CPF Announces National IPF Awareness Week ... ( SAN JOSE Calif. Sept. 21 -- The ...)

CPF Announces National IPF Awareness Week Activities

Date:9/21/2007

SAN JOSE, Calif., Sept. 21 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis today announced 2007 National IPF Awareness Week activities that include a patient event this weekend in Washington, D.C., a congressional reception that includes a tribute to late Rep. Charlie Norwood, and a patient meeting with the National Institutes of Health. More than 40 Idiopathic Pulmonary Fibrosis (IPF) patients and family members will be on the Hill next week to meet with Members of Congress and their staffs about the urgent need for increased awareness and funding for the deadly disease that has no FDA approved treatment, no known cause and no cure. The disease claims 40,000 lives a year, the same as breast cancer.

"National IPF Awareness Week is an important time for patients and families who desperately need to get the attention of Members of Congress. Their work this week will help to increase awareness of a lethal disease that the average American has never heard of until they or someone they love receives the diagnosis," said Mark Shreve, chief executive officer of the CPF.

Members of Congress Who've Lost Family to Pulmonary Fibrosis Host IPF Week Reception

As part of IPF Week, Congressmen Brian Baird, Mike Castle and Nathan Deal are joining forces from across the aisle to help their fellow Members of Congress understand the disease that has taken the lives of their family members. Rep. Baird (D-WA) lost his father to the disease, Rep. Castle (R-DE) lost his brother and his sister to pulmonary fibrosis and Rep. Nathan Deal (R- GA) was a friend and colleague to the late Rep. Charlie Norwood and recently introduced an IPF resolution. The Members of Congress will jointly host a reception on Capitol Hill in the Cannon Caucus Room in the Cannon Building on the House side of the Capitol on Sept. 25 from 2:00 p.m. to 3:30 p.m. Members of Congress, their staffs, and members of the media are invited.

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