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Breaking Down Barriers to End-of-Life Care for Children
Date:12/2/2007

eed training. "Often, they [doctors and nurses] feel if there's nothing they can do, they just stay away. But, you do so much just by being available and making sure the child is comfortable."

LaGamma echoed that sentiment and said training through conferences is available. And, in medical settings where they don't have much experience with children's deaths, role-playing exercises can help prepare staffers for dealing with this difficult experience.

Small things, he added, can make a big difference to these families. "Touching them -- putting your hand on their back, having tissues available, taking the time to speak or sit with someone, some people want hugs, these things all matter," he said.

More information

To learn more about the needs of the family of a dying child, visit the Texas Children's Cancer Center.



SOURCES: Karen Moody, M.D., attending pediatric hematologist/oncologist, and co-director of integrative and palliative care, Children's Hospital at Montefiore, New York City, and professor of pediatrics, Albert Einstein School of Medicine, New York City; Edmund LaGamma, M.D., director, regional neonatal I.C.U., and chief, division of newborn medicine, Maria Fareri Children's Hospital, Westchester Medical Center, Valhalla, N.Y.


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