care, Education and Research Center. With support from the Griffin Foundation, the Huntington Disease Center is the first comprehensive, multidisciplinary center to focus on treatment, patient education and research of the disease in the Washington, D.C. area.

Huntington disease (HD) is a hereditary, progressively degenerative brain disorder for which there is no cure, and only one approved treatment for symptoms. HD causes involuntary body movements, cognitive decline, and a host of behavioral disturbances that slowly diminish the ability to walk, talk and reason. Treatment of a person with HD involves a skilled clinical team to make an accurate diagnosis and provide comprehensive care. About 30,000 people in the United States have HD and about 150,000 individuals carry a 50 percent risk of having inherited the fatal HD gene.

"Caring for those with Huntington disease and their families takes a comprehensive and tailored approach," explains MedStar Georgetown University Hospital President Richard Goldberg, MD. "MedStar Georgetown and Georgetown University Medical Center are assembling a team of specialized neurologists, psychiatrists, social workers and other specialists as a part of the new Huntington Disease Center. Up until now, people with HD have been underserved in the Washington, DC area. This Center changes that."

The joint endeavor will be lead by GUMC's Ira Shoulson, M.D., who will serve as interim director of the Center. Shoulson, a professor in the Department of Neurology, is a leading researcher in Huntington disease and founder of the Huntington Study Group, an international academic consortium of clinical researchers.

There will be two clinical co-directors of the Center representing the critical collaboration necessary of neurology and psychiatry in caring for patients and their families. They are Fahd Amjad, M.D., an assistant professor in the Department of Neurology and a member of MedStar GUH's Movement Disorders Program; and Thomas Cummings, M.D., an assistant professor in the Department of Psychiatry.

"Huntington disease is devastating for entire families emotionally, socially and economically," says Howard J. Federoff, M.D., Ph.D., executive vice president for health sciences at Georgetown University Medical Center (GUMC) and executive dean of Georgetown's School of Medicine. "Delivering comprehensive care, or cura personalis -- care of the whole person, is central to the mission of the new Center. It will also give considerable focus on research to discover new approaches to both treat the symptoms and slow the progression of the disease."

Recognizing the multidisciplinary, collaborative effort needed for a successful care and research program for Huntington disease, MedStar GUH and GUMC marked the launch of the Huntington Disease Center with an inaugural symposium that assembled some of the nation's leading experts in care, education and research of Huntington disease.

Through the funding of Huntington Disease Center, the Griffin Foundation hopes to assist in the creation of a model center for the care of Huntington disease patients that provides the clinical support, education and services desperately needed by families and caregivers in the Washington, D.C. area.

In addition to the MedStar GUH location, the Huntington Care, Education and Research Center plans to establish two community-based clinics in Virginia and Maryland to improve access and reduce travel time and inconvenience faced by those with Huntington disease.


'/>"/>

Contact: Karen Mallet
km463@georgetown.edu
Georgetown University Medical Center
Source:Eurekalert

Related medicine news :

1. Study Gives First Evidence That Adult Human Lungs Can Regrow
2. Hookah smoking increasingly common among first-year college women
3. Sohn Conference and Damon Runyon Cancer Research Foundations name first pediatric research fellows
4. Scientists first to see trafficking of immune cells in beating heart
5. First-of-its-kind approach nanomedicine design effectively targets cancer with decreased toxicity
6. First Is Viewed as Best When Making Quick Decisions
7. Heuer M.D. Research Announces CardiaShred™ - First Medical Doctor Formulated, Heart Healthy Weight Loss, Energy and Lean Muscle Building Supplement
8. Massage Industry Heavyweights Team Up for First-Ever Massage Documentary
9. Health interventions for clergy must counteract need to put others first
10. FDA Approves First New Weight-Loss Drug in More Than a Decade
11. Ecig Advanced Sponsors Lexington's First Annual Vaping Event
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/26/2016)... ... 2016 , ... There are nearly 14.5 million people living with and beyond ... Sunday, June 5, 2016, communities around the world will gather to recognize these cancer ... Cancer Survivors Day® is an annual worldwide Celebration of Life that is held on ...
(Date:5/26/2016)... Los Angeles, CA (PRWEB) , ... May 26, 2016 , ... In an effort to ... Snapchat videos available to both Snapchat users and those who do not use the app. ... available on his new page, Dr. Mohebi Live . , Dr. Mohebi says, ...
(Date:5/26/2016)... (PRWEB) , ... May 26, 2016 , ... North ... May 13 at Blackhorse Golf Club in Cypress. With the help of community partners, ... that restores, empowers, and renews hope for wounded service members and their families through ...
(Date:5/26/2016)... ... May 26, 2016 , ... Power Systems, a leading developer ... Instructor Certification Course in Stoughton, Massachusetts. The course was led by Power Systems’ ... 8 hour interactive course to qualify participants as certified PowerWave trainers. , ...
(Date:5/26/2016)... ... May 26, 2016 , ... The introduction of our professional athletes coincides with ... ™”. , “We are proud to introduce Meghan Klingenberg, defender and World ... Brian Quick, wide receiver for Los Angeles who was a second round selection in ...
Breaking Medicine News(10 mins):
(Date:5/25/2016)... , May 25, 2016  According to Kalorama ... $381 billion in 2015.  Though these are challenging ... of opportunity for success for companies that remain ... search of new growth prospects medical device companies ... research and development (R&D) than do companies in ...
(Date:5/25/2016)... 25, 2016 As illustrated by ... this month, the numbers and momentum of cannabis in ... into the billions, more research and development push the ... State of Legal Marijuana Markets Report  from from ArcView ... much of the increase in sector is attributed to ...
(Date:5/25/2016)... May 25, 2016 Digital Health Dialog, ... it by the US Patent and Trademark Office ... includes proprietary processes for electronic opt-­in and processing ... wellness programs, HIPAA compliance and otherwise. ... "Our technology allows for individuals ...
Breaking Medicine Technology: