Navigation Links
Europe's biobanks need urgent coordination -- scientists say
Date:5/27/2008

Leading European scientists say that there is an urgent need for greater coordination and harmonisation between Europes biobanks repositories of genetic and other information from large numbers of people that can be used to investigate complex diseases such as cancer and Alzheimers. To enable this, there should also be closer coordination amongst funding agencies and between regulatory authorities, as well as increased and sustained funding for biobanks. This will optimise the development of a harmonised legal and ethical framework for their operation, researchers say.

The proposals are contained in a science policy briefing* published today by the European Science Foundation. The report was produced by a group of top experts in the field, chaired by Professor Gertjan van Ommen of Leiden University Medical Center in The Netherlands and Professor Frank Skorpen of the Norwegian University of Science and Technology in Trondheim, Norway.

The report says that the study of complex diseases requires comparisons between large numbers of people, and for this reason data on peoples health and lifestyles gathered from surveys together with information contained in biobanks have become indispensable. While Europe has many large and well-organised biobanks, valuable and irreplaceable national collections typically suffer from under-utilisation due to fragmentation of the European biobanking research community.

Furthermore, legal, ethical and social differences between nation states can often impede promising international initiatives. For Europe to stay at the forefront and to take full advantage of the huge research potential in its human biobanks, there is an urgent need for coordination and harmonisation of the biobanking and biomolecular resource infrastructure, the report says, adding, practical regulatory formats have become unnecessarily diverse due to the multitude of independent national legislative processes in the member states. This seriously hampers progress in a major field where Europe is otherwise poised to take a leading role.

The policy briefing says that lack of sustained funding is a general problem for the maintenance and operation of central resources in the life sciences and that this applies particularly to biobanks, which are expensive to set up and maintain. We need to develop a consolidated long-term funding framework for these invaluable resources, a framework that includes national and European funding schemes, healthcare systems, academic users and industrial parties.

The overall goal, the report says, should be for a pan-European biobanking infrastructure that is sustainably funded and that works within a legal, ethical and social framework that encourages the exchange of research and data between countries.

The report recommends that a strategic working group be set up to initiate the moves that will ultimately achieve this goal.


'/>"/>

Contact: Gertjan van Ommen
gjvo@lumc.nl
31-715-269-400
European Science Foundation
Source:Eurekalert

Related medicine news :

1. Health IT Now! Coalition to Discuss the Urgent Need to Pass Health IT Legislation
2. Americans consider global warming an urgent threat, according to poll
3. URGENT Thoratec Corporation Worldwide Recall of Implantable Ventricular Assist Device
4. Philip Morris International Spin-off Should Spur Nations to Take Urgent Action to Reduce Tobacco Use
5. Landmark WHO Report on Global Tobacco Epidemic Should Spur Urgent Action by Nations to Implement Proven Solutions
6. Studies on Urgent(R) PC to be Presented at the 2008 Society of Urologic Nurses and Associates Annual Symposium
7. Charlotte IVF Experts Issue Urgent Call for Egg Donors, Eye New Recruiting Tools
8. Uroplasty, Inc. Reports Presentations of Urgent(R) PC Studies at the 2008 Society of Urologic Nurses and Associates Annual Symposium
9. New MedPAC Report: Abbreviated Biogenerics Pathway Urgently Needed
10. Urgent Action Needed to Stem Rise in Health Care Costs
11. Aid Urgently Needed in Myanmar (Burma): Lutheran World Relief Responds
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... ... October 13, 2017 , ... Dickinson ... offers insurance and financial preparation services, is providing an update on a charitable ... , Rock City Rescue is a locally recognized nonprofit that provides shelter and ...
(Date:10/13/2017)... Nevada (PRWEB) , ... October 13, 2017 , ... ... Hemp CBD Oil utilizing Purzorb™ technology. Applying the Purzorb™process to full spectrum CBD oil ... required and providing a CBD form that can be easily incorporated into liquid products, ...
(Date:10/13/2017)... , ... October 13, 2017 , ... The Visiting Nurse ... Market. Featuring a collection of specialty vendors and unique items from across the nation, ... quality-focused health and wellness services offered by the VNA. The boutique will be ...
(Date:10/13/2017)... ... October 13, 2017 , ... Coveros, a leader in agile ... a contract by the Center for Medicare and Medicaid Services (CMS). The Enterprise ... use of Agile methodologies in a consistent and high value manner across CMS ...
(Date:10/12/2017)... ... October 12, 2017 , ... Planet Fitness, one of the largest and fastest ... to open a flagship location in Covington, LA at 401 N. U.S. Highway 190, ... next to Office Depot in the Holiday Square shopping center. Its location allows it ...
Breaking Medicine News(10 mins):
(Date:10/10/2017)... , Oct. 10, 2017   West Pharmaceutical Services, ... solutions for injectable drug administration, today shared the results ... Adapter for improving the intradermal administration of polio vaccines. ... Vaccination Summit in May 2017 by Dr. Ondrej ... Department, World Health Organization (WHO), and recently published in ...
(Date:10/4/2017)... , Oct. 4, 2017 ... single-use, self-contained, illuminating medical devices, today announced regulatory ... Health Surveillance Agency (or Agência Nacional de Vigilância ... first single-use, cordless surgical retractor with integrated LED ... optimal access, illumination and exposure of a tissue ...
(Date:10/2/2017)... The Rebound mobile app is poised to become a vital ... prescription drug addiction. The app empowers users to develop an ... their dosage in a safe, controlled manner while maximizing well-being. ... 100,000 people to sign up will enjoy 3 months of ... ...
Breaking Medicine Technology: