Navigation Links
Cystic Fibrosis Foundation Establishes Landmark Patient Assistance Foundation
Date:11/13/2008

Organization offsets rising drug costs with funding from pharmaceutical manufacturers

BETHESDA, Md., Nov. 13 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation today announced the launch of a Cystic Fibrosis Patient Assistance Foundation, a nonprofit subsidiary that will help patients pay for certain high-cost medications they cannot afford.

All funds to support patients will be provided exclusively by pharmaceutical manufacturers. No dollars donated to the CF Foundation will be used for patient assistance. CF Foundation donations will continue to support research for a cure.

"Treatment costs are escalating beyond many cystic fibrosis patients' ability to pay," said Robert J. Beall, Ph.D., President and CEO of the Foundation. "Thanks to remarkable advances in research and care, people with CF are living into their 40s, 50s and beyond. Our challenge now is to make sure people can afford the advanced treatments we are working so hard to develop."

The Cystic Fibrosis Patient Assistance Foundation is a first-of-its kind service dedicated solely for people with CF. It will help patients pay for essential, FDA-approved therapies for the treatment of lung disease. For information on the program, go to http://www.cfpaf.org or call 1-888-315-4154.

While 99 percent of people with cystic fibrosis have health insurance, increasingly patients are struggling to afford treatments because their coverage is not adequate. In fact, one in four CF patients report they skipped doses of medicine or purposefully took smaller doses in the past year because of the cost. Nearly one in five have delayed seeking care for the same reason.

The average annual cost for CF treatment is about $43,000.

In order to receive financial assistance, CF patients need to meet certain eligibility criteria. The criteria have been established by a separate board that oversees the Cystic Fibrosis Patient Assistance Foundation. Operation of the organization is contingent on continued funding from pharmaceutical manufacturers.

About the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the leading organization in the United States devoted to curing and controlling cystic fibrosis. Headquartered in Bethesda, Md., the Foundation has more than 80 chapters and branch offices throughout the country and supports and accredits a nationwide network of 115 care center. For more information, visit http://www.cff.org.


'/>"/>
SOURCE Cystic Fibrosis Foundation
Copyright©2008 PR Newswire.
All rights reserved

Related medicine news :

1. Vitamin D Guidelines Too Low for Cystic Fibrosis Kids
2. Children with cystic fibrosis not well covered by guidelines for vitamin D needs
3. Mucous breakthrough in mice holds promise for cystic fibrosis
4. Five States Step Up Efforts to Screen Newborns for Cystic Fibrosis
5. Cystic Fibrosis Foundation Hosts Quality Improvement Summit - Caregivers from 15 States and Canada Gather in Hartford for Intensive Learning
6. GREAT STRIDES Walks for Cystic Fibrosis Slated for 47 States This Weekend
7. Cystic Fibrosis Foundation President Rings Bell to Close New York Stock Exchange
8. Alabama Begins Mandatory Screening of Newborns for Cystic Fibrosis
9. Cystic Fibrosis Foundation Lauds Congress for Passage of Small Business Innovation Research Program
10. Study Points to New Treatments for Polycystic Kidney Disease
11. Lung transplants in cystic fibrosis patients with life-threatening bacteria sparks debate at ISHLT
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/24/2016)... Maryland (PRWEB) , ... June 24, 2016 , ... ... Angels is actively feeding the Frederick area economy by obtaining investment capital for ... over the past 2½ years that have already resulted in more than a ...
(Date:6/24/2016)... ... June 24, 2016 , ... ... the upcoming 2016 Miss Arizona pageant as its official Medspa Sponsor. Dr. Josh ... Mesa, and Chandler, Arizona. , Dr. Olson says the decision to support ...
(Date:6/24/2016)... ... ... Today, InhaleLabs.com (Inhale) offilially launched its site, which aims to ... high quality water pipes within an ideal price range. The site is completely free ... two brothers, Nick and Mike Hunter, who use medical cannabis to heal ailments of ...
(Date:6/23/2016)... CA (PRWEB) , ... June 23, 2016 , ... An ... that may expose a possible link between head and neck cancer in individuals with ... in the study were evaluated based on whether they had gum disease, brushed their ...
(Date:6/23/2016)... McKinney, Texas (PRWEB) , ... June 23, 2016 , ... ... the special operations community. He turned towards the water to find peace and set ... funds for a veterans charity and turned to the internet. He came across the ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... 2016 Capricor Therapeutics, Inc. ... biotechnology company focused on the discovery, development and ... enrollment in its ongoing randomized HOPE-Duchenne clinical trial ... of its 24-patient target. Capricor expects the trial ... of 2016, and to report top line data ...
(Date:6/23/2016)... , June 23, 2016 Bracket , ... launch its next generation clinical outcomes platform, Bracket eCOA (SM) ... held on June 26 – 30, 2016 in ... first electronic Clinical Outcome Assessment product of its kind to ... #715. Bracket eCOA 6.0 is a flexible platform ...
(Date:6/23/2016)... and INDIANAPOLIS , June ... receiving a Lilly Diabetes Tomorrow,s Leaders Scholarship is any ... scholarship winners, announced today online at www.diabetesscholars.org ... type 1 diabetes stand in the way of academic ... supported the Foundation,s scholarship program since 2012, and continues ...
Breaking Medicine Technology: