Navigation Links
CWRU researchers call for changing how research is done
Date:5/11/2011

When it first passed 20 years ago, the American Disabilities Act offered hope for closing the health-disparities gap for people with disabilities, but differences still exist. Barring people with limiting physical issues from research studies may bear some of the blame, and researchers from Case Western Reserve University's Frances Payne Bolton School of Nursing want to change that restriction.

In a commentary for Science Translational Medicine, Ann S. Williams and Shirley M. Moore ask researchers to rethink participation criteria that exclude people with sight, hearing or mobility problems, or other disabilities.

They suggest employing universal design methods like those adopted by classroom teachers to integrate children with disabilities in mainstream classrooms.

Some of those same tools - audio instructions or large print -- can accommodate people with disabilities. Without the participation of this population, the science is not all there, Williams said.

People with physical and mental challenges have some of the same health problems affecting the general population. For years, the one-size model of research based on how men suffered disease and weathered treatments was the norm until women and minorities became part of research. Scientific evidence shows that health-related differences do exist between men, women and minorities.

Williams suspects such differences will surface for the 47.5 million disabled, who make up 22 percent of the American population, according to the U. S. Centers for Disease Control and Prevention.

For example, Williams asked, "How much exercise does someone in a wheelchair need to be healthy?"

"When they ask someone how far they walk, in this case the walking can be how far the individual rolled the wheelchair," she said.

She wants to see "disability" added to "race" and "gender" in describing study participants.

How major diseases, such as diabetes and heart problems, impact people with disabilities will be unknown until they can participate, Williams said.

"We want to change that practice," said Williams, the study's lead researcher for the commentary, "Universal Design of Research: Inclusion of Persons with Disabilities in Mainstream Biomedical Studies."

Williams and Moore have started practicing and implementing those changes on the Case Western Reserve campus through the National Institutes of Nursing Research/National Institute of Health-funded center to promote Full INclusion of Persons with Disabilities (FIND Lab).

They are developing technologies and methods to include people with disabilities in research and provide a campus resource for training researchers on ways to adapt their research projects for the disabled.

The researchers are collaborating with the Cleveland Sight Center and Cleveland Hearing and Speech Center to make changes.

In late summer, they will open a lending library at Case Western Reserve with those tools that range from inexpensive magnifiers to help people read instructions, sound amplifiers, to more sophisticated computer programs that translate text into sound for the visually impair.

"We have concentrated primarily on people with hearing and sight problems," Williams said. "In the process, we have found these same technologies are applicable for people who can understand verbal instructions but cannot read."

"Universal Design is a way to change the way we do research," Williams said.


'/>"/>

Contact: Susan Griffith
susan.griffith@case.edu
216-368-1004
Case Western Reserve University
Source:Eurekalert

Related medicine news :

1. Wayne State researchers find new way to examine major depressive disorder in children
2. Mayo Clinic researchers find new treatment for constipation
3. Researchers Outline Key Risk Factors for Glaucoma
4. Wistar researchers: Direct proof of how T cells stay in standby mode
5. Researchers discover protein that could help prevent the spread of cancer
6. US must strengthen efforts to restrict chemicals that threaten health, say researchers
7. New online crisis management and evaluation tool introduced by researchers
8. Researchers find increasing the number of family physicians reduces hospital readmissions
9. Hebrew University researchers demonstrate why DNA breaks down in cancer cells
10. Boston University researchers validate important roles of iPSCs in regenerative medicine
11. Researchers develop device to measure brain temperature non-invasively
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/22/2017)... , ... January 22, 2017 , ... Medical lab ... results. Often the results of a simple test will take days to arrive to ... Test Now offers customers direct access to their lab tests, bypassing the cost and ...
(Date:1/21/2017)... ... January 21, 2017 , ... Salveo for life, a ... bringing its product to the United States as part of its presence to expand ... years, Alcovit aims to reduce the productions of nasty toxins as a result of ...
(Date:1/21/2017)... ... January 21, 2017 , ... Seamild, the largest manufacturer of oats in China, ... owner and founder. As Oat is recognized globally as one of the healthiest cereals, ... he believes it is a move to sow the seed of good karma. Buddhism ...
(Date:1/21/2017)... ... January 21, 2017 , ... Pacifica ... Travis-Teague, the electrifying line-up of events for its annual meeting “Coming Home 2017,” ... community. “Coming Home 2017” will be held on Friday January 27 through ...
(Date:1/21/2017)... ... January 21, 2017 , ... ... medical office in Petaluma, located at 167 Lynch Creek Way. The Petaluma office ... SRO sports medicine and rehabilitation services and on-site x-ray services. Two multi-specialist ...
Breaking Medicine News(10 mins):
(Date:1/19/2017)... 19, 2017 Report Details ... Alzheimer,s Disease ... Companies – our new study reveals trends, R&D progress, ... events affecting the Alzheimer,s disease therapeutics and diagnostics market. ... key questions: - How is the Alzheimer,s disease therapeutics ...
(Date:1/19/2017)... Jan. 19, 2017  Stealth BioTherapeutics Inc. ( Stealth ... mitochondrial dysfunction, today announced new additions to its senior ... Chief Medical Officer, and Daniel Geffken as ... Jim Carr , Pharm.D. has been promoted to ... pleased to welcome Doug and Daniel to our management ...
(Date:1/19/2017)... , Jan. 19, 2017 Accuray Incorporated (Nasdaq: ... and TomoTherapy® Systems continue to set the bar for ... highest composite overall user satisfaction rating among radiation treatment ... 2016 MD Buyline Market Intelligence Briefing™. The most recent ... composite ratings among industry peers for 11 of the ...
Breaking Medicine Technology: