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Experts discuss ways to embed patient voices and values in clinical research
Date:4/30/2013

tial researcher conflict of interest to the human research participant, to the relative exclusion of other equally important or potentially more important components of the research approval process."

Koenig also questions whether explaining the social value of a clinical trial to research participants is the answer. "Although I share Yarborough's desire to make certain that the social utility of research is highlighted ... his disclosure-based reform assumes that individual patients, confronted by information and data, will 'just say no' to research that lacks social value, in the same way they might seek to minimize personal risk," she says.

Koenig believes that a renewed focus on promoting and enabling authentic ethical reflection as well as a new pathway for embedding patient values and voices into the practice of research is needed. "We cannot simply ask individual patients, unaided, to weigh risk levels and evaluate projects by themselves."


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Contact: Rachael Zaleski
mcpmedia@elsevier.com
215-239-3658
Elsevier Health Sciences
Source:Eurekalert

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