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Coalition for Pulmonary Fibrosis Celebrates Landmark Year for Awareness, Advocacy, Research
Date:12/31/2008

ch will accelerate efforts to conquer PF - a truly devastating disease that has seen a 156 percent increase in prevalence in the last six years. This is truly a significant move forward, both for patients currently fighting PF, and for all those who will be diagnosed in the future," said Mishka Michon, chief executive officer of the CPF.

Also in 2008, the CPF initiated its first Internet marketing campaign which included the launch of a new state-of-the-art website, and a new web-based advocacy program. These tools will dramatically improve the organization's ability to communicate with patients, researchers and caregivers, to increase public awareness of PF and to raise new funds to advance the work being done by the CPF. The Internet advocacy program had an immediate and dramatic impact on the CPF's efforts to pass the PFREA in the House. Through the efforts of CPF members communicating with their members of Congress, 30 House co-sponsors have been secured to date.

The majority of the CPF's research funding is managed via its partnership with ATS, and grants are awarded through a rigorous peer-review process administered by ATS. As a result of 2008 fundraising, the CPF will offer two new grant opportunities for 2009/2010. To date, the organization has granted more than $1 million in research funding to investigate novel approaches to understand and treat PF. "The CPF is proud that our continued public support, and the matching grants from ATS are allowing us to move research forward," said Michon. The CPF has also provided more than $200,000 in combined research gifts to the University of California Los Angeles, University of Michigan and the University of Chicago since 2005.

"The CPF is the voice for tens of thousands of Americans who are suffering from PF and who can't easily speak for themselves. We are very excited to have made so much progress this last year. Our dee
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SOURCE Coalition for Pulmonary Fibrosis
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