Navigation Links
Family's Fight to Save Child Spreads Hope Around Globe
Date:2/11/2010

A modern-day story of tragedy turned triumph. After the tragic loss of their 7-year-old daughter Hailey just over three weeks ago, Neil and Miranda Goranflo of Louisville, KY are now fighting for their 4-year-old Carter who has the same illness. By launching an ambitious Internet campaign to raise $1 million by February 14th, which would help fund a potentially life-saving research study at Cornell University, they’ve unintentionally spread hope and inspiration around the globe.

(PRWEB) February 11, 2010 -- In late June of 2008, one family’s desperate fight against a rare, incurable disease became the subject of national attention when Hailey Goranflo and her mother Miranda were stopped from boarding a flight to China and detained in Vancouver, Canada. Hailey was to receive potentially life-saving treatment by researchers in Beijing, but confusion among airline staff put her chances for treatment in jeopardy. They were forced to return home to Louisville, KY.

National news followed the story as Kentucky Congressman John Yarmuth and United Airlines finally made that trip happen by early July 2008. Although the treatments she received in China had some positive effects, Batten disease with its 100% fatality rate, took 7-year-old Hailey away from her family last month. But that’s not where the saga ended.

Just days after losing their daughter, Miranda and her husband Neil turned their attention to their remaining child, 4-year-old Carter. He too has Batten disease. What they decided to do about it has turned into an unintentional hope campaign to everyone who hears about it.

Supporter Mark Gnau said, “I don’t know how they stay strong, but they do, and that has given me strength.”

"We can't sit around and do nothing, we can't bury another child," Miranda said in a press conference just over a week ago, where they un
'/>"/>

Source: PRWeb
Copyright©2010 Vocus, Inc.
All rights reserved  

Page: 1 2 3

Related medicine news :

1. Actress Debi Mazar Talks About her Family's Experience with Bipolar Depression
2. Preclinical study suggests organ-transplant drug may aid in lupus fight
3. Computers help chemists fight emerging infections
4. Study shines more light on benefit of vitamin D in fighting cancer
5. Texas Supreme Court Rules Against Medicare HMOs in Hospital Reimbursement Fight
6. HIV Drug Might Fight Cancer
7. ADA Challenges Marylanders to Step Out to Fight Diabetes Epidemic
8. UVa researcher awarded $3.6 million grant to fight drug-resistant bacteria
9. Drug, Pacemaker Fight Irregular Heartbeat
10. Scripps Research scientists shed new light on how antibodies fight HIV
11. The fight against colorectal cancer
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Family's Fight to Save Child Spreads Hope Around Globe
(Date:7/28/2014)... 28, 2014 Quincy Bioscience, makers of ... pleased to announce the release of the fourth edition ... and co-founder Mark Underwood. , The Brain Health Guide ... useful techniques for readers to improve memory and promote ... conclusion, The Brain Health Guide provides ways to help ...
(Date:7/28/2014)... 2014 (HealthDay News) -- Elementary school students seem to be ... according to a new study of school officials. , , ... Agriculture -- went into effect in the fall of 2012. ... buying lunch, or throw away most of their food. But ... this isn,t the case. , , "The updated meals standards ...
(Date:7/28/2014)... (PRWEB) July 28, 2014 Shofner ... Operation Military June . Renowned LASIK and Cataract ... to provide significant funds and public awareness for ... retired military personnel and their families. “This was ... proudly give nearly $5,000 to a variety of ...
(Date:7/28/2014)... By Maureen Salamon ... (HealthDay News) -- Infants and children who are at ... should be vaccinated against the infection, according to updated ... States. And routine vaccinations for the potentially ... the American Academy of Pediatrics says. In its ...
(Date:7/28/2014)... HealthDay Reporter MONDAY, July 28, 2014 ... irregularities are more likely to get a pacemaker than people ... study of more than 16,000 people found that those with ... a pacemaker than those without the memory-robbing condition. ... dementia are so much more likely to be treated with ...
Breaking Medicine News(10 mins):Health News:Quincy Bioscience Launches the Fourth Edition of The Brain Health Guide 2Health News:Healthy School Lunches Get Thumbs Up From Students 2Health News:Shofner Vision Center’s “Operation Military June” Provided Funds For Local Not-For-Profit Organizations Supporting Military And Their Families 2Health News:Shofner Vision Center’s “Operation Military June” Provided Funds For Local Not-For-Profit Organizations Supporting Military And Their Families 3Health News:Doctors Urge Meningitis Shots for Vulnerable Infants, Children 2Health News:Doctors Urge Meningitis Shots for Vulnerable Infants, Children 3Health News:Pacemakers Common for Those With Dementia and Irregular Heartbeats 2Health News:Pacemakers Common for Those With Dementia and Irregular Heartbeats 3
... unveiled new body-mass index numbers that can be used to ... received an eye-opening letter from her daughter's school which revealed ... heavier than 98 percent of her peers. ,Last ... the backyard, substituting soda for bottled water and eating more ...
... five of them seriously, after eating stale food on Independence ... 44 children of Pratapura Primary School, 60 km from Chhattarpur ... ,The children complained of stomach ache and started vomiting ... earlier. ,They were taken to a primary ...
... Health officials in Rajasthan would now be denied salary increments if ... ,If an official is found neglecting his duties and is unable ... to a period of three years, said a notification issued by ... apply to senior, junior and chief officers of the medical and ...
... thousands of red, yellow, pink and blue condoms have flooded ... sticky issue at the world's largest// AIDS conference. ... sex. It will become like the anti-smoking drives which everyone ... ,"We must be able to talk about sexual ...
... revealed that most of the people suffering from osteoporosis are ... ,According to the research by the University of ... affected by osteoporosis, the problem is not being managed efficiently. ... Health in Western Australia, carried out a study on 366 ...
... only remedy for many ills, and AIDS/HIV is also one ... who are educated till the secondary levels show a// tendency ... at the first opportunity. The educated lot was well aware ... report on HIV. ,The statistics in Africa ...
Cached Medicine News:Health News:Childhood Obesity Tackled in Arkansas 2Health News:Safe Sex and Good Sex is the Talk of AIDS Conference 2Health News:Negligence in Osteoporosis treatment 2
(Date:7/28/2014)... 28, 2014  VigeneTech, Inc, in collaboration with ... Data Analysis Software, an OEM software solution for ... develops and offers varieties of bead-based multi-analyte immunoassay ... support of VigeneTech,s data analysis software, FCS data ... easily reported LEGENDplex™ software is ...
(Date:7/28/2014)... , July 28, 2014 Research and Markets ... Drugs Market 2014-2018" report to their offering. ... chronic disease that leads to inflammation and pain in the ... ankles. In addition, it causes inflammation of the tissues that ... The symptoms of RA begin slowly, usually just mild ...
(Date:7/28/2014)... 28, 2014  Syneron Medical Ltd. (NASDAQ: ... today that its new PicoWay® device has received CE ... colors and pigmented lesions on any skin type. PicoWay ... 532nm and 1064nm wavelengths, which utilizes Syneron,s proprietary PicoWay ... which are trillionths of a second, known as picosecond ...
Breaking Medicine Technology:VigeneTech Releases New Powerful Software for Flow Cytometry Data Analysis 2Global Rheumatoid Arthritis Drugs Market 2014-2018 2Syneron Announces CE Mark for PicoWay Dual Wavelength Picosecond Laser for Tattoo Removal and Treatment of Pigmented Lesions 2Syneron Announces CE Mark for PicoWay Dual Wavelength Picosecond Laser for Tattoo Removal and Treatment of Pigmented Lesions 3Syneron Announces CE Mark for PicoWay Dual Wavelength Picosecond Laser for Tattoo Removal and Treatment of Pigmented Lesions 4
... WASHINGTON, Oct. 28, 2011 The National Pharmaceutical Council (NPC) ... North America, has been elected Chairman of its Board of ... since 2008, most recently as Treasurer. "Rich ... landscape is continuing to change at a rapid pace. As ...
... Medical Systems, Inc., a developer of high-end ultrasound solutions, ... President of Business Development & Corporate Accounts.  A 25-year ... ZONARE since 2005. In addition to managing ... U.S. based clinical applications group. Previously Ryland served as ...
Cached Medicine Technology:AstraZeneca's Rich Fante Elected as National Pharmaceutical Council's Chairman of the Board 2ZONARE Medical Systems Announces Appointment of PJ Ryland as Vice President of Business Development & Corporate Accounts 2
Aplicare's disposable 1-ounce pouches are designed for individual application and are ideal for reducing waste. They are used in nursing homes, home healthcare settings, blood banks, laboratories, em...
... a gentle and effective surgical scrub with ... Iodine is known to kill skin surface ... viruses, protozoa and yeasts. It produces a ... patient pre-operative prepping, as well as for ...
... is appropriate for pre-surgical patient preparation ... spray); disinfecting of wounds and burns; ... and abrasions. It also acts as ... and office procedures, providing protection against ...
Pre-Saturated Sponge Sticks...
Medicine Products: