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Coulter Client Ehlers-Danlos National Foundation to Open Research Clinic in Baltimore
Date:5/14/2013

etter treatment options for patients with EDS, and provide the opportunity for continued research into the causes of EDS," said Dr. Francomano. "Knowledge concerning the underlying causes of the disease will enable us to seek rationale therapies for this complex and disabling condition."

About Ehlers-Danlos National Foundation (EDNF): EDNF is the leading authority for Ehlers-Danlos Syndrome (EDS), a group of genetic connective tissue disorders. To support research and education about EDS to prevent disfigurement, crippling, and premature death through early and accurate diagnosis, EDNF increases awareness about EDS by fostering and funding research, generating and distributing accurate and responsible information, and delivering recommendations for those seeking diagnosis of problems that have been a life-long mystery. EDNF also provides support to those who have been diagnosed with EDS by offering information and emotional validation for the newly diagnosed wrestling with what a genetic disorder means for them and their families, and provides tips for those who have lived with EDS for years, including day-to-day inspiration and news. EDNF’s members are physicians and other medical practitioners, researchers, people with EDS, and friends. For more information, visit http://www.ednf.org.

About Dr. Francomano: Dr. Francomano received her undergraduate degree at Yale University and her medical degree from The Johns Hopkins University School of Medicine. She trained in internal medicine and medical genetics at Johns Hopkins and joined the full-time Hopkins faculty in 1984. She joined GBMC's Harvey Institute of Human Genetics in 2005. Dr. Francomano is an Associate Professor of Medicine at Johns Hopkins University School of Medicine. She has held positions as Clinical Director and Chief of the Medical Genet
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