Navigation Links
Cystic Fibrosis Foundation reports upward trend for key health outcomes
Date:1/28/2008

(Bethesda, MD) -- The Cystic Fibrosis Foundation reported today that key indicators of health for people with cystic fibrosis -- including lung function and nutritional status -- are rising nationwide across its accredited care center network.

In fact, the outlook for people with CF continues to improve steadily each year -- and this progress is accelerating due to quality improvement programs spearheaded by the CF Foundation. The National Institutes of Health has recognized the Foundation's care center network as a model for delivering care for a chronic disease.

"Across the country, we are seeing great care for cystic fibrosis get even better," said Bruce C. Marshall, M.D., vice president of clinical affairs for the CF Foundation, who leads the quality improvement initiative.

The new data is posted on the CF Foundation's Web site (www.cff.org) under "Care Center Network." It includes four measures vital for the health of people with CF: lung function, nutritional status (body mass index), screening for CF-related diabetes, and adherence to recommended outpatient clinic visits and tests.

In December 2006, the CF Foundation was one of the first organizations of its kind to publicly release health outcomes data in an effort to accelerate the rate of improvement in care. Going forward, data will be updated annually, allowing people with CF to track progress at their individual care centers.

"It's rewarding to see our investments in quality improvement yielding results, and at the same time, complementing our intensive efforts to develop new therapies to raise the bar even higher," said Robert J. Beall, Ph.D., president and CEO of the CF Foundation.

The 2006 data shows gains across the board. Highlights include:

  • Significant improvement in the nutritional status of children, ranked by body mass index (BMI). In fact, median BMI rose from the 38th percentile to the 46th percentile between 1999 and 2006 V bringing these children to nearly normal growth levels.

  • Enhanced improvement in lung function for adults and children between 1999 and 2006. Improved lung function leads to added years of life.

  • Median predicted age of survival has doubled in the last 25 years. It rose eight years between 1999 and 2006 -- from age 29 to age 37.

"I am delighted, and deeply impressed, by the progress and courage of the CF Foundation. This organization is an important model for many others engaged in quality improvement," said Donald Berwick, M.D., president and CEO of the Institute for Healthcare Improvement, an independent not-for-profit organization helping to lead the improvement of health care throughout the world.

The data provided online comes from the CF Foundation's Patient Registry, a database of health-related information from 24,000 people with CF who have agreed to have their data entered for research and quality improvement purposes.


'/>"/>

Contact: Laurie Fink
lfink@cff.org
301-841-2602
Cystic Fibrosis Foundation
Source:Eurekalert

Related medicine news :

1. Montana Passes Newborn Screening Law for Cystic Fibrosis
2. Ibuprofen Preserves Lung Function in Kids With Cystic Fibrosis
3. Ibuprofen associated with slower lung function decline in children with cystic fibrosis
4. Lung Transplants May Not Help Most Cystic Fibrosis Children
5. Experts Release New Cystic Fibrosis Guidelines
6. Cystic Fibrosis foundation lays out new treatment guidelines
7. Cystic Fibrosis Foundation Named Charitable Organization of the Year by USA Track & Field
8. AMRI and Cystic Fibrosis Foundation Launch Major Research Collaboration
9. Anaheim to Host Worlds Largest Cystic Fibrosis Medical Meeting
10. Ibuprofen can slow lung disease in children with cystic fibrosis, Canadian study shows
11. MRI techniques evolving towards better assessment of liver fibrosis
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... TX (PRWEB) , ... June 25, 2016 , ... Austin ... of the American College of Mohs Surgery and to Dr. Russell Peckham for medical ... and highly effective treatment for skin cancer. The selective fellowship in Mohs Micrographic Surgery ...
(Date:6/25/2016)... ... June 25, 2016 , ... ... recover from injury. Recently, he has implemented orthobiologic procedures as a method for ... is one of the first doctors to perform the treatment. Orthobiologics are substances ...
(Date:6/24/2016)... ... June 24, 2016 , ... June 19, 2016 is World Sickle ... chronic pain and the benefits of holistic treatments, Serenity Recovery Center of ... Sickle Cell Disease. , Sickle Cell Disease (SCD) is a disorder of the red ...
(Date:6/24/2016)... CA (PRWEB) , ... June 24, 2016 , ... Comfort ... the American Cancer Society and the Road To Recovery® program to drive cancer patients ... seniors and other adults to ensure the highest quality of life and ongoing independence. ...
(Date:6/24/2016)... ... June 24, 2016 , ... ... Grove Investment Group (TGIG), has initiated cultivation and processing operations at its production ... and Pahrump, Nevada. , Puradigm is the manufacturer of a complete system of ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... DUBLIN , June 23, 2016 ... the "Pharmaceutical Excipients Market by Type (Organic Chemical ... Preservative), Formulation (Oral, Topical, Coating, Parenteral) - Global Forecast ... The global pharmaceutical excipients ... 2021 at a CAGR of 6.1% in the forecast ...
(Date:6/23/2016)... INDIANAPOLIS , June 23, 2016 Roche ... received 510(k) clearance for its Elecsys BRAHMS PCT (procalcitonin) ... severe sepsis or septic shock. With this clearance, Roche ... provide a fully integrated solution for sepsis risk assessment ... associated with bacterial infection and PCT levels in blood ...
(Date:6/23/2016)... 23, 2016 Capricor Therapeutics, ... a biotechnology company focused on the discovery, development ... patient enrollment in its ongoing randomized HOPE-Duchenne clinical ... 50% of its 24-patient target. Capricor expects the ... quarter of 2016, and to report top line ...
Breaking Medicine Technology: