Navigation Links
Children's National researcher co-authors study on transitioning cystic fibrosis care
Date:10/23/2013

Washington, DC Children's National pediatrician and researcher, Lisa Tuchman, MD, MPH, co-authored a new study on cystic fibrosis (CF) care that found patients had a less rapid decline in pulmonary function and no other significant health-related changes after transitioning from pediatric to adult care. The findings of this study contradict reports of negative health outcomes after transition from pediatric to adult care for other chronic childhood illnesses such as HIV and sickle cell disease. The study was published online in Pediatrics, the official journal of the American Academy of Pediatrics.

In this study, Dr. Tuchman and co-author Michael Schwartz, MD, MSCE, Pediatric Pulmonary Medicine & Cystic Fibrosis Center, Lehigh Valley Health Network, retrospectively examined patients using the Cystic Fibrosis Foundation Patient Registry. They identified patients who transferred from pediatric to adult programs (transfer-positive patients) and matched them based on similar baseline characteristics, such as gender, race, age, and CF genotype, with patients who remained in pediatric programs (transfer-negative patients). The authors measured differences in outcomes such as pulmonary function, nutritional status, care use, and home intravenous antibiotic events per year in both the transfer-positive and transfer-negative patients to determine if transfer from pediatric to adult care made a difference.

One of the barriers in transitioning from pediatric to adult CF care among patients and pediatric providers is concern that the quality of adult care may not be comparable. This study begins to close a critical gap in research on the topic of health outcomes and transitioning care in patients with CF that can help guide providers and their transition-age patients. It is the first study on CF to track patients during the time of expected healthcare transition, and compare outcomes with statistically similar individuals who do not transfer care over the same period.

"Our results show that when you look at individuals with CF who are similar in almost every way, when one transfers to adult care and one stays in pediatric care, there are essentially no differences in short-term health outcomes," said Dr. Tuchman. "With nearly half of all the individuals with cystic fibrosis older than 18, the systematic process of transitioning care utilized by CF programs serves as a model of safe and successful transition. By instituting clear guidelines, resource-sharing and care coordination between pediatric and adult care teams, this model of care can be used to improve transitions for all young adults with special healthcare needs."


'/>"/>

Contact: Emily Hartman
EHartman@ChildrensNational.org
202-476-4500
Children's National Medical Center
Source:Eurekalert

Related medicine news :

1. Sensory Processing Disorder Foundation Celebrates National Sensory Awareness Month
2. HealthPostures and Electronic Office Environments to Attend National Minority Supplier Development Council Conference and Business Opportunity Fair
3. Lawrence Buckfire Asks Parents To Get Behind National Teen Driver Safety Week
4. Narconon International Presents to the 14th Latin American Congress of Clinical Toxicology and Chemical Safety
5. ¡Vive tu vida! Get Up! Get Moving!® 10-City Tour Announced by National Alliance for Hispanic Health
6. Improve Indoor Air Quality with Air Scrubber Plus During National Home Indoor Air Quality and Awareness Month
7. Tummy Calm to Exhibit at 2013 AAP National Conference
8. 4 leading international Wiley journals become open access
9. Enhanced Maternity Benefits for Pacific Prime Clients with Bupa International
10. Fatigue to Fit Centers Houston with the CDC Promotes the Theme "Lead Free Kids for the Healthy Future" from Oct 20-26, 2013 as the National Lead Poisoning Prevention Week
11. Canton, Michigan is About to Get National Exposure
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/29/2016)... ... ... Coalition Duchenne, a Newport Beach, California based charity committed ... in the April 25 U.S. Food and Drug Administration advisory committee hearing on ... the Marriott Conference Center in Hyattsville, Maryland was attended by over than a ...
(Date:4/29/2016)... ... April 29, 2016 , ... The Society for Assisted Reproductive ... are required to report in vitro fertilization (IVF) delivery rates to ... practice of assisted reproductive technologies in the United States. , This year, ...
(Date:4/29/2016)... ... 2016 , ... The number of chronically and seriously ill individuals is growing. ... an urgent need for highly skilled care managers and care coordinators. Care ... train and retain care managers, and enhance their skills. , Care Excellence ...
(Date:4/28/2016)... ... April 29, 2016 , ... Monthly subscription boxes are all the ... They recently reviewed the ZEN BOX , the aromatherapy subscription box. , ZEN ... oils (like lavender or frankincense) and one Zen Blend (like immune boost, sublime sleep ...
(Date:4/28/2016)... ... 2016 , ... Sanford Health’s work in cellular therapy and ... and leaders from Sanford Health were selected to participate in the “ Third ... and receive the 2016 Pontifical Key Innovation Award at the Vatican. , The ...
Breaking Medicine News(10 mins):
(Date:4/28/2016)... , April 28, 2016 ... H1 2016" is a report that provides an ... strengthen R&D pipelines by identifying new targets and ... Company Profiles discussed in this H1 2016 ... Riunite Srl, AbbVie Inc., Abiogen Pharma S.p.A., Ablynx ...
(Date:4/27/2016)... le 27 Avril 2016 ... progressé de +5% sur le trimestre, soutenu par ... consommables  Croissance de +16% des ventes ... Mauna Kea Technologies (Euronext : MKEA, FR0010609263 ; OTCQX : ... laser, annonce aujourd,hui son chiffre d,affaires pour le ...
(Date:4/27/2016)... Transparency Market Research has published ... Global Industry Analysis, Size, Share, Growth, Trends, and Forecast ... skincare devices market was valued at US$ 7,255.8 Mn ... CAGR of 10.1% from 2015 to 2023 to reach ... full Skincare Devices Market (Treatment Device - LED Therapy Devices, ...
Breaking Medicine Technology: