Navigation Links
FightSMA Announces Passage of National Pediatric Research Network Act by U.S. House of Representatives

Washington, DC (PRWEB) November 13, 2013

National legislation to advance spinal muscular atrophy research took a giant leap forward on Tuesday, Nov. 12, 2013 with the passage by the U.S. House of Representatives of the National Pediatric Research Network Act (NPRNA).

The NPRNA has been supported by a coalition of health-related organizations that includes FightSMA ( The bill, which was part of a package of health-related bills, has now arrived in the U.S. Senate, where a request has been made by Senate leadership to approve it by unanimous consent. After a period of review by all members, this process may lead to the bill’s passage in the coming days.

"We are absolutely thrilled that the NPRNA has cleared this significant hurdle," said Martha Slay, a founder of FightSMA. "We had much help from many, many families across the country, as well as the early and continuing support of Congressman Eric Cantor."

"Our special thanks go out to Rep. Fred Upton, (R-MI), Chair of the House Energy and Commerce Committee; Rep. Lois Capps (D-CA); and Rep. Cathy McMorris Rodgers (R-WA)."

"This bill will increase coordination and improve pediatric research – especially research of rare and complex diseases – while developing new treatments to fight them," said Congresswoman Capps. "Children have unique health care experiences, treatment needs, and research challenges; and while public and private research has come a long way on pediatric diseases over the years, we know that we are still far behind on important diagnostics, cures, and treatments for far too many ailing children. We see the importance in legislation like this right here at home, where our neighbors Bill and Victoria Strong work every day to make their daughter Gwendolyn’s life a little better as she grows up with SMA. We owe it to the Strongs and to every parent to do what we can to find treatments and cures for illnesses in children."

Rep. McMorris Rodgers, who co-sponsored the NPRNA with Rep. Capps, said, "The National Pediatric Research Network Act will authorize the establishment of a well proven, and evidence-based approach for addressing pediatric research. It will enable the National Institutes of Health (NIH) to support multi-institute research to coordinate and streamline this important research. Most importantly, it will help to speed cures to the youngest patients."

About FightSMA

FightSMA is an international nonprofit 501c3 created in 1991 to strategically accelerate a treatment for spinal muscular atrophy (SMA), the leading genetic cause of infant death. FightSMA has awarded research grants to more than 40 universities and research institutions in the United States, Canada, the United Kingdom, France, and Italy. In 2013, FightSMA launched the groundbreaking "Emerging Investigators Awards" program to recruit promising, young researchers into the SMA research field.

For more information, visit:

Read the full story at

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related medicine news :

1. Remote Accountant, LLC. Announces Increased Small Business Sustainability and Cost Savings using a Remote National Accounting Firm when Having to Move Locations
2. Health Briefs TV Announces Air Dates for New York and Albany
3. McShane Insurance of Texas Announces Ground-Breaking Virtual Insurance Office and Digital Marketing Campaign
4. Nora Ross, Maker of Popular Unscented Garlic Shampoo, Announces November Sale
5. Encouraged By Positive Reviews, Announces New Charming Evening Dresses
6. Diet Doc Hormone Diets & Weight Loss Plans Announces New Diet Plans for Women, Helping Women Increase Confidence & Have More Rewarding Intimate Relationships
7. Epic Era CEO, Glen Jensen, Announces the Funding of Epics’ Leadership Development Program
8. Renowned Dermatology Practice in San Diego Announces Launch of New Liposuction Website
9. EMarketz Announces Video Marketing Service
10. Avenidas Announces Programs for November and December in the Bay Area
11. Five Towns Nissan Announces “Season to Choose” Event on Popular Queens Nissan Vehicles
Post Your Comments:
(Date:11/30/2015)... , ... November 30, 2015 , ... ... continuing education course in Dallas, TX, on January 29 and 30, 2016. The ... improve the functions of their practices, to learn how to better succeed in ...
(Date:11/30/2015)... (PRWEB) , ... November 30, 2015 , ... ... a key disease-causing component of bacteria could be effective in fighting methicillin-resistant Staphylococcus ... Georgia State University. , Their study showed that small molecule analogs that target ...
(Date:11/30/2015)... ... November 30, 2015 , ... Dr. Seth D. Margulies ... locations, patients can visit Dr. Margulies to experience the best available orthodontic experience in ... title of "NJ Top Dentist"! , Orthodontics is the branch of dentistry that specializes ...
(Date:11/30/2015)... ... 2015 , ... ”Dying Words: The AIDS Reporting of Jeff Schmalz and How ... coincide with World AIDS Day. The multi-media project will be in audio documentary form ... he was dying of the disease. , A collaborative effort led by author, professor ...
(Date:11/30/2015)... (PRWEB) , ... November 30, 2015 , ... ... Reports magazine, quoted Michael Hansen, Ph.D., a senior scientist at Consumer Reports as ... more so for a child’s exposure limits. , The original Nov 2015 CR ...
Breaking Medicine News(10 mins):
(Date:11/30/2015)... KONG, Nov. 30, 2015 (HK$,000)For the Six Months Ended 30 September 2015 ... Income , 421,979 , 384,242 , ... , 34,719 , (18.3) Medical Insurance ... , 16.1 Medical Devices and Accessories Sales , ... Chinese Herbal Medicines Sales , 2,822 , ...
(Date:11/30/2015)... Calif. , Nov. 30, 2015 /PRNewswire/ ... the norm in U.S. medical imaging is ... increasingly popular accountable care payer-provider contracts are ... and, in their wake, alter provider-vendor relationships. ... payments will push forward new purchasing frameworks ...
(Date:11/30/2015)... Nov. 30, 2015 Oramed Pharmaceuticals Inc. (NASDAQ: ... the development of oral drug delivery systems, announced today ... at up to $50,000,000 with Hefei Tianhui Incubator of Technologies Co., Ltd. ... capsule, ORMD-0801, in China , ... . The agreements were signed at the Israel ...
Breaking Medicine Technology: