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Cancer Support Community Releases Cost of Care Communication Data at ASCO Conference

Chicago, IL (PRWEB) June 03, 2013

The Cancer Support Community (CSC) released data today showing a significant gap in patient desire to have conversations about the cost of cancer care and initiation of conversations by the health care team.

In a study of 708 people attending CSC’s Frankly Speaking About Cancer: Coping with the Cost of Care workshops, 59.4% of respondents reported that no one on their health care team initiated a discussion about the financial aspects of their care. In this study, 22.7% of patients actively requested information from their health care team, and one-third of them did not receive information about cost.

“There remains a disconnect between the activity of managing care and managing the cost of that care. This continues to put patients and their families at risk every day,” said Kim Thiboldeaux, President and CEO of the Cancer Support Community. “Raising awareness and creating resources to empower patients on these issues helps everyone in the long run.”

The study showed that patients are keenly interested in the topic and over 40% of them did seek information from other sources including fellow patients, the Internet, patient support organizations, insurance providers and friends and family. Further, when given information, nearly half of those completing the survey found it to be somewhat or very useful.

“As we’ve seen in this study, over half of the people with whom we spoke indicated they experienced distress as a result of the cost of cancer care. While we continue to make progress in our effort to fully inform patients and families of the comprehensive picture of the cancer journey, we must focus on ways in which to reduce the social and emotional burden that comes with a cancer diagnosis. We look forward to collaborating with the broader health care team to develop solutions,” said Thiboldeaux.

For more information about this study and CSC’s Frankly Speaking About Cancer: Coping with the Cost of Care materials and partners, please visit

About the Cancer Support Community:

The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. In 2009, The Wellness Community and Gilda’s Club joined forces to become the Cancer Support Community. The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of over 50 licensed affiliates, more than 100 satellite locations, and a vibrant online community, touching more than one million people each year.

Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women, and children with any type or stage of cancer, and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes, and social activities for the entire family. In 2011, CSC delivered more than $40 million in free services to patients and families. The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer care. So that no one faces cancer alone. To learn more, visit

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