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CPF Updates Patient Education Materials to Meet Growing Demand for Pulmonary Fibrosis Information
Date:12/3/2008

SAN JOSE, Calif., Dec. 3 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) today announced the launch of its newly designed patient guide offered to patients and families fighting pulmonary fibrosis (PF), a devastating and ultimately fatal disorder characterized by progressive and relentless lung scarring and affecting more than 128,000 Americans. Prevalence and incidence of PF has increased more than 150 percent since 2000 and PF claims 40,000 lives each year - the same number as breast cancer.

"In addition to personally connecting with every patient who contacts the CPF, this guide serve as a wonderful resource for patients to take charge of their care and have a more informed discussion with their doctor about their condition," said Marvin Schwarz, MD, Chairman of the CPF and the James C. Campbell Professor of Medicine at the University of Colorado Health Sciences Center (Denver, CO).

The CPF, the nation's largest and most respected nonprofit organization fighting to cure PF, has seen a critical need for improved education and awareness of PF in the patient and medical communities since it was founded in 2001. In 2004, the CPF published results from its Basic Research Questionnaire that found an alarming need for educational materials specifically for PF, especially in the areas of lung transplant and oxygen management, while also finding that more than 50% of cases are initially misdiagnosed in the medical community, and that standards of medical care varied greatly.(1)

CPF educational materials are rigorously peer-reviewed by leading experts in the field of pulmonary fibrosis treatment and research. To date, the CPF has distributed its materials to thousands of PF patients and families, and to healthcare professionals. CPF educational materials are distributed free of charge, with the cost of the publications being covered by public support.

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SOURCE Coalition for Pulmonary Fibrosis
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