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CPF Announces Dates for Seventh Annual National Pulmonary Fibrosis Awareness Week
Date:6/25/2009

909cb7&URL=mailto%3ainfo%40coalitionforpf.org" target="_new">info@coalitionforpf.org.

Disparity of Federal Funding

The disparity of federal funds put towards research in pulmonary fibrosis is profound. This year, less than $23 million will be spent on a disease that affects 128,000 people compared with hundreds of millions spent on diseases that affect a small fraction of that number of patients. This, while the disease takes 40,000 lives each year - the same number as breast cancer, H.R. 1079 will provide much needed help for PF patients by creating the first national patient registry and providing support for research.

About Pulmonary Fibrosis (PF)

Pulmonary Fibrosis (PF) is a lung disorder characterized by a progressive scarring - known as fibrosis -- and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from PF, and there is currently no known cause or cure. An estimated 48,000 new cases are diagnosed each year. PF is difficult to diagnose and an estimated two-thirds of patients die within five years of diagnosis. Sometimes PF can be linked to a particular cause, such as certain environmental exposures, chemotherapy or radiation therapy, residual infection, or autoimmune diseases such as scleroderma or rheumatoid arthritis. However, in many instances, no known cause can be established. When this is the case, it is called idiopathic pulmonary fibrosis (IPF).

About the CPF's Campaign ACT

Since 2002, the CPF has been leading a national advocacy effort directed toward Congress, the National Institutes of Health (NIH) and the Centers for Disease Control (CDC) to increase research funding for PF and accelerate efforts to find a cure for this devastating lung disorder. The CPF has also actively advocated for
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SOURCE Coalition for Pulmonary Fibrosis
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