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Families of Spinal Muscular Atrophy Announces its New Medical Advisory Council
Date:5/19/2009

LIBERTYVILLE, Ill., May 19 /PRNewswire-USNewswire/ -- Families of Spinal Muscular Atrophy has just launched a new Medical Advisory Council (MAC). The Families of SMA MAC is one of the most highly respected bodies of SMA medical and clinical experts in the U.S., setting the agenda for proactive, creative, and collaborative leadership on issues that improve the quality of medical care for those affected by SMA.

The new Council will focus on educating families, health care providers, and the public about SMA; expanding SMA standards of care; and translating positive research results into clinical practice. Dr. Mary Schroth, a leading pediatric pulmonologist will serve as Chair for the new Council. Mary is Associate Professor of Pediatrics and Director of the Pediatric Pulmonary Center Grant at the University of Wisconsin Children's Hospital.

The MAC is composed of experts in the following fields:

Neurology (pediatric and adult); Pediatrics; Pulmonology; Pediatric Orthopedic Surgery; Pediatric Critical Care (NICU specialist); Physiatry (rehab medicine); Psychology; Genetic Counseling and/or Medical Ethics; Physical Therapy; Occupational Therapy; Diet and Nutrition; Respiratory Therapy; Nursing.

The members of the new MAC will be present at the upcoming 25th Anniversary Conference to be held in Cincinnati, OH in June.

Members of the new MAC include:

    -Susan Apkon, MD.  The Children's Hospital, Colorado.
    -Thomas Crawford, MD.  Johns Hopkins University.
    -Richard S. Finkel, MD.  The Children's Hospital of Philadelphia
    -Albert Freedman, Ph.D.  West Chester, PA.
    -Robert Graham, MD.  Children's Hospital Boston.
    -John Grayhack, MD.  Northwestern University Feinberg School of Medicine.
     Children's Memorial Hospital.
    -John T. Kissel, MD.  The Ohio State University.
    -Richard M. Kravitz, MD.  Duke University Medic
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SOURCE Families of Spinal Muscular Atrophy
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