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CPF Urges Congress to Increase Funding for IPF Research in 2009 Federal Budget
Date:10/4/2007

duced by Norm Coleman (R-MN) and co-sponsored by Sen. Richard Durbin (D-IL) passed in July. Rep. Gene Green (D-TX) introduced the "Ending the Medicare Disability Waiting Period Act of 2007" in the House and Sen. Jeff Bingaman (D-NM) introduced the Senate version. The median survival rate for IPF patients is just 3 years, yet there is a 2-year waiting period for people who are under 65 and suffering from IPF to qualify for Medicare. Given the rapid health decline of IPF patients, many will never survive to see the Medicare benefit under existing guidelines.

Appropriations Request Slated for IPF in 2009 Federal Budget

As a result of the National IPF Awareness Week effort, the CPF is now working with approximately 20 Members of Congress from both parties to seek Congressional appropriation in the 2009 Federal Budget for increased funding for the NIH for IPF research. It is estimated that the federal government spends just $18 to 20 million each year on IPF research, despite the fact that 40,000 people die each year of IPF, which is roughly equal to the number of people who die each year from breast cancer. IPF funding lags far behind other better-known and less prevalent lung diseases.

CPF Asks NIH for Increased Attention to IPF

The CPF and advocates met with leaders from the NIH to be updated on current efforts in IPF. Drs. James Kiley and Herbert Reynolds presented the NIH's current IPF portfolio to patients and discussed the future of research into the disease, including clinical trails underway through the NIH-sponsored IPF Research Network (IPFNet).

How You Can Help

The success of the CPF's National IPF Awareness Week is due to the commitment and passion of the patients, families, and medical professionals who have joined our cause. To learn how you can help the CPF in its efforts, please call (888)222-8541, or visit us on the Web at http://www.coalitionforpf.org.


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SOURCE Coalition for Pulmonary Fibrosis
Copyright©2007 PR Newswire.
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