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Chronic Myeloid Leukemia: Patient Experience Not Well Understood
Date:10/24/2013

olutions that are meaningful for patients and their families.”

Patients who participate in the Cancer Experience Registry: Chronic Myeloid Leukemia will answer a series of questions about their experiences including questions about the patient-medical team dialogue, side effect management, cancer care planning, financial concerns and the emotional and social effects of their cancer experiences. Participants will be able to instantly compare their responses with those of others in the community and get connected to support and resources that meet their interests and needs.

This fourth in a series of cancer specific registries is possible thanks to the generous support of Pfizer Oncology, the Inaugural Sponsor. “Learning the patient’s perspective is critically important,” said Mace Rothenberg, MD, senior vice president, clinical development and medical affairs, Pfizer Oncology. “We are pleased to partner with the Cancer Support Community and LLS on this initiative.”

In addition to people with a diagnosis of Chronic Myeloid Leukemia, the Cancer Support Community encourages all patients touched by any cancer to join the broader Cancer Experience Registry to lend their voice and be connected to additional resources. An annual index of findings from the Cancer Experience Registry, as well as results from each cancer specific registry, will be published to share the research with the cancer community at large.

“We are so pleased to be able to facilitate the transfer of this information from the voice of the patient to interventions that will impact direct clinical care,” said Kim Thiboldeaux, president and CEO of the Cancer Support Community. “We are grateful to those who have selflessly shared their time and stories with us and the broader cancer community, as we all strive to improve the experience of all people touched by cancer.”

Those who have been diagnosed with chronic myeloid leukemia or any type of cancer at any time are
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