Navigation Links
Children with sickle cell disease receiving inadequate care
Date:11/24/2008

Houston, Tex. November 24, 2008 A new study finds that youth populations with sickle cell disease (SCD) are receiving inadequate healthcare, and thus may fail to benefit from scientific advances. The study, published in Pediatric Blood & Cancer, finds that the patients, mostly African Americans, often lack insurance or access to specialized sickle cell centers for treatment.

SCD, a blood disease characterized by abnormally shaped red blood cells, affects close to 100,000 persons in the United States alone. The disease is a chronic medical condition, which causes frequent episodes of pain and may lead to serious infections as well as stroke.

According to one of the study authors, Jean Raphael, of the Baylor College of Medicine, significant percentages of children with SCD fail to see a specialist even once per year and that only 10 percent of cases are followed by hematologists. Additionally, the number of hematologists and other health care providers dedicated to care of these patients may be insufficient to provide adequate care.

"This topic has significant relevance to healthcare quality and delivery to children with chronic conditions," says Raphael. "Rising healthcare costs in the U.S. due to chronic diseases demand more from the healthcare system for better long-term survival."

An accompanying editorial by Dr. Jane Hankins of St. Jude Children's Research Hospital notes that in a country where advances in care and research for SCD are praised as among the best in the world, children with this condition continue to receive inadequate health care and consequently fail to fully benefit from substantial progress in scientific research.

"As with any chronic pediatric condition, management of SCD requires more frequent and more substantial use of medical resources, but managed care organizations and pediatricians do not receive compensation rates reflective of the high cost of caring for these children," says Hankins.

"The combination of a disease that combines progressive organ damage, poverty, racial inequalities, disease stigmatization, uninsured or unstably insured children and poorly compensated health care professionals results in a precarious situation. It is important to draw attention to problems in health care delivery as this information may help spur changes that will result in increased effort and resources."


'/>"/>

Contact: Sean Wagner
swagner@wiley.com
781-388-8550
Wiley-Blackwell
Source:Eurekalert

Related medicine news :

1. Children's National Dedicates New Research Facility
2. CVS/pharmacy Raising Funds for the St. Jude Childrens Research Hospital(R) Thanks and Giving(R) Campaign to Support Expanded Rehabilitation Services Center
3. Marlo Thomas and St. Jude Childrens Research Hospital(R) Kick Off The 5th Anniversary of the Thanks and Giving(R) Campaign Asking America to Support St. Jude While Shopping this Holiday Season
4. Clay Aikens Bubel/Aiken Foundation Raises Over $500,000 to Benefit Children With Disabilities at Gala Honoring the 2008 Champions Of Change
5. Holiday Health Tips From Packard Childrens Hospital
6. Roche Holds Sixth Annual Childrens Walk in Nutley
7. HOE Ministries Gives New Hope to Orphans in Ethiopia : Hope For Orphans of Ethiopia Organization to Build Greater Awareness and Solutions to the Soaring Poverty Catastrophe Afflicting Orphaned and Innocent Children in Prison
8. Important Message for 2008 Universal Childrens Day
9. New Site DrNorm.com Offers Hope and Healing to Parents of Difficult Children During Holiday Season & Beyond
10. 26 percent of sleepless children become overweight
11. Bed net usage increases, but 90 million African children still exposed to malaria
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... ... October 13, 2017 , ... The American Board of Family Medicine's ... President and Chief Executive Officer, succeeding Dr. James C. Puffer upon his retirement. Dr. ... 2018 until Dr. Puffer’s retirement at the end of 2018. Upon assuming the role ...
(Date:10/13/2017)... Ill. (PRWEB) , ... October ... ... Edwardsville School of Pharmacy (SOP) alumni Hannah Randall, PharmD ‘17, and Jennifer ... healthcare professionals on guideline updates for the primary prevention of cardiovascular diseases ...
(Date:10/13/2017)... ... October 13, 2017 , ... Many families have long-term ... long-term care insurance companies have a waiver for care if the client has a ... when the family pays for care, is often waived, so the benefits from their ...
(Date:10/13/2017)... ... October 13, 2017 , ... Global Healthcare Management’s 4th Annual Kids ... Milford, NJ. This free event, sponsored by Global Healthcare Management’s CEO, Jon Letko, ... run is geared towards children of all ages; it is a non-competitive, non-timed event, ...
(Date:10/13/2017)... ... October 13, 2017 , ... Coveros, ... Development, has been awarded a contract by the Center for Medicare and Medicaid ... to accelerate the enterprise use of Agile methodologies in a consistent and high ...
Breaking Medicine News(10 mins):
(Date:10/11/2017)... 2017  Caris Life Sciences ® , a leading ... of precision medicine, today announced that St. Jude Medical ... Alliance™ (POA) as its 17 th member. Through ... Crosson Cancer Institute will help develop standards of care ... profiling, making cancer treatment more precise and effective. ...
(Date:10/10/2017)... 2017   West Pharmaceutical Services, Inc. (NYSE: ... drug administration, today shared the results of a study ... the intradermal administration of polio vaccines. The study results ... May 2017 by Dr. Ondrej Mach , Clinical ... Organization (WHO), and recently published in the journal ...
(Date:10/4/2017)... , Oct. 4, 2017  According to the Centers for Disease ... end of October . PhysicianOne Urgent Care is helping communities across ... Westchester, NY , by offering no-cost* flu shots through the end ... mandated by certain health insurance regulations. ... The best time to get a flu shot is by the end ...
Breaking Medicine Technology: