Navigation Links
Children with spina bifida need personal 'starter'
Date:10/4/2011

Children born with spina bifida often have difficulties to perform everyday activities. This is not primarily due to being confined to a wheelchair or to parental overprotection as was previously believed new research from the University of Gothenburg shows that it is down to an inability to initiate and complete a task towards a specific goal.

Spina bifida is a birth defect in the spine which normally results in a degree of paralysis in the lower part of the body, difficulty controlling the bladder and bowel, and a risk of hydrocephalus Recent research shows that spina bifida often also leads to other neurologically-related problems, such as varying degrees of executive function impairment.

A study of children with spina bifida at the Queen Silvia Children's Hospital and the Sahlgrenska Academy in Gothenburg reveals that the majority of these children struggle to "get things done" independently in daily life. This inability affects their autonomy in daily life and their participation in various school situations.

Although both the children themselves and their parents understand that they are capable of performing everyday activities in terms of motor skills, they still do not get done. As many parents put it: "I suppose he/she can do it is somehow just never done"

Previously children with spina bifida were often seen as over-helped due to their loss of motor function, and in some cases the children were even considered lazy. In her thesis, Marie Peny-Dahlstrand, licensed occupational therapist and doctoral student at the Sahlgrenska Academy, can now show that it is not a matter of laziness or reluctance but an inability to independently see activities through from start to finish, initiate new steps in an activity, and resolve problems arising during the course of an activity.

"Children born with spina bifida are probably held back more by this reduced ability to 'get things done' than by their motor difficulties," she explains. "The conclusion is that many children (and indeed adults) with spina bifida could do with assistance or some other form of support to act as a starter and problem solver."

The difficulties in daily life described in the thesis can probably also be seen in children and adults with other neurological disorders. Often these difficulties are hidden behind more obvious motor function impairments, which means that those with these difficulties are often misconstrued as being unwilling or having bad habits, Peny-Dahlstrand explains.

It is now important for the findings presented in the thesis to be communicated to parents, school and habilitation staff, and, not least, needs assessors.

"Children with spina bifida can then get the right kind of support, and an opportunity to realise their potential and be as involved as possible in everyday life, school and social activities and, as adults, in society and working life."


'/>"/>

Contact: Marie Peny-Dahlstrand
marie.peny-dahlstrand@neuro.gu.se
46-070-397-6928
University of Gothenburg
Source:Eurekalert

Related medicine news :

1. Amway One by One Campaign for Children Reaches 7 Million Kids
2. Exposure to secondhand smoke among children in England has declined since 1996
3. One Month after Major Quake, Ongoing Crises for Haitian Children
4. Groundbreaking Principal and Contributor on Dr. Oz Show Releases His Latest Book on How We Can Influence the Lives of Children
5. Children With Cerebral Palsy Benefitting From New Physical Therapy Regimen
6. Als Angels Love and Laughter Event to Support Children and Families in Desperate Need
7. If children wont go to school
8. Parents often wait too long to treat childrens asthma symptoms
9. Hypnosis can relieve symptoms in children with respiratory diseases
10. National Network of Digital Schools, SlateXP and UMPS CARE Raise $75,000 for Children
11. Father Channels His Grief into Advocacy, Promotes Simple Actions to Make Hospitals Safer for Children
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/26/2016)... ... May 26, 2016 , ... There are many ways to cook a hot ... suggests that Americans prefer their dogs straight off the grill. Of the 90 percent ... favorite way to cook a hot dog, far outpacing other cooking methods such as ...
(Date:5/26/2016)... ... , ... Connor Sports, through its Connor Cares initiative, will continue ... Catchings Legacy Tour that will commemorate the Indiana Fever legend’s hall-of-fame career and ... forms and levels of the game, Connor Sports has committed to a significantly increased ...
(Date:5/26/2016)... ... ... MadgeTech will be showcasing its line of data logging products , ... MadgeTech headquarters. With products sold in more than 100 countries around the world, MadgeTech ... , In 2012, NASA strategically set up 17 RHTemp101A MadgeTech data loggers around ...
(Date:5/26/2016)... ... May 26, 2016 , ... Memorial Day Weekend marks the ... Insurance is sharing tips to make sure your family and vehicle are ready ... Safety Council, there may be 439 deaths and an additional 50,500 serious injuries from ...
(Date:5/26/2016)... Rafael, CA (PRWEB) , ... May 26, 2016 ... ... will be offering campers a multitude of activities from daily practices, arts & ... self-confidence. , Camp Directors Amber East-D’Anna and Christy Evans have combined backgrounds in ...
Breaking Medicine News(10 mins):
(Date:5/25/2016)... May 25, 2016 MedDay, a biotechnology ... that an oral presentation entitled "High doses of biotin in ... will be given by Professor Ayman Tourbah , Principal ... of the European Academy of Neurology (EAN) in ... disorders 3" will take place on Sunday, 29 May 2016 ...
(Date:5/24/2016)... 24, 2016   ... primären Endpunkte und demonstriert Ebenbürtigkeit bei ... ‚ausgezeichneter plus guter , ...      (Logo: http://photos.prnewswire.com/prnh/20130829/633895-a ) ... positive Daten von der MORA-Studie der Phase III ...
(Date:5/24/2016)... May 24, 2016 Celsion Corporation (NASDAQ: ... company, today provided an update on its ongoing ... trial combining GEN-1, the Company,s DNA-based immunotherapy, with ... newly-diagnosed patients with advanced ovarian cancer who will ... GEN-1 is an IL-12 DNA plasmid vector formulated ...
Breaking Medicine Technology: