-- Open a dialogue with your child. They need to know everything about their condition, including required medications and their importance.
-- Put the child in control as much as possible, but be certain to supervise. Children may want to skip medications when they feel well.
-- Keep lines of communication open with coaches, teachers, and other parents so they can know when problems arise.
-- Children should wear sunscreen and sun protective clothing to protect against UV light exposure (a trigger for lupus disease activity).
-- Watch out for your child and have alternatives if activities become too much, such as limiting the play to a few hours, several times each week, rather than all day, every day. However, the point of activities is for the child to have fun.
Published three times per year for people with lupus, their families, and health professionals, Lupus Now includes the latest information on new treatments, clinical updates, lifestyle and wellness features, personal stories and more. For subscription information, contact your local LFA chapter, go online to http://www.lupusnow.org, or call 866-4-THE-LFA.
The Lupus Foundation of America is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus, and to providing support, services and hope to all people affected by lupus through programs of research, education, and advocacy.
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