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Don't just save her life, save her fertility
Date:9/6/2007

and Patients

Another goal of the grant is educating young female cancer patients, families and their physicians about cancer and infertility. Daniel Edelson, associate professor of education and social policy-learning sciences, and Kemi Jona, research associate professor of learning sciences and computer science, will lead a project to develop interactive programs and resources that provide patients and physicians with the most up-to-date information about fertility risks and treatment choices. "We want to provide young cancer patients and their families the information and support they need to understand the impact of cancer treatments on fertility and the options they now have for preserving their fertility, said Jona. The patient website will be accessible 24/7 to provide a wealth of information as well as help families connect with survivors for support as they go through this difficult time."

Their educational efforts will draw on social science projects that are also part of the grant, which will include studies looking at doctor-patient communication patterns, medical-decision making, and the psychosocial consequences of infertility:

  • The Patient-Parent-Partner Education and Support Network will be a web site for patients and their families to learn about fertility challenges in the face of a cancer diagnosis. The web site also will connect patients and their families with a network of cancer survivors to provide support and guidance during the difficult period immediately following a cancer diagnosis.
  • The Oncofertility Professional Education Network will provide oncofertility fellows and physicians with e-learning modules on fertility preservation and access to emerging results of the consortium's interdisciplinary research effort.
  • The Oncofertility Saturday Academy will be an ongoing class for middle-school girls that will expose them to scientific research, laboratory and health care experiences to encou
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Contact: Marla Paul
Marla-Paul@northwestern.edu
312-503-8928
Northwestern University
Source:Eurekalert

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