Navigation Links
Cancer trial information leaflets 'not fit for purpose'- new study
Date:3/26/2012

Patient information leaflets for cancer trials are not up to the job, reveals a new study from the University of Leicester.

Research published in the international journal Sociology of Health and Illness reveals that patients find the leaflets far too long and incomprehensible, and even intimidating.

"These information sheets are poorly aligned with patients' information needs and how they really make decisions about whether to join a cancer trial," said author Professor Mary Dixon-Woods, Professor of Medical Sociology at the University of Leicester Department of Health Sciences.

"Some patients did find them very useful, but many others paid them little attention. They preferred to rely on discussions they had with their doctor to make up their minds."

The study aimed to unravel the mystery of why cancer trial information sheets are so hard to get right. Conducted as a collaboration between the Departments of Health Sciences and Cancer Studies at the University of Leicester, it traced what happened in 13 cancer trials. It looked at information sheets from the time they were prepared by the researchers leading the trials, through being reviewed and approved by research ethics committees. The study interviewed 26 patients who were approached to take part in trials and were given the information sheets.

"We found that research ethics committee examine information sheets very carefully. They are genuinely keen to make sure that patients are not misled in any way and that the information sheets are easy to read. They very often ask researchers to make changes to make sure they are suitable," said author Dr Natalie Armstrong, Lecturer in Social Science Applied to Health.

"The problem is that information sheets are trying to do too many things. They end up having many of the features of a legal contract. Patients often find them far too long and incomprehensible, and even intimidating. In fact,
'/>"/>

Contact: Professor Mary Dixon-Woods
md11@le.ac.uk
44-011-622-97262
University of Leicester
Source:Eurekalert  

Page: 1 2

Related medicine news :

1. Cancer treatment system sculpts radiation beam to match shape of a tumor
2. Few young women with cancer take steps to preserve fertility during treatments
3. Non-drug treatments help alleviate symptoms of treatment-induced menopause in breast cancer patients
4. Stress management for breast cancer patients may affect disease course
5. Nemours researchers uncover new evidence of cancer-causing agent present in gaseous phase of cigarette smoke
6. Obscurins in breast tissue may help physicians predict and detect breast cancer
7. Study: Low bone density medications may have protective effect on endometrial cancer
8. Parents of children with cancer distrust and fear online sources of health information, study shows
9. ASCO honors Ching-Hon Pui, M.D., for work advancing childhood cancer research and treatment
10. Have I got cancer or havent I? Medical staff confuse women with ductal carcinoma in situ
11. Dense breasts can nearly double the risk of breast cancer recurrence
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Cancer trial information leaflets 'not fit for purpose'- new study
(Date:4/14/2014)... treat children with uncomplicated acute appendicitis is a reasonable ... fewer missed school days, according to a pilot study. ... Hospital and published online April 12 in the ... the first prospective study on nonoperative management of acute ... , Researchers enrolled 77 patients age 7 to 17 ...
(Date:4/14/2014)... 2014, Perth, Australia. Drug discovery company Proteomics International ... of a companion diagnostic (CDx) test with the ... The research team authenticated the panel of biomarkers ... samples. Seven biomarkers were validated at high stringency ... The mass spectrometry data was then cross-validated using ...
(Date:4/14/2014)... 2014) When it comes to the cost and ... Patients get the best care when they are treated ... extensive experience in their current job, according to a ... and Columbia Business School. The study was published in ... Applied Economics . , The review of more ...
(Date:4/13/2014)... STANFORD, Calif. A low-cost empowerment program for ... and sexual harassment of these girls, who live ... and are frequently attacked, a large new study ... Stanford University School of Medicine, Lucile Packard Children,s ... No Worldwide, validated the program,s effectiveness in combating ...
(Date:4/11/2014)... the processes that control brain cell production could pave ... brain-related disorders. , Scientists have gained new understanding of ... how and when nerve and brain cells are formed ... and keeps it healthy. Their findings could help explain ... which is a fundamental characteristic of many diseases including ...
Breaking Medicine News(10 mins):Health News:Antibiotics alone are a successful treatment for uncomplicated acute appendicitis in kids 2Health News:Antibiotics alone are a successful treatment for uncomplicated acute appendicitis in kids 3Health News:Longer nurse tenure on hospital units leads to higher quality care 2Health News:Empowerment program greatly decreases incidence of rape, Stanford/Packard-led study finds 2Health News:Empowerment program greatly decreases incidence of rape, Stanford/Packard-led study finds 3Health News:Empowerment program greatly decreases incidence of rape, Stanford/Packard-led study finds 4
... , Foundation launches public service campaign with ... PHILADELPHIA, Sept. 17 The Word-OUT! Awareness Foundation, a member of ... You Gotta Wash Your Hands! A ... press conference will start promptly at 1:30 p.m. and take place on ...
... infection can be cut in half with 6 months of ... -- A longer period of preventive treatment after kidney transplant ... infected with a virus that can cause devastating problems, new ... the virus, called cytomegalovirus, but those with kidney transplants have ...
... OAKS, Calif., Sept. 17 Amgen (Nasdaq: AMGN ) ... Sept. 21, 2009, at the Grand Hyatt in New York City, ... Ph.D., executive vice president of Research and Development at Amgen will ... available over the Internet and can be accessed from Amgen,s Web ...
... WASHINGTON, Sept. 17 The Department of Veterans Affairs ... the phone to callers claiming to update VA prescription information. , ... inexcusable scam that dishonors their service and misrepresents the Department built ... "VA simply does not call Veterans and ask them to disclose ...
... , SEATTLE, Sept. 17 Today ... of medical malpractice to submit a certificate of merit from a ... named in a lawsuit. The certificate requirement, imposed on patients by ... the courts, including a Washington woman whose ovarian cancer went undiagnosed ...
... How to Ditch ... ... Hotels and Resorts reveals that people all over the world would rather get a good ... study found more than half of the respondents would rather sleep than engage in sexual activity. ...
Cached Medicine News:Health News:You Gotta Wash Your Hands is the Word Out! 2Health News:Amgen to Present at the UBS Global Life Sciences Conference 2Health News:Medical Malpractice Victim Helps Uphold Constitutional Rights of Patients in Washington State Supreme Court Decision, Perey Law Announces 2Health News:Medical Malpractice Victim Helps Uphold Constitutional Rights of Patients in Washington State Supreme Court Decision, Perey Law Announces 3Health News:More Sleep & Less Sex - A Losing Combination 2Health News:More Sleep & Less Sex - A Losing Combination 3
(Date:1/14/2014)... 2014 InformEx, North America,s ... of high-value chemistry, will hold the 30 th ... Miami Beach Convention Center from January 21-24. ... More than 3,500 attendees from top pharmaceutical, fine chemical ... conference, which includes on-site education sessions, daily networking events ...
(Date:1/14/2014)... , Jan. 14, 2014 Animal Emergency Critical Care, a ... Leesburg, Virginia is the first in ... chamber. Dr. Susan M. Barnes , Medical ... Barnes and husband, Dr. Cole Taylor , are avid scuba ... need for oxygen when air is thin," states Dr Barnes. She ...
(Date:1/14/2014)... WASHINGTON, New York , January 14, ... http://www.equashield.com ), the leading provider of Closed System Transfer Devices (CSTD) ... has achieved 60% year-over-year sales growth for ... Equashield,s closed systems reduce the risk of ... other medical professionals who prepare and administer ...
Breaking Medicine Technology:Media Advisory: InformEx 2014 Events & Speaker Lineup for 30th Edition Conference in Miami Beach 2Hyperbaric Veterinary Medicine (hvm) Announces Animal Emergency Critical Care Installs A Small Animal Hyperbaric Chamber 2Equashield's Sales Grow by 60% in 2013 2
... Today FRC Action joined 19 pro-life groups in a letter sent to Food ... consideration for FDA approval that can cause abortions but is misleadingly labeled as an "emergency ... Tom McClusky ... the following comments: , , , ...
... INDIANAPOLIS , July 28 Eli Lilly and Company (NYSE: ... the Federal Circuit has upheld a prior ruling by the U.S. District Court ... invalid. , , , ... ruling by the U.S. Court of Appeals regarding Gemzar,s method-of-use patent. We continue ...
Cached Medicine Technology:FRC Action and Pro-Life Coalition Urge the FDA to Reject New Abortion-Causing Drug 2U.S. Court of Appeals Rules on Validity of Lilly's Gemzar Method-of-Use Patent 2U.S. Court of Appeals Rules on Validity of Lilly's Gemzar Method-of-Use Patent 3
Empore Sealing Tape Pads are ideal for covering a 96 well plate during storage or transfer to another work station. Not intended for use with auto-injectors....
Mylar Plate Sealers 100/Box...
TD silicone foam compression pad. Use with plates sealed with TDX or OptiTape....
For use with 96-well plates, catalog # 410150...
Medicine Products: