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Connecticut Girl Fights Rare Neurological Disease
Date:10/19/2007

severe as Remotti's is Ketamine Coma Therapy, a clinical trial procedure being conducted in Monterrey, Mexico. The treatment would place Remotti in a coma for seven days and her brain will essentially "reset" itself and trigger her nervous system to send appropriate signals to her brain.

"Scary is knowing that I'm never going to walk again," Remotti explained. "I would rather try the coma therapy than live with this pain."

There are risks associated with the trial treatment, but many patients like Remotti who have severe RSD have had success. Remotti's immediate family supports her decision to pursue the Ketamine Coma Therapy. Transportation to and from Mexico and the treatment itself are out-of-pocket expenses for the Remotti family as their insurance does not cover medical expenses associated with this treatment. They must raise $200,000 to fund their daughter's treatment.

Remotti hopes to begin the Ketamine Coma Therapy treatment by mid-November. She has stated that her only wishes are to be free of the fiery pain and to be able to move again, resuming life where she left off two years ago.

On Sunday, Oct. 21, two Connecticut fire departments -- the Colchester-Hayward Fire Department and the Windsor Locks Fire Department

-- will arrive at Remotti's residence in fire trucks to present her with a donation check to support her Ketamine Coma Therapy treatment. Prior to losing the use of her limbs, Remotti hoped to train to become a fire fighter. The check will be presented at 12:30 p.m. at Remotti's residence, 65 Smalley Road, Windsor Locks, CT 06096. Members of the media are welcome to attend.

To learn more about Mary Remotti's fight to be free of her debilitating symptoms of RSD and more about RSD symptoms and treatments visit her Web site at http://www.marys-wish.com or contact James Remotti at 860-254-4735.


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SOURCE The Remotti Family
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