"I am delighted, and deeply impressed, by the progress and courage of the CF Foundation. This organization is an important model for many others engaged in quality improvement," said Donald Berwick, M.D., president and CEO of the Institute for Healthcare Improvement, an independent not-for-profit organization helping to lead the improvement of health care throughout the world.
The data provided online comes from the CF Foundation's Patient Registry, a database of health-related information from 24,000 people with CF who have agreed to have their data entered for research and quality improvement purposes.
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| Contact: Laurie Fink lfink@cff.org 301-841-2602 Cystic Fibrosis Foundation Source:Eurekalert |