Expectant mothers who learn from prenatal diagnosis that they are carrying a fetus with a congenital heart defect (CHD) commonly suffer post-traumatic stress, depression and anxiety. However, a healthy relationship with one's partner and positive coping mechanisms can reduce this intense stress, according to new research from the Cardiac Center of The Children's Hospital of Philadelphia.
The study is published in the September 2012 issue of The Journal of Pediatrics.
"Receiving the news of carrying a fetus with a CHD is a stressful event which can potentially influence a mother's anxiety level," said study leader Jack Rychik, M.D., medical director of the Fetal Heart Program in the Cardiac Center at The Children's Hospital of Philadelphia. "Prenatal diagnosis is helpful in that it gives parents time to learn about the defect, review treatment options, plan for necessary interventions and consider their options. While this is intrinsically a stressful time for parents, there has previously been little research on the details of this stress and ways to buffer it."
The researchers surveyed 59 pregnant mothers, ranging in gestational age from 17 to 31.5 weeks, who were recruited by nurse coordinators at either the initial visit to the Fetal Heart Program or a follow-up visit, then followed throughout the rest of their gestation. Participants intended to continue the pregnancy, and to plan for follow-up with the Fetal Heart Program. All were carrying fetuses with serious CHD requiring neonatal evaluation and postnatal surgical or catheter-based intervention within the first six months of life.
Using psychological evaluation tools and self-report instruments, the study team measured traumatic stress, depression and anxiety among the mothers. The researchers also measured partner satisfaction and collected demographic data.
More than 39 percent of the women experienced clinically important traumatic stress, 22 percen
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Children's Hospital of Philadelphia