Navigation Links
Families of Spinal Muscular Atrophy Announces its New Medical Advisory Council
Date:5/19/2009

LIBERTYVILLE, Ill., May 19 /PRNewswire-USNewswire/ -- Families of Spinal Muscular Atrophy has just launched a new Medical Advisory Council (MAC). The Families of SMA MAC is one of the most highly respected bodies of SMA medical and clinical experts in the U.S., setting the agenda for proactive, creative, and collaborative leadership on issues that improve the quality of medical care for those affected by SMA.

The new Council will focus on educating families, health care providers, and the public about SMA; expanding SMA standards of care; and translating positive research results into clinical practice. Dr. Mary Schroth, a leading pediatric pulmonologist will serve as Chair for the new Council. Mary is Associate Professor of Pediatrics and Director of the Pediatric Pulmonary Center Grant at the University of Wisconsin Children's Hospital.

The MAC is composed of experts in the following fields:

Neurology (pediatric and adult); Pediatrics; Pulmonology; Pediatric Orthopedic Surgery; Pediatric Critical Care (NICU specialist); Physiatry (rehab medicine); Psychology; Genetic Counseling and/or Medical Ethics; Physical Therapy; Occupational Therapy; Diet and Nutrition; Respiratory Therapy; Nursing.

The members of the new MAC will be present at the upcoming 25th Anniversary Conference to be held in Cincinnati, OH in June.

Members of the new MAC include:

    -Susan Apkon, MD.  The Children's Hospital, Colorado.
    -Thomas Crawford, MD.  Johns Hopkins University.
    -Richard S. Finkel, MD.  The Children's Hospital of Philadelphia
    -Albert Freedman, Ph.D.  West Chester, PA.
    -Robert Graham, MD.  Children's Hospital Boston.
    -John Grayhack, MD.  Northwestern University Feinberg School of Medicine.
     Children's Memorial Hospital.
    -John T. Kissel, MD.  The Ohio State University.
    -Richard M. Kravitz, MD.  Duke University Medical Center.
    -Kristin J. Krosschell, PT, MA, PCS.  Feinberg School of Medicine,
     Northwestern University.
    -Garey Noritz, MD.  MetroHealth Medical Center/Case Western Reserve
     University.
    -Karen Patterson, MS, PT, PCS.  University of Wisconsin Physical Therapy
     Program.
    -Richard Shell, MD. Nationwide Children's Hospital and The Ohio State
     University.
    -Kenneth Silver, MD.  University of Chicago Comer Children's Hospital.
    -Brian Snyder, MD, Ph.D.  Harvard Medical School and  Children's Hospital
     of Boston.
    -Jodi Wolff, MS, RD.  MetroHealth Medical Center/Case Western Reserve.
    -Andreas Constantinescu, MD, Ph.D.  Columbia University/Children's
     Hospital of NY-Presbyterian.
    -Susan Iannaccone, MD.  University of Texas Southwestern Medical Center.
     Children's Medical Center
    -Jonathan Finder, MD.  University of Pittsburgh School of Medicine and
     Children's Hospital of Pittsburgh.
    -Petra Kaufmann, MD.  Columbia University.
    -Anastassios C. Koumbourlis, MD, MPH.  Schneider Children's Hospital.
     Albert Einstein College of Medicine.
    -Jo Anne Maczulski, MA, OTR/L.  Chicago, IL.
    -Barry S. Russman, MD.  The Ohio State University and Shriners Hospital
     for Children.
    -Kathryn J. Swoboda, MD.  University of Utah School of Medicine.
    -Nanci Yuan, MD.  Stanford University.

About Families of SMA:

Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:

Funding and advancing a comprehensive research program; Supporting SMA families through networking, information and services; Improving care for all SMA patients; Educating health professionals and the public about SMA; Enlisting government support for SMA; Embracing all touched by SMA in a caring community.

Our vision is a world where Spinal Muscular Atrophy is treatable and curable.

The goal of the organization for 2009 is to have raised $50 million for SMA research. Families of SMA funds and directs the leading SMA research programs. Families of SMA has created hope for our community that did not exist in 1984. Our support comes from generous individual donations and numerous fundraising events held by volunteer families and our chapters.

Our successful results and progress from basic research to drug discovery programs to clinical trials provides real hope for families and patients:

    -Families of SMA has funded 5 multi-center clinical trials for existing
     drugs that have potential for SMA.
    -FSMA has directed and funded the leading new drug development program for
     a therapy specially designed to treat SMA.
    -Families of SMA is building a pipeline of drug discovery programs based
     on our investments in basic research.
    -FSMA has invested significant resources into alternative approaches that
     show promise to cure SMA.

www.curesma.org


'/>"/>
SOURCE Families of Spinal Muscular Atrophy
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Heinz Family Philanthropies (www.heinzfamily.org) Release New Facts About Cards, Highlighting Questions Families Should Ask About Long-Term Care -- 10 Questions to Answer... (www.tenquestionstoanswer.org)
2. New Study Finds Fewer Families Can Afford Health Insurance
3. 200 Families of Children With Serious Eye Problems Benefit From Unique Gift Card Program at The Vision Center at Childrens Hospital Los Angeles
4. Four of Five Families Will Be Touched by Stroke in 2009
5. DaVita Donates More Than $1 Million in Scholarship Funds for Teammates Families
6. Pandemic Flu Preparedness Guides for Families, Businesses, Medical Providers, and Community Groups Released by Trust for Americas Health
7. U.S. Representatives Hill and Murphy Introduce the Men and Families Health Care Act of 2009
8. Red Cross Urges Families and Communities to Prepare During Swine Flu Outbreak
9. Organ Donor Families, Transplant Recipients Journey to State Capitol to Urge Passage of Key Donor Designation Legislation
10. TERI Offers Comprehensive Life Quality Plans to Families, Caregivers of People with Developmental Disabilities
11. LFAGW to Offer Free Lupus Symposium on May 16 for Patients and Families
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/24/2017)... ... February 24, 2017 , ... In the Health Care IT campaign, Robert Herjavec ... it’s not if you will be attacked, but when.” However, he and many others ... health care. , Improvements in auditing and monitoring have taken security in health care ...
(Date:2/24/2017)... ... 2017 , ... The narrative in “ Signal 8: An Australian Paramedic’s Story ... his paramedic experiences. Schanssema describes the tragedies he saw, as well as his struggles ... , Schanssema, initially unsure of the career path he wanted to take, found fulfillment ...
(Date:2/24/2017)... ... 2017 , ... Yisrayl Hawkins, Pastor and Overseer at The House of Yahweh, ... Yisrayl makes an astounding statement when he says that the entire Bible was ... details the current times so plainly that anyone should be able to see the ...
(Date:2/24/2017)... Farifax, VA (PRWEB) , ... February 24, 2017 , ... ... winners for excellence in radiology marketing programs at the annual Building Better ... the Worthington Renaissance Fort Worth Hotel in Fort Worth, Texas. Nine awards are given ...
(Date:2/24/2017)... ... February 24, 2017 , ... Castle Farms, the ... Military Wedding Giveaway, with the winning couple announced on Feb. 14, 2017, on ... donated from local vendors: A Matter of Taste, Ryan Rousseau Enterprises, A Touch ...
Breaking Medicine News(10 mins):
(Date:2/24/2017)... BRISBANE, Australia , Feb. 23, 2017  Directors from Pharma ... the two companies have joined forces, resulting in the founding of ... . Pharma To Market are pleased to announce their ... an office in Singapore . The company are ... Consulting as Co-Director of the Singapore based ...
(Date:2/24/2017)... -- Xynomic Pharmaceuticals, Inc., an oncology drug research and ... exclusive worldwide rights to develop, manufacture and commercialize ... hematological and solid tumors. To date ... clinical trials of Abexinostat in US, EU and ... completed, demonstrating that Abexinostat is clinically active in ...
(Date:2/23/2017)... 2017 LG Innotek hat heute die weltweit ... beträgt das 1,5-fache des 45-mW-Moduls der Konkurrenz. ... 200 und 280 nm und eignet sich damit für Sterilisationsaufgaben. ... DNA zerstört. Das Produkt von LG Innotek erzeugt UV-Strahlung ... ...
Breaking Medicine Technology: