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CPF Announces Dates for Seventh Annual National Pulmonary Fibrosis Awareness Week
Date:6/25/2009

2009 Awareness Efforts Set for August and September, PF Week Sept. 14 - 21

SAN JOSE, Calif., June 25 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) announced today it has scheduled its 2009 National Pulmonary Fibrosis (PF) Awareness Week for September 14-21, 2009. The primary goals of this year's activity are to ensure passage of the PFREA, and raise awareness of PF issues to Members of Congress and in communities nationwide.

Specifically, the CPF is asking its national membership and others affected by PF to take action on the Pulmonary Fibrosis Research Enhancement Act (PFREA), H.R. 1079, by meeting with their Members of Congress in their home districts during the August congressional recess. Following district outreach, the CPF will celebrate National PF Awareness Week September 14-21 and meet with Members who are not yet co-sponsors of the bill.

The CPF has been working closely with Congressman Brian Baird (D-WA) and Congressman Mike Castle (R-DE) on this historic, bi-partisan legislation that would authorize $16 million in new federal funding to create the first national patient registry for PF, and provide much needed support for research into the deadly lung disease. The PFREA was introduced in the U.S. House of Representatives in February and is expected to soon be introduced in the U.S. Senate.

"We cannot emphasize enough the importance of having patients and their families meet with their Members of Congress. There is no better way to gain support for this cause than to have patients who are affected share their stories with their Member of Congress and ask them, face-to-face for their support of this critical bill to help find answers to this deadly disease," said Mishka Michon, CPF CEO.

National PF Awareness activities include:

  • A Call-to-Action to patients, families, caregivers and al
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SOURCE Coalition for Pulmonary Fibrosis
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