Navigation Links
CWRU researchers call for changing how research is done
Date:5/11/2011

When it first passed 20 years ago, the American Disabilities Act offered hope for closing the health-disparities gap for people with disabilities, but differences still exist. Barring people with limiting physical issues from research studies may bear some of the blame, and researchers from Case Western Reserve University's Frances Payne Bolton School of Nursing want to change that restriction.

In a commentary for Science Translational Medicine, Ann S. Williams and Shirley M. Moore ask researchers to rethink participation criteria that exclude people with sight, hearing or mobility problems, or other disabilities.

They suggest employing universal design methods like those adopted by classroom teachers to integrate children with disabilities in mainstream classrooms.

Some of those same tools - audio instructions or large print -- can accommodate people with disabilities. Without the participation of this population, the science is not all there, Williams said.

People with physical and mental challenges have some of the same health problems affecting the general population. For years, the one-size model of research based on how men suffered disease and weathered treatments was the norm until women and minorities became part of research. Scientific evidence shows that health-related differences do exist between men, women and minorities.

Williams suspects such differences will surface for the 47.5 million disabled, who make up 22 percent of the American population, according to the U. S. Centers for Disease Control and Prevention.

For example, Williams asked, "How much exercise does someone in a wheelchair need to be healthy?"

"When they ask someone how far they walk, in this case the walking can be how far the individual rolled the wheelchair," she said.

She wants to see "disability" added to "race" and "gender" in describing study participants.

How major diseases, such as diabetes and heart problems, impact people with disabilities will be unknown until they can participate, Williams said.

"We want to change that practice," said Williams, the study's lead researcher for the commentary, "Universal Design of Research: Inclusion of Persons with Disabilities in Mainstream Biomedical Studies."

Williams and Moore have started practicing and implementing those changes on the Case Western Reserve campus through the National Institutes of Nursing Research/National Institute of Health-funded center to promote Full INclusion of Persons with Disabilities (FIND Lab).

They are developing technologies and methods to include people with disabilities in research and provide a campus resource for training researchers on ways to adapt their research projects for the disabled.

The researchers are collaborating with the Cleveland Sight Center and Cleveland Hearing and Speech Center to make changes.

In late summer, they will open a lending library at Case Western Reserve with those tools that range from inexpensive magnifiers to help people read instructions, sound amplifiers, to more sophisticated computer programs that translate text into sound for the visually impair.

"We have concentrated primarily on people with hearing and sight problems," Williams said. "In the process, we have found these same technologies are applicable for people who can understand verbal instructions but cannot read."

"Universal Design is a way to change the way we do research," Williams said.


'/>"/>

Contact: Susan Griffith
susan.griffith@case.edu
216-368-1004
Case Western Reserve University
Source:Eurekalert

Related medicine news :

1. Wayne State researchers find new way to examine major depressive disorder in children
2. Mayo Clinic researchers find new treatment for constipation
3. Researchers Outline Key Risk Factors for Glaucoma
4. Wistar researchers: Direct proof of how T cells stay in standby mode
5. Researchers discover protein that could help prevent the spread of cancer
6. US must strengthen efforts to restrict chemicals that threaten health, say researchers
7. New online crisis management and evaluation tool introduced by researchers
8. Researchers find increasing the number of family physicians reduces hospital readmissions
9. Hebrew University researchers demonstrate why DNA breaks down in cancer cells
10. Boston University researchers validate important roles of iPSCs in regenerative medicine
11. Researchers develop device to measure brain temperature non-invasively
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... ... 13, 2017 , ... Lori R. Somekh, founder of the Law Office ... of elder law and special needs planning attorneys. “Membership in ElderCounsel helps our office ... forum to network with elder law attorneys nationwide,” said Somekh. , ElderCounsel ...
(Date:10/13/2017)... ... October 13, 2017 , ... Global Healthcare Management’s 4th ... Park in Milford, NJ. This free event, sponsored by Global Healthcare Management’s CEO, ... The fun run is geared towards children of all ages; it is a non-competitive, ...
(Date:10/13/2017)... ... ... On The Brink”: the Christian history of the United States and the loss of ... William Nowers. Captain Nowers and his wife, Millie, have six children, ten grandchildren, ... Navy. Following his career as a naval aviator and carrier pilot, he spent ...
(Date:10/12/2017)... ... , ... IsoComforter, Inc. ( https://isocomforter.com ), one of the Nation’s ... design of the shoulder pad. The shoulder pad provides optimal support and full ... while using cold therapy. By utilizing ice and water that is circulated from an ...
(Date:10/12/2017)... ... 2017 , ... HMP , a leader in healthcare events and education, today ... Digital Award for ‘Best B-to-B Healthcare Website.’ Winners were announced during the Eddie & ... award competition recognizes editorial and design excellence across a range of sectors. This year’s ...
Breaking Medicine News(10 mins):
(Date:10/10/2017)... , Oct. 10, 2017   West Pharmaceutical ... innovative solutions for injectable drug administration, today shared the ... ID Adapter for improving the intradermal administration of polio ... Skin Vaccination Summit in May 2017 by Dr. ... Polio Department, World Health Organization (WHO), and recently published ...
(Date:10/4/2017)... Oct. 4, 2017 OBP Medical ... illuminating medical devices, today announced regulatory approval from ... Agency (or Agência Nacional de Vigilância Sanitária (ANVISA)) ... cordless surgical retractor with integrated LED light source ... illumination and exposure of a tissue pocket or ...
(Date:10/2/2017)... COPENHAGEN, Denmark , Oct. 2, 2017 The ... tool in the struggle to reverse the tide of prescription ... plan for regulating their medicine intake and stepping down their ... is set to launch in December 2017; the first 100,000 ... access. Learn more at http://www.rebound-solution.com/ ...
Breaking Medicine Technology: