Navigation Links
Families of Spinal Muscular Atrophy Announces its New Medical Advisory Council
Date:5/19/2009

LIBERTYVILLE, Ill., May 19 /PRNewswire-USNewswire/ -- Families of Spinal Muscular Atrophy has just launched a new Medical Advisory Council (MAC). The Families of SMA MAC is one of the most highly respected bodies of SMA medical and clinical experts in the U.S., setting the agenda for proactive, creative, and collaborative leadership on issues that improve the quality of medical care for those affected by SMA.

The new Council will focus on educating families, health care providers, and the public about SMA; expanding SMA standards of care; and translating positive research results into clinical practice. Dr. Mary Schroth, a leading pediatric pulmonologist will serve as Chair for the new Council. Mary is Associate Professor of Pediatrics and Director of the Pediatric Pulmonary Center Grant at the University of Wisconsin Children's Hospital.

The MAC is composed of experts in the following fields:

Neurology (pediatric and adult); Pediatrics; Pulmonology; Pediatric Orthopedic Surgery; Pediatric Critical Care (NICU specialist); Physiatry (rehab medicine); Psychology; Genetic Counseling and/or Medical Ethics; Physical Therapy; Occupational Therapy; Diet and Nutrition; Respiratory Therapy; Nursing.

The members of the new MAC will be present at the upcoming 25th Anniversary Conference to be held in Cincinnati, OH in June.

Members of the new MAC include:

    -Susan Apkon, MD.  The Children's Hospital, Colorado.
    -Thomas Crawford, MD.  Johns Hopkins University.
    -Richard S. Finkel, MD.  The Children's Hospital of Philadelphia
    -Albert Freedman, Ph.D.  West Chester, PA.
    -Robert Graham, MD.  Children's Hospital Boston.
    -John Grayhack, MD.  Northwestern University Feinberg School of Medicine.
     Children's Memorial Hospital.
    -John T. Kissel, MD.  The Ohio State University.
    -Richard M. Kravitz, MD.  Duke University Medical Center.
    -Kristin J. Krosschell, PT, MA, PCS.  Feinberg School of Medicine,
     Northwestern University.
    -Garey Noritz, MD.  MetroHealth Medical Center/Case Western Reserve
     University.
    -Karen Patterson, MS, PT, PCS.  University of Wisconsin Physical Therapy
     Program.
    -Richard Shell, MD. Nationwide Children's Hospital and The Ohio State
     University.
    -Kenneth Silver, MD.  University of Chicago Comer Children's Hospital.
    -Brian Snyder, MD, Ph.D.  Harvard Medical School and  Children's Hospital
     of Boston.
    -Jodi Wolff, MS, RD.  MetroHealth Medical Center/Case Western Reserve.
    -Andreas Constantinescu, MD, Ph.D.  Columbia University/Children's
     Hospital of NY-Presbyterian.
    -Susan Iannaccone, MD.  University of Texas Southwestern Medical Center.
     Children's Medical Center
    -Jonathan Finder, MD.  University of Pittsburgh School of Medicine and
     Children's Hospital of Pittsburgh.
    -Petra Kaufmann, MD.  Columbia University.
    -Anastassios C. Koumbourlis, MD, MPH.  Schneider Children's Hospital.
     Albert Einstein College of Medicine.
    -Jo Anne Maczulski, MA, OTR/L.  Chicago, IL.
    -Barry S. Russman, MD.  The Ohio State University and Shriners Hospital
     for Children.
    -Kathryn J. Swoboda, MD.  University of Utah School of Medicine.
    -Nanci Yuan, MD.  Stanford University.

About Families of SMA:

Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:

Funding and advancing a comprehensive research program; Supporting SMA families through networking, information and services; Improving care for all SMA patients; Educating health professionals and the public about SMA; Enlisting government support for SMA; Embracing all touched by SMA in a caring community.

Our vision is a world where Spinal Muscular Atrophy is treatable and curable.

The goal of the organization for 2009 is to have raised $50 million for SMA research. Families of SMA funds and directs the leading SMA research programs. Families of SMA has created hope for our community that did not exist in 1984. Our support comes from generous individual donations and numerous fundraising events held by volunteer families and our chapters.

Our successful results and progress from basic research to drug discovery programs to clinical trials provides real hope for families and patients:

    -Families of SMA has funded 5 multi-center clinical trials for existing
     drugs that have potential for SMA.
    -FSMA has directed and funded the leading new drug development program for
     a therapy specially designed to treat SMA.
    -Families of SMA is building a pipeline of drug discovery programs based
     on our investments in basic research.
    -FSMA has invested significant resources into alternative approaches that
     show promise to cure SMA.

www.curesma.org


'/>"/>
SOURCE Families of Spinal Muscular Atrophy
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Heinz Family Philanthropies (www.heinzfamily.org) Release New Facts About Cards, Highlighting Questions Families Should Ask About Long-Term Care -- 10 Questions to Answer... (www.tenquestionstoanswer.org)
2. New Study Finds Fewer Families Can Afford Health Insurance
3. 200 Families of Children With Serious Eye Problems Benefit From Unique Gift Card Program at The Vision Center at Childrens Hospital Los Angeles
4. Four of Five Families Will Be Touched by Stroke in 2009
5. DaVita Donates More Than $1 Million in Scholarship Funds for Teammates Families
6. Pandemic Flu Preparedness Guides for Families, Businesses, Medical Providers, and Community Groups Released by Trust for Americas Health
7. U.S. Representatives Hill and Murphy Introduce the Men and Families Health Care Act of 2009
8. Red Cross Urges Families and Communities to Prepare During Swine Flu Outbreak
9. Organ Donor Families, Transplant Recipients Journey to State Capitol to Urge Passage of Key Donor Designation Legislation
10. TERI Offers Comprehensive Life Quality Plans to Families, Caregivers of People with Developmental Disabilities
11. LFAGW to Offer Free Lupus Symposium on May 16 for Patients and Families
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/12/2017)... ... , ... IsoComforter, Inc. ( https://isocomforter.com ), one of the Nation’s ... design of the shoulder pad. The shoulder pad provides optimal support and full ... while using cold therapy. By utilizing ice and water that is circulated from an ...
(Date:10/12/2017)... ... October 12, 2017 , ... Information about the technology: ... develop to enable prevention of a major side effect of chemotherapy in children. ... pediatric patients. For cisplatin, hearing loss is FDA listed on-label as a dose ...
(Date:10/12/2017)... D.C. (PRWEB) , ... October 12, 2017 , ... Leading ... their peers in Washington, D.C., for the 49th Congress of the International Society ... ., Vice President of the Center for Cancer and Blood Disorders at ...
(Date:10/12/2017)... ... October 12, 2017 , ... ... nation's first interactive health literacy software tool, and the Cancer Patient Education Network ... cancer patient education, today announce a new strategic alliance. , As CPEN’s ...
(Date:10/12/2017)... ... October 12, 2017 , ... ... of California Berkeley, and other leading institutions in announcing the launch of the ... to change the way animals are raised for food. , Founding members of ...
Breaking Medicine News(10 mins):
(Date:9/23/2017)... 22, 2017 Janssen Biotech, Inc. (Janssen) announced ... from the U.S. Food and Drug Administration (FDA) for ... for the treatment of moderately to severely active rheumatoid ... data are needed to further evaluate the safety of ... RA. "We ...
(Date:9/22/2017)... 22, 2017 AVACEN Medical (AVACEN) announced that ... successfully helping those with the widespread pain associated with ... Amanda in Essex, England commented, ... hair, experiencing no sleep at all, tremendous pain, with ... cannot recommend [the AVACEN 100] enough, how this has ...
(Date:9/19/2017)... Ky. , Sept. 19, 2017   ZirMed Inc ... predictive analytics, today announced that it has been ranked #1 ... Black Book™ Rankings 2017 User Survey. ZirMed was ... solution for large hospitals and medical centers over 200 beds ... Black Book,s healthcare technology user survey history. ...
Breaking Medicine Technology: