Navigation Links
FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer
Date:9/12/2017

William R. Lewis Sr. M.D., chairman of the Board of Directors of the FSH Society, today announced that Mark A. Stone has been named president and chief executive officer of the 501(c)(3) non-profit after a nationwide search.

"Mark brings with him a successful career in making a difference to patients and families suffering with rare diseases, as well as fine executive leadership skills in nonprofit health care and policy management," said Lewis. "Mark will certainly help the FSH Society navigate the new challenges of translational research and entering into the business of supporting clinical trials while maintaining a solid basic research platform."

Stone, a leading executive in health care-related nonprofit organizations has served as an executive leader of research-focused patient advocacy groups for the past 13 years, his most recent assignment being the chief executive officer of NephCure Kidney International. During his tenure at NephCure, Stone launched the NephCure Accelerating Cures Institute (NACI), a drug discovery initiative anchored by a clinical trial network comprising more than 35 sites, which seeks to expedite potential treatments for nephrotic syndrome.

"I am looking forward to bringing my experience to the FSH Society. The Society’s track record of success in advancing research initiatives in facioscapulohumeral muscular dystrophy (FSHD) is unmatched, and I am excited about working collaboratively with the founder, our involved and dedicated Board, advisory boards, donors, volunteers and staff to accelerate promising treatments to families impacted by this debilitating disease," said Stone.

Stone is passionate about helping organizations work to accelerate treatments and cures in diseases that are both rare and of a genetic origin. He has successfully engaged patients, families and friends in raising up an “army of activists” while advocating with pharmaceuticals, the National Institutes of Health (NIH), and the FDA to increase funding levels and enlarge the pipeline of potential therapies. Individuals and families impacted by FSHD will remain the FSH Society’s core focus and priority.

“Mark embodies the qualities of a leader of nonprofits and passionate causes – he is visionary, entrepreneurial, and has been instrumental in achieving strong growth. Mark’s experience in strategic planning, implementation and successful fundraising is key at this critical juncture. Mark has compassion, and his empathy is evident. He is an excellent communicator – and this will help FSHD become a known disease. He will be an outstanding CEO of the FSH Society,” said Daniel Paul Perez, co-founder, chief science officer, and outgoing CEO.

Having recently celebrated its 25th anniversary, the FSH Society was founded in 1991 by two researchers with the disease and has grown into a world leader in combating muscular dystrophy. The Society relies entirely on private grants, donations and grassroots philanthropy, and has raised and invested nearly $9 million in research relevant to understanding the molecular genetics and cause of FSHD. The Society organizes an annual symposium for researchers worldwide, patient network meetings, support group meetings, and peer support. This support has helped the Society to write the MD-CARE Act of 2001, which led to the creation of the NIH-funded Wellstone Centers for FSHD research. Importantly, the Society’s vision is to deliver treatments and a cure for FSHD while providing support so that no patient need ever face this disease alone.

About Mark Stone
Stone served as CEO of NephCure Accelerating Cures Institute (NACI), a partnership launched in March 2017 by NephCure Kidney International and the University of Michigan. Based in Philadelphia, NACI is a global clinical trials network and support infrastructure with a 30-plus-site network. NACI has received financial support from Pfizer’s Centers for Therapeutic Innovation and Retrophin. Stone was CEO of NephCure Kidney International from 2014 until the launch of NACI. Prior to his work there, Stone served CFIDS Association of America, the largest private funder of research for chronic fatigue syndrome as chief development officer, and the American Association of Physicians of Indian Origin as CEO. From 2004-2011, he was executive vice president and COO of the Polycystic Kidney Disease (PKD) Foundation. Stone has also served as the deputy director of an international relief and development organization and as a pastor within the Nazarene Church.

About the FSH Society
The FSH Society (the Society) is the world’s largest grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, families and research activists. Based in Lexington, Massachusetts, its important mission is to serve as a source of information and support for all patients and families with FSHD; to act as a driving force in the development of research directed toward treatment and a cure for FSHD; and to act to bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities.

For more information, visit http://www.fshsociety.org and follow us on Facebook at facebook.com/FSHSociety.

Read the full story at http://www.prweb.com/releases/2017/08/prweb14618605.htm.


'/>"/>
Source: PRWeb
Copyright©2017 Vocus, Inc.
All rights reserved


Related medicine news :

1. Women’s Dermatologic Society to Offer Skin Cancer Screenings
2. Women’s Dermatologic Society to Offer Skin Cancer Screenings
3. Duncan Insurance Agency Takes Action to Protect Animals with Fundraiser for Kalamazoo Humane Society
4. Maria Sophocles, MD, Princeton-Based Gynecologist, Selected to Present at International Society for Study of Vulvovaginal Disease World Congress in Argentina
5. The Pennsylvania Athletic Trainers’ Society Announces Corporate Sponsorship with Go4Ellis
6. The Honor Society of Nursing, Sigma Theta Tau International Releases the Global Advisory Panel on the Future of Nursing & Midwifery (GAPFON) 2014-17 Report
7. The Leukemia & Lymphoma Society and PlatformQ Health Present Virtual Education Event for Cancer Patients with Acute Myeloid Leukemia (AML)
8. The American Society of Pain Educators (ASPE) will present its 12th Annual Pain Educators Forum at the PAINWeek National Conference in Las Vegas
9. The American Headache Society (AHS) Returns to the PAINWeek National Conference in Las Vegas
10. The Pennsylvania Athletic Trainers’ Society (PATS) Holds Its Annual Meeting and Clinical Symposium in Erie, PA
11. Fenway Health's Dr. Kenneth Mayer Appointed New Editor-In-Chief Of the Journal of the International AIDS Society
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/5/2018)... ... December 05, 2018 , ... ... causes of this condition are poorly understood. It manifests on the face, especially ... threatening condition, it can cause enormous social and psychological problems. , Although it ...
(Date:12/5/2018)... ... 05, 2018 , ... Dr. Jessica Allen of Northern Colorado Periodontics is pleased ... dental implants in the Fort Collins area. Dr. Allen joins an elite class of ... and tissues lost to gum disease. , "Gum disease is a problem that many ...
(Date:12/5/2018)... ... 2018 , ... You can now experience two cutting edge Oregon brands at ... powerhouse in the cannabis industry with several brands including Sticks and ... award winning , botanical terpene company that focuses on using terpenes from non-cannabis ...
(Date:12/5/2018)... ... December 05, 2018 , ... ... theme of Unitek’s transformative conference at the DoubleTree Hilton Hotel in Newark, California. ... Distinguished Professor and Founder/Director of Watson Caring Science Institute, participants and esteemed guests ...
(Date:11/29/2018)... YORK (PRWEB) , ... November 29, 2018 , ... ... bold mission to alleviate and treat chronic pain without opiates. This new and ... treatments to reduce or eliminate chronic pain for both children and adults. ...
Breaking Medicine News(10 mins):
(Date:12/6/2018)... ... December 06, 2018 , ... Today, the ... answers for the millions of Americans and people worldwide who suffer first-hand with ... the renowned Alternative to Meds Center utilizes the tenets of neurochemistry in assessing ...
(Date:12/5/2018)... ... ... Trivellini Tech announces the latest version of Trivellini system and it ... Nano, Trivellini Long Hair introduces the ability to harvest long hair grafts during FUE ... capabilities as the last generation but it can also be programmed to extract long ...
(Date:12/5/2018)... ... 04, 2018 , ... Florida Hospital West Florida Division has ... the prestigious Leapfrog Group, a national nonprofit health care ratings organization, announced the ... Center Sebring, Florida Hospital Wesley Chapel and Florida Hospital Zephyrhills all received the ...
Breaking Medicine Technology: