Navigation Links
Cystic Fibrosis Worldwide Launches a New Campaign to Reach Thousands Who Suffer from CF
Date:12/26/2009

Cystic Fibrosis Worldwide (CFW) has launched a 5 year campaign to raise funds internationally to assist people living with cystic fibrosis in developing countries. The 5 for 5 Campaign is a unique opportunity for everyone to help support children born with this life threatening disease with less than 5 minutes of their time and 5 US dollars. The CF Worldwide goal is to have 50,000 members join the campaign and raise 1,250,000 US dollars over a period of 5 years. The campaign has a comical character by the name of Earl the Earth man as a mascot offering people a chance to share a laugh and join the campaign at www.cfww.org.

Worcester, MA (PRWEB) December 26, 2009 -- CFW is an international, nonprofit organization working to promote access to appropriate care and education to people affected by cystic fibrosis (CF). Their work in developing countries focuses on spreading education and awareness, lobbying for access to medication and developing CF Centers and CF patient organizations. The long term goals of CFW are to improve quality of life and life expectancy for children who are now dying in early childhood with CF globally.

Cystic Fibrosis is a life threatening genetic disease that is known to effect 1 in 2500 children in the West. It causes the body to produce thick sticky mucus that clogs the lungs and major organs such as the Pancreas. There is no cure for CF and life expectancy in the West is now 40 and higher. Lung transplants and gene therapy show promising improvements along with many new medications and therapies. In recent years, CF was thought to only exist in Caucasian populations but through epidemiology studies, migration and the spread of awareness, CF is continuously being identified in Arab, South Asian and Asian populations. In Eastern Europe and Latin America CF has been identified with similar frequency as North America and Europe but is often misdiagnosed due to the symptoms found in children living in poverty such as malnutrition, frequent lung infections and below normal growth rates.

The 5 for 5 Campaign will support programs such as developing a CF Center in the Palestinian Red Crescent Hospital, hosting the 1st Middle East Regional CF Conference, supporting the Spanish Lay conference at the European CF Conference 2010 and delivering much needed equipment and supplies to patients in Gaza and El Salvador. In future CFW will look to continue to expand clinic development in Macedonia, Jordan, India and Oman. Thousands of patients suffering with CF depend on the vital work of CF Worldwide and the international community can easily support these programs by joining the 5 for 5 Campaign, donating 5 USD annually for the next 5 years and inviting 5 friends to join the campaign.
Terry Stewart, CEO of CF Australia recently said “This is a unique campaign that requires little financial commitment from donors but can lead to a substantial amount of support for children with CF in developing countries.”

Each year millions of dollars in the West are spent in search of a cure, to develop new and better therapies and to continue to extend the lives of patients and improve their quality of life. Sadly, in many parts of the world, thousands of patients will never benefit from these advancements and continue to die young and suffering. “Many CF patients and families struggle desperately for access to pancreatic enzymes daily with the knowledge that better care and medication is available outside their country” cited Christine Noke, CF Worldwide Executive Director. CF Worldwide and the 5 for 5 Campaign will bring hope and relief to thousands of patients around the world. Join the campaign by visiting www.cfww.org.

###

Read the full story at http://www.prweb.com/releases/2009/12/prweb3383474.htm.


'/>"/>
Source: PRWeb
Copyright©2009 Vocus, Inc.
All rights reserved  

Related medicine news :

1. Wider Adult Screening May Mean Fewer Children With Cystic Fibrosis
2. Penn study finds that antioxidant found in vegetables has implications for treating cystic fibrosis
3. New clinical guidelines for exacerbations in cystic fibrosis
4. Cystic Fibrosis Foundation Names Greenberg Traurig Attorney D. Porpoise Evans Among the 40 Under 40 Outstanding Lawyers of Miami-Dade County
5. Cystic Fibrosis Patient Emily Schaller Begins 2,000-Mile Quest to Get on The Ellen DeGeneres Show
6. SEQUENOM Announces Launch of SensiGene Cystic Fibrosis Carrier Screening Test
7. University of Arizona researchers seek safer cystic fibrosis test
8. Gene Linked to Liver Disease in Cystic Fibrosis
9. Cystic Fibrosis Foundation Receives Second 4-Star Rating from Charity Navigator for Exceptional Fiscal Management
10. Acupuncture, Exercise May Ease Polycystic Ovarian Syndrome
11. All Fifty States to Screen Newborns for Cystic Fibrosis by 2010
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Cystic Fibrosis Worldwide Launches a New Campaign to Reach Thousands Who Suffer from CF 
(Date:10/13/2017)... ... October 13, 2017 , ... ProVest Insurance Group, a family ... and Raleigh regions, is organizing an extended charity drive to benefit the family ... abnormality. , After struggling since birth with several health challenges, T.J. was later ...
(Date:10/13/2017)... ... October 13, 2017 , ... The International Association ... standards of excellence for the field of eating disorders, announces the opening of ... 2018 in Orlando, Florida at the Omni Resort at ChampionsGate. , ...
(Date:10/13/2017)... ... , ... Many families have long-term insurance that covers care for a family ... for care if the client has a cognitive impairment diagnosis. , “What this ... often waived, so the benefits from their insurance start immediately,” said Mechell Vieira, owner ...
(Date:10/13/2017)... ... October 13, 2017 , ... ... viewers the lowdown on sciatica in a new episode of "Success Files," which ... current events and innovation and investigates each subject in-depth with passion and integrity. ...
(Date:10/12/2017)... ... October 12, 2017 , ... CitiDent and ... apnea using cutting-edge Oventus O2Vent technology. As many as 18 million Americans ... frequent cessation in breathing. Oral appliances can offer significant relief to about 75 ...
Breaking Medicine News(10 mins):
(Date:10/5/2017)... , Oct. 5, 2017  In response to ... Oral and Maxillofacial Surgeons (AAOMS) released prescribing recommendations ... to be used as a first-line therapy to ... Recognizing the value ... White Paper "Opioid Prescribing: Acute and Postoperative Pain ...
(Date:10/4/2017)... 4, 2017 OBP Medical , ... medical devices, today announced regulatory approval from ... (or Agência Nacional de Vigilância Sanitária (ANVISA)) to ... surgical retractor with integrated LED light source and ... and exposure of a tissue pocket or cavity ...
(Date:10/2/2017)... ORLANDO, Fla. , Oct. 2, 2017  AllianceRx ... services company formed by Walgreens and pharmacy benefit manager ... of its new brand, which included the unveiling of ... Fla. , as well as at a few ... introduces the new brand to patients, some of whom ...
Breaking Medicine Technology: