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CPF Announces National IPF Awareness Week Activities
Date:9/21/2007

upport the efforts of the CPF and of researchers who are striving to find a cause and cure for this debilitating and devastating disease," said Congressman Brian Baird (D-WA) recently introduced House Concurrent Resolution 182 (H. Con. Res. 182) with Congressman Nathan Deal (R-GA) to increase awareness about the disease.

"This is why the work of the CPF and the IPF community is so critical," said Rep. Baird. "Now, more than ever, we need to increase the level of awareness around this deadly disease and urge support for research funding in this area."

"I don't know of any other disease in this country with as many people dying that has less notoriety and less support for it than IPF," said Rep. Castle during a recent conference call for the CPF's advocates. "I don't know another disease that has as much mystery to it."

The Late Congressman Charlie Norwood's Widow to Talk to Legislators About Need

Gloria Norwood, widow of Congressman Charlie Norwood (R-GA) who died in February, a few years following a lung transplant for pulmonary fibrosis, will speak to Members of Congress and their staffs at the reception about the urgent need for attention and funding for the disease. She will also accept an award from the CPF in tribute to her husband's work in forwarding the cause. Congressman Norwood was the first Member of Congress to introduce IPF legislation in Congress, working closely with the CPF.

Other IPF Week Activities

The CPF and more than 40 advocates will meet with Members of Congress and their staffs Sept. 24-27. In addition, the CPF will hold a "Living with IPF" patient seminar in partnership with INOVA Fairfax Medical Center. It will be held at the Hyatt Regency Capitol Hill at 400 New Jersey Avenue in Washington, D.C. on Sunday, Sept. 23, 2007 from 11:00 a.m. to 3:30 p.m. On Sept. 26, patients will meet with leaders from the National Institutes of Health about their current efforts in the disease and will urge them to step thi
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SOURCE Coalition for Pulmonary Fibrosis
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