Navigation Links
Cystic Fibrosis Worldwide Launches a New Campaign to Reach Thousands Who Suffer from CF
Date:12/26/2009

Cystic Fibrosis Worldwide (CFW) has launched a 5 year campaign to raise funds internationally to assist people living with cystic fibrosis in developing countries. The 5 for 5 Campaign is a unique opportunity for everyone to help support children born with this life threatening disease with less than 5 minutes of their time and 5 US dollars. The CF Worldwide goal is to have 50,000 members join the campaign and raise 1,250,000 US dollars over a period of 5 years. The campaign has a comical character by the name of Earl the Earth man as a mascot offering people a chance to share a laugh and join the campaign at www.cfww.org.

Worcester, MA (PRWEB) December 26, 2009 -- CFW is an international, nonprofit organization working to promote access to appropriate care and education to people affected by cystic fibrosis (CF). Their work in developing countries focuses on spreading education and awareness, lobbying for access to medication and developing CF Centers and CF patient organizations. The long term goals of CFW are to improve quality of life and life expectancy for children who are now dying in early childhood with CF globally.

Cystic Fibrosis is a life threatening genetic disease that is known to effect 1 in 2500 children in the West. It causes the body to produce thick sticky mucus that clogs the lungs and major organs such as the Pancreas. There is no cure for CF and life expectancy in the West is now 40 and higher. Lung transplants and gene therapy show promising improvements along with many new medications and therapies. In recent years, CF was thought to only exist in Caucasian populations but through epidemiology studies, migration and the spread of awareness, CF is continuously being identified in Arab, South Asian and Asian populations. In Eastern Europe and Latin America CF has been identified with similar frequency as North America and Europe but is often misdiagnosed due to the symptoms found in children living in poverty such as malnutrition, frequent lung infections and below normal growth rates.

The 5 for 5 Campaign will support programs such as developing a CF Center in the Palestinian Red Crescent Hospital, hosting the 1st Middle East Regional CF Conference, supporting the Spanish Lay conference at the European CF Conference 2010 and delivering much needed equipment and supplies to patients in Gaza and El Salvador. In future CFW will look to continue to expand clinic development in Macedonia, Jordan, India and Oman. Thousands of patients suffering with CF depend on the vital work of CF Worldwide and the international community can easily support these programs by joining the 5 for 5 Campaign, donating 5 USD annually for the next 5 years and inviting 5 friends to join the campaign.
Terry Stewart, CEO of CF Australia recently said “This is a unique campaign that requires little financial commitment from donors but can lead to a substantial amount of support for children with CF in developing countries.”

Each year millions of dollars in the West are spent in search of a cure, to develop new and better therapies and to continue to extend the lives of patients and improve their quality of life. Sadly, in many parts of the world, thousands of patients will never benefit from these advancements and continue to die young and suffering. “Many CF patients and families struggle desperately for access to pancreatic enzymes daily with the knowledge that better care and medication is available outside their country” cited Christine Noke, CF Worldwide Executive Director. CF Worldwide and the 5 for 5 Campaign will bring hope and relief to thousands of patients around the world. Join the campaign by visiting www.cfww.org.

###

Read the full story at http://www.prweb.com/releases/2009/12/prweb3383474.htm.


'/>"/>
Source: PRWeb
Copyright©2009 Vocus, Inc.
All rights reserved  

Related medicine news :

1. Wider Adult Screening May Mean Fewer Children With Cystic Fibrosis
2. Penn study finds that antioxidant found in vegetables has implications for treating cystic fibrosis
3. New clinical guidelines for exacerbations in cystic fibrosis
4. Cystic Fibrosis Foundation Names Greenberg Traurig Attorney D. Porpoise Evans Among the 40 Under 40 Outstanding Lawyers of Miami-Dade County
5. Cystic Fibrosis Patient Emily Schaller Begins 2,000-Mile Quest to Get on The Ellen DeGeneres Show
6. SEQUENOM Announces Launch of SensiGene Cystic Fibrosis Carrier Screening Test
7. University of Arizona researchers seek safer cystic fibrosis test
8. Gene Linked to Liver Disease in Cystic Fibrosis
9. Cystic Fibrosis Foundation Receives Second 4-Star Rating from Charity Navigator for Exceptional Fiscal Management
10. Acupuncture, Exercise May Ease Polycystic Ovarian Syndrome
11. All Fifty States to Screen Newborns for Cystic Fibrosis by 2010
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Cystic Fibrosis Worldwide Launches a New Campaign to Reach Thousands Who Suffer from CF 
(Date:5/24/2016)... Denver, CO (PRWEB) , ... May 24, 2016 ... ... Labels is celebrating its 14th anniversary and has kicked off its 5th Annual ... participated in this highly anticipated annual event. This year's prizes include a GoPro ...
(Date:5/23/2016)... Austin, TX (PRWEB) , ... May 23, 2016 , ... ... in the 2016 directory of America's Best Physicians. The annual roster is put out ... exceptional credentials and a demonstrated commitment to outstanding care are considered for this award. ...
(Date:5/23/2016)... ... May 23, 2016 , ... Researchers can find themselves in a state of ... at this technique may yield big benefits. Scientists might be surprised to learn how ... cell culture laboratory—and lessen the risk of contamination when working with eukaryotic cells. , ...
(Date:5/23/2016)... ... May 23, 2016 , ... In ... Association (TVMA) reminds pet owners that intervening at the first sign of their ... a pet’s normal body mechanisms cannot keep the body’s temperature within a safe ...
(Date:5/23/2016)... ... May 23, 2016 , ... The Society for Women’s Health Research (SWHR) ... on from that role. , “No one in Washington led the way to advance ... Founder Florence Haseltine, MD, PhD. “We offer our deep gratitude to Phyllis for her ...
Breaking Medicine News(10 mins):
(Date:5/22/2016)... , May 23, 2016 ... develop its anti-fibrotic and anti-inflammatory compound DS102 in ... as in non-alcoholic steatohepatitis (NASH) patients. ... significantly sequestered in lung tissue and has bronchodilatory, ... after oral administration. The Company will publish further ...
(Date:5/20/2016)... May 20, 2016 - ... Technologies, Insulins, Growth Hormones, Recombinant Coagulation Factors and ... - This New Study Reveals Selling Opportunities and ... ,What is the future of biologics, ... technological and commercial analysis. Staying ahead in data ...
(Date:5/19/2016)... 19, 2016  According to the World Health ... lacks basic diagnostic imaging. Whereas mammography or X-ray ... United States , many places around the ... fact, the WHO reports that those approximately 4 ... treatable death, simply due to the unavailability of ...
Breaking Medicine Technology: