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CPF Holds Seventh Annual National Pulmonary Fibrosis Awareness Week
Date:9/14/2009

lity to breathe. Approximately 128,000 Americans suffer from PF, and there is currently no known cause or cure. An estimated 48,000 new cases are diagnosed each year. PF is difficult to diagnose and an estimated two-thirds of patients die within five years of diagnosis. Sometimes PF can be linked to a particular cause, such as certain environmental exposures, chemotherapy or radiation therapy, residual infection, or autoimmune diseases such as scleroderma or rheumatoid arthritis. However, in many instances, no known cause can be established. When this is the case, it is called idiopathic pulmonary fibrosis (IPF).

About the CPF's Campaign ACT

Since 2002, the CPF has been leading a national advocacy effort directed toward Congress, the National Institutes of Health (NIH) and the Centers for Disease Control (CDC) to increase research funding for PF and accelerate efforts to find a cure for this devastating lung disorder. The CPF has also actively advocated for passage of legislation important to the PF community in the areas of Medicare and Social Security coverage. The CPF as well as its National PF Awareness Week have been formally recognized on Capitol Hill, most recently with the passage of H.R. 182 in 2007, which was the first-ever Congressional recognition of the need for increased research funding and improved public awareness of PF in the United States. This resolution laid the groundwork for the introduction of the Pulmonary Fibrosis Research Enhancement Act in 2008 and again in 2009.

About the CPF

The CPF is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis (PF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF funds promising research into new approaches to treat and cure PF; provides patients and families w
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SOURCE Coalition for Pulmonary Fibrosis
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