SAN JOSE, Calif., Nov. 11 /PRNewswire-USNewswire/ -- The CPF today announced that the Pulmonary Fibrosis Research Enhancement Act (PFREA) (H.R. 6567) - which would authorize $16 million in new federal funding for pulmonary fibrosis (PF) research - has now gained the support of 27 Members of the U.S. House of Representatives.
PFREA is first of its kind legislation to improve research and awareness of pulmonary fibrosis, a terminal lung disease with no known cause, no FDA approved treatment and no cure. (For more information on PF, visit http://www.coalitionforpf.org). The PFREA is expected to be re-introduced in the 111th Congress in early 2009. However, additional Members of Congress could be added on as co-sponsors in the current Congress if there is a lame duck Congressional session.
"We are pleased to see the Pulmonary Fibrosis Research Enhancement Act gaining momentum. This bill is critical to finding treatments and saving lives from this devastating disease," said Mishka Michon, Chief Executive Officer of the CPF. "We are thankful for the leadership Brian Baird and Mike Castle have given to this effort."
The PFREA was originally introduced in Congress on July 22, 2008 by
Representative Brian Baird (D-WA) and Representative Mike Castle (R-DE).
Congressman Baird lost his father to pulmonary fibrosis, and Congressman
Castle lost his brother and sister to the devastating disease. A
substantial portion of the $16 million authorization would be used to
establish a comprehensive national registry of PF patients. The Act would
also:
-- Mandate the creation of a National PF Action Plan, in conjunction with
the National Institutes of Health (NIH) and the Centers for Disease
Control (CDC), which would focus on strategies to improve public
awareness of PF, and accelerate patient and medical education
strategies. The Action Plan would
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