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CPF Updates Patient Education Materials to Meet Growing Demand for Pulmonary Fibrosis Information
Date:12/3/2008

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"We know from our experience in working with tens of thousands of PF patients throughout the United States that there remains a lack of information available on PF, and that many patients have never heard of the disease until they are diagnosed. This lack of awareness leads to myriad questions and concerns for patients and families, and the CPF is often their first point of contact outside their doctor visits to seek information and support," said Mishka Michon, chief executive officer of the CPF.

"We want to be sure every patient working with the CPF is receiving the highest quality care possible. To do that, we want to empower patients with up-to-date education and information so they can fully understand their disease, be proactive in asking questions of their pulmonologist, and ultimately improve their quality of life," said Michon.

The new CPF patient guide includes an overview of PF, common symptoms, diagnostic tests, treatment options, caregiver and patient support services, the role of pulmonary rehabilitation and supplemental oxygen in treating PF, and a comprehensive review of the lung transplantation process - currently the only treatment option known to extend the lives of PF patients. To view a copy of the CPF patient guide on our Web page, please visit www.coalitionforpf.org/cpf_patient_edu. To order a copy of our materials, please email us at info@coalitionforpf.org.

Supporting the CPF ensures that every newly diagnosed patient will be able to receive CPF educational materials free of charge at a time when they need them most. To learn how you can support our goal of providing education, support, and hope to those suffering from PF, please visit our Web page at <
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SOURCE Coalition for Pulmonary Fibrosis
Copyright©2008 PR Newswire.
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