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Columbia Nursing develops online tool to reduce stress in Hispanic caregivers of dementia patients
Date:6/11/2013

[NEW YORK, June 11, 2013] Dementia often claims two victims: The patient and the caregiver. That's because caring for people with dementia requires close supervision and constant care, which can place a caregiver's psychological, physical and financial health at risk.

Dementia prevalence is more than twice as high nationally in Hispanics than in non-Hispanic whites. Most research to identify the stress factors of dementia caregivers has predominately focused on the general population, not on the Hispanic community where caregiver burden for dementia patients is significantly higher.

Now, a team of researchers, led by Robert J. Lucero, Ph.D., MPH, RN, Assistant Professor at the Columbia University School of Nursing, will develop and test a web-based intervention to facilitate the health and health care management for patients with dementia and their caregivers. The goal of the Family-Health Information Management System (Family-HIMS) is help improve the caregiver's ability to manage the complex web of health and health care information associated with the health care needs of a patient with dementia.

The Family-HIMS is intended to enhance the users' ability to access, visualize, organize, and coordinate health information and health care needs of dementia patients and their caregivers. Lucero and his team will build on previous experience of successfully designing and developing consumer-based health information technology. English- and Spanish-speaking family caregivers will engage in the design, development, and testing of the Family-HIMS to help researchers incorporate differences among the information seeking and management behaviors of Hispanic caregivers.

"The aim of this health information management system is to develop a web-based tool that conforms to the needs of the Hispanic caregiving community and to evaluate its impact on helping caregivers manage their health and the health of the person they are caring
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Contact: Rachel Zuckerman
rz2274@columbia.edu
212-305-4092
Columbia University Medical Center
Source:Eurekalert

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