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CPF Holds Seventh Annual National Pulmonary Fibrosis Awareness Week
Date:9/14/2009

Advocates to Meet with 40 Key Congressional Committee Members and Staffers September 15 & 16

WASHINGTON, Sept. 14 /PRNewswire-USNewswire/ -- This week, the Coalition for Pulmonary Fibrosis (CPF) will hold its seventh annual National Pulmonary Fibrosis (PF) Awareness Week. The official dates are September 14-21. In the more than 40 meetings to be held with Members of Congress and their staffers, the CPF will be advocating for passage of the Pulmonary Fibrosis Research Enhancement Act (PFREA - H.R. 1079) and building awareness of the disease and the urgent need for research to find a cure.

The majority of the Capitol Hill meetings will take place with Members who serve on the Energy & Commerce committee and on the Energy & Commerce subcommittee on health. The Energy & Commerce committee is the committee of jurisdiction for the PFREA.

Many CPF patients and members have helped build a grassroots program by directly requesting that their Members of Congress meet with the CPF on their behalf since most of them are too ill to travel to the U.S. Capitol to advocate for themselves. Others visited with their Members of Congress during the August recess or are campaigning for research on PF by writing letters to members. Some patients, medical professionals and PF support groups are holding their own local events to celebrate National PF Awareness Week.

"The urgency of the campaign is that the disparity of federal investment in PF compared to other diseases that realize far fewer deaths and have longer life expectancies, means a far longer wait for a possible cure. The wait for funding is costing 40,000 lives each year, the same number of lives lost to breast cancer," said CPF Chief Executive Officer.

The CPF has been working closely with Congressman Brian Baird (D-WA) and Congressman Mike Castle (R-DE)
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SOURCE Coalition for Pulmonary Fibrosis
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