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Considering Transplant and on Oxygen, Singer-Songwriter with Rare Lung Disease Returns to Stage Nov. 7, Pulmonary Hypertension Association Announces

New York, NY (PRWEB) October 27, 2013

The 1st Annual Pulmonary Hypertension Association (PHA) New York City O2 breathe Gala will take place on Thursday, November 7th at the Lighthouse at Pier 61 in New York City. Craig Melvin, MSNBC anchor and NBC News correspondent will serve as Master of Ceremonies for the event. (

“It will be an elegant event to honor the legacy of Dr. Robyn Barst, a pioneer in the field of pulmonary hypertension (PH) who passed earlier this year, and to raise funds and awareness to fight PH,” said Gina Parziale, Executive Director of PHA’s New York Tri-State Chapter, “We are grateful to Craig Melvin for donating his time to support the event,” she said.

Inspiring Performance by Pulmonary Hypertension Patient

A highlight of the evening will be a performance by 2011 AVON National and International Songwriting Competition Winner, singer/songwriter Chloe Temtchine. Mere months after her diagnosis, Ms. Temtchine will valiantly launch her "No Pressure Tour" with an intimate live performance at the event, singing while using her oxygen tank which she affectionately calls “Steve Martin.”

Last year, Ms. Temtchine's album, produced by American Grammy nominee, Greg Camp, was nearing completion when she was rushed to the emergency room due to congestive right-heart failure and diagnosed with a life-threatening pulmonary disease, Pulmonary Veno Occlusive Disease (PVOD.) PVOD is a condition which causes narrowing of the pulmonary veins and venules by fibrous tissue causing PH. Currently, lung transplantation is the only therapeutic option capable of significantly prolonging and improving the lives of patients with PH caused by PVOD.

“Ms. Temtchine’s courageous performance will inspire PH patients across the country and world and will help raise awareness for this terrible disease,” said Ms. Parziale.

Honoring the Legacy of a Pioneer in the Field

For two-and-a-half decades, Dr. Robyn Barst established herself as a leader in the field by providing state of the art medical care for children and adults with PH, founding the New York-Presbyterian Pulmonary Hypertension Center, conducting groundbreaking research in the field, mentoring numerous clinicians, and serving in PHA leadership through the Board of Trustees and Scientific Leadership Council.

“Robyn would have wanted people not to mourn her but continue her fight against PH. That’s why supporting PHA’s research and education to end this terrible disease is so important," shared Dr. Sam Barst, Dr. Robyn Barst’s husband.

About the Event

Thursday, November 7th
The Lighthouse at Pier 61
Cocktails and Step and Repeat photos at 6:30PM
Dinner at 7:30 PM
Ms. Temtchine’s performance at 8:30
Tickets and additional information available at or call 646-568-2068.

About Pulmonary Hypertension

Pulmonary hypertension is high blood pressure in the arteries of the lungs that can lead to heart failure. There is no cure. In 1985 patients had a 50% chance of surviving 2.8 years past date of diagnosis but, thanks to new treatments, prognosis is improving.

About the Pulmonary Hypertension Association

PHA is the country's leading organization connecting pulmonary hypertension patients, families, and medical professionals. Its mission is to find ways to prevent and cure pulmonary hypertension and provide hope for the community through support, education, research, advocacy and awareness. PHA provides free access to information on its website about pulmonary hypertension and facilitates over 240 support groups around the nation, helping many of the estimated 20,000 - 30,000 diagnosed patients in the U.S. PHA is proud to have met the BBB Wise Giving Alliance Standards for Charity Accountability. Additionally, for ten consecutive years, PHA has received the highest possible rating-4 stars-for fiscal accountability and transparency from Charity Navigator, placing PHA in the top 1% of all rated charities. 88.5% of funds raised by PHA go directly to research and our support, education, advocacy and awareness efforts. To learn more about PHA, visit:

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