Comparing results across studies in traumatic brain injury (TBI) has been difficult because of the variability in data coding, definitions, and collection procedures. The global aim of the Working Group on Demographics and Clinical Assessment was to develop recommendations on the coding of clinical and demographic variables for TBI studies applicable across the broad spectrum of TBI, and to classify these as core, supplemental, or emerging. Templates were produced to summarize coding formats, motivation of choices, and recommendations for procedures. Work is ongoing to include more international participation and to provide an electronic data entry format with pull-down menus and automated data checks. This proposed standardization will facilitate comparison of research findings across studies and encourage high-quality meta-analysis of individual patient data.
Recommendations for the Use of Common Outcome Measures in Traumatic Brain Injury Research
Elisabeth A. Wilde, PhD, Gale G. Whiteneck, PhD, Jennifer Bogner, PhD, Tamara Bushnik, PhD, David X. Cifu, MD, Sureyya Dikmen, PhD, Louis French, PsyD, Joseph T. Giacino, PhD, Tessa Hart, PhD, James F. Malec, PhD, Scott R. Millis, PhD, Thomas A. Novack, PhD, Mark Sherer, PhD, David S. Tulsky, PhD, Rodney D. Vanderploeg, PhD, Nicole von Steinbuechel, PhD
This article summarizes the selection of outcome measures by the interagency Traumatic Brain Injury (TBI) Outcomes Workgroup to address primary clinical research objectives, including documentati
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Elsevier Health Sciences