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CPF Holds Seventh Annual National Pulmonary Fibrosis Awareness Week
Date:9/14/2009

on this historic, bi-partisan legislation that would authorize $16 million in new federal funding to create the first national patient registry for PF, and provide much needed support for research into the deadly lung disease. The PFREA was introduced in the U.S. House of Representatives in February and is expected to soon be introduced in the U.S. Senate.

"We are pleased to meet with Members of these key committees and further garner support for the Pulmonary Fibrosis Research Enhancement Act," said Michon. "Our advocates understand firsthand the devastation of PF and they are proud to make the voices heard of more than 128,000 patients nationwide."

The CPF has celebrated National PF Awareness Week for the past six years, visiting representatives on Capitol Hill with patients and family members participating and telling their stories. Over the years, the CPF and its advocates have met with hundreds of Members of Congress. As a result of these efforts, the CPF was recognized for its work on behalf of the PF community through the passage H.R. 42, which passed the House unanimously in 2007. The Senate version of the concurrent resolution, H.R.182, also passed the Senate.

For further information on the CPF's advocacy efforts, please visit www.coalitionforpf.org call us at 888-222-8541, or email us at info@coalitionforpf.org.

About Pulmonary Fibrosis (PF)

Pulmonary Fibrosis (PF) is a lung disorder characterized by a progressive scarring - known as fibrosis -- and deterioration of the lungs, which slowly robs its victims of their abi
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SOURCE Coalition for Pulmonary Fibrosis
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