Navigation Links
CPF Fundraisers Bring in Landmark Half Million Dollars in Less Than Three Weeks
Date:10/16/2008

Events in Malibu, Cal., Chicago, Ill., and Rockville, Md.

SAN JOSE, Calif., Oct. 16 /PRNewswire-USNewswire/ -- In less than three weeks, three major fundraising events for the Coalition for Pulmonary Fibrosis (CPF) have brought in record donations. The events benefiting the CPF collectively raised more than a half million dollars for the non-profit that serves patients and families fighting pulmonary fibrosis (PF) and directly funds research. The lung disease characterized by progressive and relentless scarring has no lifesaving treatments and claims 40,000 lives a year, the same as breast cancer. Private funding is urgently needed because of the lack of federal funds invested in the search for a cure.

The Malibu Butterfly Garden Party, hosted by Deirdre Roney, who has lost eight people in her family to pulmonary fibrosis, was held in late September. Her brother, Roc Roney, and his wife, Debbie, hosted the Breathing is Glorious! (B.I.G.) Ball in Chicago last weekend. This week, Dr. Jerome and Froma Sandler hosted the first annual Lisa Sandler Spaeth Memorial Golf tournament in Rockville, Md., in memory of their daughter who died from pulmonary fibrosis in 2007. The majority of funds raised at these events will go towards urgently needed research into PF.

For a disease that affects a known 128,000 people, federal funding is unacceptably low at less than $18 million a year, making private funding essential to progress in finding treatments.

"This is a landmark time for the CPF. In all our years of raising funds, we've never been as fortunate as we are now to raise so much money in such a short time," said Mishka Michon, Chief Executive Officer of the CPF.

"We are thrilled with the work of so many selfless volunteers like the Roney and Sandler families," said Michon. "They are inspiring to others who have seen someone they love suffer from this tragic disease. With their continued efforts, the CPF will be able to continue to provide much needed services to our patients and their families and to fund promising research that will lead to treatments and a cure."

The CPF's fundraising efforts have increased each year since it was founded in 2001 with the most significant increases coming in the last three years. To date, the CPF has funded more than $1 million in research to find treatments to PF with much of that funding coming from events like these. The CPF partners with the American Thoracic Society to fund peer reviewed, cutting edge research in pulmonary fibrosis.

Background on IPF

About Idiopathic Pulmonary Fibrosis (IPF)

IPF is a lung disorder characterized by a progressive scarring -- known as fibrosis -- and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from IPF, and there is currently no known cause or cure. An estimated 48,000 new cases are diagnosed each year. IPF is difficult to diagnose and an estimated two-thirds of patients die within five years of diagnosis.

About the Coalition for Pulmonary Fibrosis

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for idiopathic pulmonary fibrosis (IPF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF funds promising research into new approaches to treat and cure pulmonary fibrosis; provides patients and families with comprehensive education materials, resources, and hope; serves as a voice for national advocacy of IPF issues; and works to improve awareness of IPF in the medical community as well as the general public. The CPF's nonprofit partners include many of the most respected medical centers and healthcare organizations in the U.S. With more than 13,000 members nationwide, the CPF is the largest nonprofit organization in the U.S. dedicated to advocating for those with pulmonary fibrosis. For more information please visit http://www.coalitionforpf.org or call (888) 222-8541.


'/>"/>
SOURCE Coalition for Pulmonary Fibrosis
Copyright©2008 PR Newswire.
All rights reserved

Related medicine news :

1. Naked Juice Brings Consumers Happiness by the Billions With First 100% Juice Smoothie Containing Probiotics
2. Vitamin Relief Brings Needed Nutrition to School District Resurrecting After Katrina
3. Activate America(R) Brings Together YMCAs Nationwide to Promote Small Steps Toward a Healthier Lifestyle During America on the Move Week With the YMCA, September 22-29, 2007
4. PSI Brings its Pioneering Efforts to a Close
5. Responsible Family Company Aims to Bring Responsibility to the Forefront of Every Caregivers Mind
6. Serta Brings Sweet Dreams and a Special Delivery to Deserving Women
7. Eclipsys User Network Brings Eclipsys Clients Together to Share Outcome Improvement Strategies
8. Aegis Selected by Community Medical Centers to Bring New Employer-Focused Wellness Program to Californias Central Valley
9. LTC Financial Partners (LTCFP) Engages CareScout to Bring Comprehensive Long Term Care Solutions to LTCFP Clients; A One-Stop Shop for All Care Information - An Industry First
10. Governor Rendell Brings Tour to Insure to Scranton and Urges Passage of Plan to Give Access to Affordable Health Insurance
11. California Joins National Movement to Bring Uniformity to Organ Donation Laws as Governor Schwarzenegger Signs AB 1689
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/20/2017)... ... January 20, 2017 , ... ... enhance people’s everyday lives, recently attended the January ECRM Trade Show in Hilton ... is known for its large range of supplements that keep the body functioning ...
(Date:1/20/2017)... ... January 20, 2017 , ... “Mary Magdalene: Grace is Greater than Sin”: ... who witnessed Jesus Christ firsthand. “Mary Magdalene: Grace is Greater than Sin” is the ... an educator interacting with countless women who had little knowledge of the female characters ...
(Date:1/20/2017)... ... January 20, 2017 , ... “Christmas in Suffolk”: ... published author, Sara Seymour, who lives in Lafayette, Indiana where she works in a ... iced coffees and writes. , Published by Christian Faith Publishing, Sara Seymour’s new book ...
(Date:1/19/2017)... (PRWEB) , ... January 20, 2017 , ... Today, the ... to participate in four of CMS’s Alternative Payment Models (APMs) in 2017. Clinicians who ... patients. APMs are an important part of the Administration’s effort to build a ...
(Date:1/19/2017)... , ... January 19, 2017 , ... This month, the ... that the name of their drug rehab center in Delray Beach, Florida has been ... that not only stars such as Philip Seymour Hoffman and Chris Farley are dying ...
Breaking Medicine News(10 mins):
(Date:1/19/2017)... YORK , Jan. 19, 2017 This ... the current and future scenario of the global market. ... rising opioid consumption. Severe chronic constipation is a major ... to traditional laxatives. Hence, novel targeted therapy has been ... OIC sufferers, launch of targeted medicines, and growing awareness ...
(Date:1/19/2017)... 19, 2017  Stealth BioTherapeutics Inc. ( Stealth ), ... dysfunction, today announced new additions to its senior leadership ... Medical Officer, and Daniel Geffken as interim ... Jim Carr , Pharm.D. has been promoted to Chief ... to welcome Doug and Daniel to our management team, ...
(Date:1/19/2017)... 2017 According to a study conducted by ... to witness a CAGR of 6.5% during the forecast period 2016-2024. ... continue to be the leading market for cryotherapy globally during the ... Highlights ... ensuring affordable and adequate supply of gas in order to provide ...
Breaking Medicine Technology: