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Boston College Grad Partners with FSH Society for “Friend Support Hope” Fundraising Event
Date:4/22/2013

Boston, MA (PRWEB) April 22, 2013

When Chris Stenmon made it onto the Boston College High School wrestling team, he was eager to prove his athletic prowess at the sports-loving school. Yet hard as he trained, he wasn’t getting stronger, and he eventually consulted an orthopedic surgeon at New England Medical Center.

"The surgeon took one look at me and left the room for five minutes and came back with a medical book with a picture of a teenager who looked very similar to me, with weak face, shoulder and upper arm muscles," recalls Stenmon. It turned out that he had facioscapulohumeral muscular dystrophy (FSHD).

The diagnosis came as a shock to Stenmon and his family. But he vowed to not let his disease pin him to the mat. Next Saturday, April 27th, for the 15th year in a row, Stenmon is rallying hundreds of friends to his “Friends Supporting Hope” fundraiser. This year’s event takes place from 7 PM to midnight at Florian Hall (Boston Firefighters Local 718), 55 Hallet Street in Dorchester. Fox 25 News Commentator Doug “VB” Goudie is presiding as emcee. The Boston-based band Fenian Sons will rock the hall with its popular Irish sounds.

In the 25 years since learning he had FSHD, Stenmon graduated from Boston College, became a C.P.A. and is now a Principal at the accounting firm O'Connor & Drew, P.C., in Braintree, MA. He also became active in the FSH Society, a national charity co-founded by another Boston-based FSHD patient, Daniel Perez. Saturday’s event will raise money for the Society, which funds scientific research on treatments.

“Friends Supporting Hope” got its start fifteen years ago when Stenmon decided to celebrate the end of tax season – a grueling time in his profession – with a “pub crawl” to generate funds for the FSH Society. He sold T-shirts and raised $1,000. Over time, the crowd snowballed. “One year I even met my future wife Ellen on the pub crawl,” he laughs.
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