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Family's Fight to Save Child Spreads Hope Around Globe
Date:2/11/2010

A modern-day story of tragedy turned triumph. After the tragic loss of their 7-year-old daughter Hailey just over three weeks ago, Neil and Miranda Goranflo of Louisville, KY are now fighting for their 4-year-old Carter who has the same illness. By launching an ambitious Internet campaign to raise $1 million by February 14th, which would help fund a potentially life-saving research study at Cornell University, they’ve unintentionally spread hope and inspiration around the globe.

(PRWEB) February 11, 2010 -- In late June of 2008, one family’s desperate fight against a rare, incurable disease became the subject of national attention when Hailey Goranflo and her mother Miranda were stopped from boarding a flight to China and detained in Vancouver, Canada. Hailey was to receive potentially life-saving treatment by researchers in Beijing, but confusion among airline staff put her chances for treatment in jeopardy. They were forced to return home to Louisville, KY.

National news followed the story as Kentucky Congressman John Yarmuth and United Airlines finally made that trip happen by early July 2008. Although the treatments she received in China had some positive effects, Batten disease with its 100% fatality rate, took 7-year-old Hailey away from her family last month. But that’s not where the saga ended.

Just days after losing their daughter, Miranda and her husband Neil turned their attention to their remaining child, 4-year-old Carter. He too has Batten disease. What they decided to do about it has turned into an unintentional hope campaign to everyone who hears about it.

Supporter Mark Gnau said, “I don’t know how they stay strong, but they do, and that has given me strength.”

"We can't sit around and do nothing, we can't bury another child," Miranda said in a press conference just over a week ago, where they un
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