Navigation Links
Families of children with cancer support human tissue research, study finds
Date:4/1/2008

Families of children with cancer support research using tissue samples left over after operations, a new study has found.

Contrary to reports of a public crisis of confidence in tissue-based research, a team led by the University of Leicester found that all 20 children and 59 parents they interviewed would be happy to consent to donating samples to a tissue bank for childhood cancer research. The study was funded by the Economic and Social Research Council (ESRC) and the Wellcome Trust.

"These findings show that anxieties about asking families to donate tissue for research may be misplaced? said Professor Mary Dixon-Woods, one of the authors of the study published in Biosocieties.

"Media reporting has often given the impression that the public is gravely concerned about any use of tissue for research, even when the tissue is from living donors and is being removed as part of treatment. Our study shows that it is wrong to think of the public as having a single unified opinion."

As long as the right safeguards were in place, children with cancer and their parents were keen to donate material left over from operations for research because they saw it as a way of helping other people, the study reports. One mother interviewed for the study commented that generations of previous children taking part in cancer research had helped to ensure her child's survival: "without them, we might not be here now", she said.

"Research using tissue samples is vital to developing improved ways of diagnosing and treating cancer in children," said Professor Kathy Pritchard-Jones of the Institute of Cancer Research. "It is essential that unfounded claims about 'what the public thinks' do not get in the way. This study shows that healthcare staff should feel confident about approaching families to ask them to think about donating samples for research."

The study reports that, historically, research on tissue samples has always depended on public support. Historical research by Dr Duncan Wilson of the University of Manchester shows that what counted as public opinions were far more diverse than is commonly supposed.

"Using tissue samples in modern day research is just the same - it can't happen in opposition to public values", said Professor Dixon-Woods. "People are happy to donate tissue, but researchers do need to recognise the values and expectations of people who donate material." Although 26 participants in the study said they would be content for samples to be used for research without their consent, a majority (45) did wish to be asked for consent. Families in the study said they would consent to tissue banking because they trusted the staff who asked them, they felt that regulation would protect them from any untoward use of the samples, and that the samples would be used for the good of the childhood cancer community.

"It is important that everything is done to secure this trust," said Professor Pritchard-Jones. "That doesn't always mean highly bureaucratic regulation, but it does mean listening to families and being sensitive to their needs, and ensuring that any use of samples in research is ethical."


'/>"/>

Contact: Professor Mary Dixon-Woods
md11@le.ac.uk
University of Leicester
Source:Eurekalert

Related medicine news :

1. Easter Seals Notes Aprils Autism Awareness Month to Highlight Services Available to Families Living With Autism
2. MassMutual Offers Free Letter of Intent Template to People with Disabilities and Their Families, Caregivers
3. BJs Charitable Foundation Announces Q4 Donation of More Than $500,000 to Programs That Benefit Children and Families
4. Families Can Make Informed 2008 Presidential Campaign Decisions With FamilyEducation & Infoplease
5. High Blood Pressure Runs in Families
6. Families Fighting Flu Board Member Speaks at 42nd Annual National Immunization Conference
7. Families Play a Role in the Development of Eating Disorders
8. ADAOs March 29 Conference Unites Survivors, Families and Physicians
9. GetWellNetwork and KidsHealth Partner to Empower Pediatric Patients and Their Families
10. 1,000 Mental Health Professionals Join National Network to Provide Free Counseling to Returning Veterans and their Families
11. New Home Safety Council(R) Research Shows the Majority of Families Underestimate the Danger of Poisoning Exposure at Home
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... ... , ... The temporary closing of Bruton Memorial Library on June 21 due to a possible ... often overlooked aspect of head lice: the parasite’s ability to live away from a human ... but a necessary one in the event that lice have simply gotten out of control. ...
(Date:6/25/2016)... ... , ... First Choice Emergency Room , the largest network of independent ... Director of its new Mesquite-Samuell Farm facility. , “We are pleased to announce ... Dr. James M. Muzzarelli, Executive Medical Director of First Choice Emergency Room. , ...
(Date:6/25/2016)... ... June 25, 2016 , ... Dr. Calvin Johnson has ... he has implemented orthobiologic procedures as a method for treating his patients. The ... first doctors to perform the treatment. Orthobiologics are substances that orthopaedic surgeons use ...
(Date:6/25/2016)... Montreal, Canada (PRWEB) , ... June 25, 2016 , ... ... the pursuit of success. In terms of the latter, setting the bar too high ... low, risk more than just slow progress toward their goal. , Research from ...
(Date:6/24/2016)... ... 2016 , ... Those who have experienced traumatic events may suffer from a ... such as drug or alcohol abuse, as a coping mechanism. To avoid this pain ... following a traumatic event. , Trauma sufferers tend to feel a range of emotions, ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... June 23, 2016 Research and Markets ... Issue 52" report to their offering. ... treatment creates a favourable commercial environment for MedImmune to enter. ... base that will serve to drive considerable growth for effective ... serve to cap sales considerably, but development is still in ...
(Date:6/23/2016)... and BOGOTA, Colombia , June 23, 2016  Astellas today announced the establishment of Astellas ... Brasil as the company,s second affiliate in Latin America . ... ... of Astellas Farma Colombia ... ...
(Date:6/23/2016)... -- Research and Markets has announced the ... (United States, China, Japan, Brazil, United Kingdom, Germany, France, ... Surgical Procedure Volumes: ... provides surgical procedure volume data in a geographic context. ... analysis of growth drivers and inhibitors, including world population ...
Breaking Medicine Technology: