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Dayton Area Cancer Patient Travels to Capitol Hill to Push for Better Health Care Access and Care Coordination
Date:6/17/2013

(PRWEB) June 17, 2013

One local family is taking their story to Capitol Hill to deliver an important message to their members of Congress: at a time when access to care is improving for millions of adults, don’t let care for children falter.

As scientific advances have made it more feasible for children to survive serious conditions, a growing number of children and their families face the realities of managing very complex medical conditions. Colin Beach, 13, has bilateral hereditary retinoblastoma, a rare condition in which malignant tumors develop in the eye. He and his family will meet with members of Congress to share their personal experiences in coordinating multiple doctors, therapists and hospitals.

The family’s visit with their members of Congress will coincide with the release of a special report that looks at a growing sub-population among children: the medically complex. Nationally, of the 32 million children who rely on Medicaid, an estimated 6 percent of those children have complex medical conditions and account for 45 percent of all Medicaid spending on children.    

“As much as we hope every child is healthy, it is the tough reality that kids get sick or injured and need specialized care. Kids need and deserve experts, technology, medicine and care designed specifically to meet their needs,” say Vicki Giambrone, vice president for strategic partnerships at Dayton Children’s. “The research is clear, having access to pediatric experts improves outcomes for kids and we believe every child deserves access to that kind of care.”

The Beach family knows well the critical impact that access to specialized pediatric care has had for Colin, and the importance of ensuring access for all families by protecting and modernizing Medicaid. At five months o
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