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Child Neurology Foundation Announces $30,000 Grant for Research Into Cause and Treatment of Infantile Spasms
Date:10/28/2009

spasms.

Funding for Infantile Spasms Awareness Week and the educational materials created by CNF was provided by Questcor Pharmaceuticals via an unrestricted educational grant. Questcor did not have any involvement regarding the content of the information in the brochure, DVD or the website. The money raised for IS research was also provided through an unrestricted educational grant from Questcor.

About Infantile Spasms

Infantile spasms (a.k.a. West Syndrome) is a severe, ultra-rare form of epilepsy that typically begins in infancy. It is estimated that there are fewer than 2,000 new cases of IS in the United States each year, giving IS orphan disease designation. Infantile spasms typically occur in the first year of life, often beginning between three to six months of age. Infantile spasms is characterized by head drops with associated outstretched arms. (These spasms have also been described as nodding, salaam seizures, and jackknife seizures.) Often, in the beginning, the attacks are brief, infrequent and not typical, so it is quite common for the diagnosis to be delayed. Frequently, due to the pattern of the attacks and the cry that a child gives during or after an attack, the attacks are initially thought to be due to colic or gastric distress.

About the Child Neurology Foundation

Founded in October 2000, the Child Neurology Foundation represents the 1,300 child neurologists of North America. Its mission is to advocate for children with neurologic disorders; to promote the career of child neurology with medical students; to fund child neurology research; and to provide vetted educational materials for the health community and parents.

For more information on the CNF, please visit www.childneurologyfoundation.org.

    Alanna Peer
    952-641-4466
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SOURCE Child Neurology Foundation
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