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Coulter Client Ehlers-Danlos National Foundation to Open Research Clinic in Baltimore
Date:5/14/2013

McLean, VA (PRWEB) May 14, 2013

Coulter client, Ehlers-Danlos National Foundation (EDNF) will provide funding to support a virtual center at Greater Baltimore Medical Center (GBMC) under the direction of Clair Francomano, MD, GBMC's Director of Adult Genetics. The Center will provide comprehensive clinical care for patients, professional education for physicians and a research component. Elliot Clark, EDNF board chairman, and Shane Robinson, EDNF executive director, were on hand at GBMC on Wednesday, May 8 to formally sign an agreement officially announcing the partnership between EDNF and GBMC.

"Partnering with the Greater Baltimore Medical Center to open the first ever EDNF Center for Clinical Care and Research is an exciting new initiative for the foundation," said Shane Robinson, EDNF executive director. "EDS often goes undiagnosed because physicians are not aware of the disease. The funding EDNF is providing to establish this clinic is a major step forward in advancing our mission to educate healthcare practitioners and patients and provide treatment to help people living with EDS."

Clinical research, education, and treatment for Ehlers–Danlos syndrome (EDS), a group of inherited connective tissue disorders for which there is no cure, took a significant step forward on May 8 with the establishment of the first ever Ehlers-Danlos National Foundation Center for Clinical Care and Research at GBMC's Harvey Institute for Human Genetics. May is Ehlers-Danlos Syndrome Awareness Month, and the disease is believed to affect about one in 2,500 to one in 5,000 individuals worldwide.

"We are extremely grateful to EDNF for their support which will allow us to explore new treatment options for patients and raise awareness among physicians. It is our hope that these efforts will lead to earlier diagnosis and b
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