Navigation Links
Cystic Fibrosis Foundation reports upward trend for key health outcomes
Date:1/28/2008

(Bethesda, MD) -- The Cystic Fibrosis Foundation reported today that key indicators of health for people with cystic fibrosis -- including lung function and nutritional status -- are rising nationwide across its accredited care center network.

In fact, the outlook for people with CF continues to improve steadily each year -- and this progress is accelerating due to quality improvement programs spearheaded by the CF Foundation. The National Institutes of Health has recognized the Foundation's care center network as a model for delivering care for a chronic disease.

"Across the country, we are seeing great care for cystic fibrosis get even better," said Bruce C. Marshall, M.D., vice president of clinical affairs for the CF Foundation, who leads the quality improvement initiative.

The new data is posted on the CF Foundation's Web site (www.cff.org) under "Care Center Network." It includes four measures vital for the health of people with CF: lung function, nutritional status (body mass index), screening for CF-related diabetes, and adherence to recommended outpatient clinic visits and tests.

In December 2006, the CF Foundation was one of the first organizations of its kind to publicly release health outcomes data in an effort to accelerate the rate of improvement in care. Going forward, data will be updated annually, allowing people with CF to track progress at their individual care centers.

"It's rewarding to see our investments in quality improvement yielding results, and at the same time, complementing our intensive efforts to develop new therapies to raise the bar even higher," said Robert J. Beall, Ph.D., president and CEO of the CF Foundation.

The 2006 data shows gains across the board. Highlights include:

  • Significant improvement in the nutritional status of children, ranked by body mass index (BMI). In fact, median BMI rose from the 38th percentile to the 46th percentile between 1999 and 2006 V bringing these children to nearly normal growth levels.

  • Enhanced improvement in lung function for adults and children between 1999 and 2006. Improved lung function leads to added years of life.

  • Median predicted age of survival has doubled in the last 25 years. It rose eight years between 1999 and 2006 -- from age 29 to age 37.

"I am delighted, and deeply impressed, by the progress and courage of the CF Foundation. This organization is an important model for many others engaged in quality improvement," said Donald Berwick, M.D., president and CEO of the Institute for Healthcare Improvement, an independent not-for-profit organization helping to lead the improvement of health care throughout the world.

The data provided online comes from the CF Foundation's Patient Registry, a database of health-related information from 24,000 people with CF who have agreed to have their data entered for research and quality improvement purposes.


'/>"/>

Contact: Laurie Fink
lfink@cff.org
301-841-2602
Cystic Fibrosis Foundation
Source:Eurekalert

Related medicine news :

1. Montana Passes Newborn Screening Law for Cystic Fibrosis
2. Ibuprofen Preserves Lung Function in Kids With Cystic Fibrosis
3. Ibuprofen associated with slower lung function decline in children with cystic fibrosis
4. Lung Transplants May Not Help Most Cystic Fibrosis Children
5. Experts Release New Cystic Fibrosis Guidelines
6. Cystic Fibrosis foundation lays out new treatment guidelines
7. Cystic Fibrosis Foundation Named Charitable Organization of the Year by USA Track & Field
8. AMRI and Cystic Fibrosis Foundation Launch Major Research Collaboration
9. Anaheim to Host Worlds Largest Cystic Fibrosis Medical Meeting
10. Ibuprofen can slow lung disease in children with cystic fibrosis, Canadian study shows
11. MRI techniques evolving towards better assessment of liver fibrosis
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/12/2016)... ... February 12, 2016 , ... Young Asset Protection, a ... beginning of the latest charity campaign in their community enrichment program. Art Expression ... this worthy cause are currently being accepted at: http://artexpressioninc.org/ . , Art ...
(Date:2/12/2016)... (PRWEB) , ... February 12, 2016 , ... ... southwest Houston and surrounding communities by continuing it’s commitment to act as Agents ... Promise. The organization works closely with area homeless families to fulfill immediate needs ...
(Date:2/12/2016)... ... February 12, 2016 , ... ... world of exterior design possibilities. CertainTeed, North America’s leading brand of building products, ... the product offerings showcased in the mobile version of the ColorView® Exterior Style ...
(Date:2/12/2016)... ... 12, 2016 , ... The Central Coast Autism Spectrum Center (CCASC) invites teens ages 11-18 to ... of fun for teens with and without special needs to gather in a safe and ... event. The dance will take place on Saturday, Feb. 13 from 7 to 9:30 p.m. ...
(Date:2/12/2016)... (PRWEB) , ... February 12, 2016 , ... Planet ... Studios. The new cartoon style themes are great for showcasing pictures, videos as well ... scene generators, titles like introductions, lower thirds, transitions and a beautiful frame overlay. Pixel ...
Breaking Medicine News(10 mins):
(Date:2/12/2016)... Ga. , Feb. 12 2016  OMS Supply, ... dental and medical practitioners, announced today the recent launching ... offers visitors a variety of features that enhance the ... oral surgery supplies. --> ... is a fairly new company that started in early ...
(Date:2/11/2016)... , Feb. 11, 2016 ... Diagnostics in Personalized Medicine and Cancer Therapy. - ... High-Growth Diagnostic Testing Markets. - Key Diagnostic Testing ... - Molecular Diagnostics in Genetic Testing. - Molecular ... Markets. - Over-the-Counter Diagnostic Products World Markets. ...
(Date:2/11/2016)... 11, 2016  Kindred Biosciences, Inc. (NASDAQ: KIN ... the lives of pets, today announced the submission to ... Animal Drug Application (NADA) for Zimeta™ (dipyrone injection, KIND-012).  ... of Zimeta for the control of pyrexia (fever) in ... --> --> The Chemistry, Manufacturing, ...
Breaking Medicine Technology: