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Event Gathers World-Renowned Researchers and Community Leaders to Find a Cure for Rare Disease, Friedreich’s Ataxia
Date:9/2/2014

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On September 6, the FARA Energy Ball, chaired by Tampa Bay Lightning CEO, Tod Leiweke and his wife Tara Leiweke, will take place at the A La Carte Event Pavilion. ABC Action News anchor, Wendy Ryan will Emcee the event. A live auction, featuring exclusive getaways, will follow cocktails and dinner, and guests will be treated to a high energy performance from The Spazmatics. Last year, FARA dedicated over $3 million towards drug discovery, development and clinical research worldwide, due in large part to funds raised at the FARA Energy Ball of 2013.

“Acting alone, there is very little any of us can accomplish,” says Bartek. “Acting together, there is very little we will not accomplish!”

SCIENTIFIC SYMPOSIUM: The free event is being hosted at the University of South Florida (USF) Health’s Center for Advanced Medical Learning and Simulation (CAMLS). For more information and to watch a live broadcast, visit http://www.curefa.org/energyball/sep4.html.

FARA ENERGY BALL:For more information about the FARA Energy Ball or participate in the auction, please visit http://www.curefa.org/energyball/sep6.html.

About Friedreich’s Ataxia Research Alliance

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501©(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of inform
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