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Blood disorders are a public health issue
Date:11/15/2011

eats is not well established."

The supplement, comprised of 13 research papers and five workshop/meeting summaries, is authored by top medical educators and public health professionals. Its publication was supported by the CDC through a cooperative agreement with the Association for Prevention Teaching and Research.

Two papers focus on sickle cell trait screening policy in college athletes and military recruits, while seven address hemophilia and bleeding disorders, the most common of which are hemophilia A and B, and the hemoglobinopathiessickle cell disease and thalassemia.

Grosse and his colleagues propose a public health framework to address such often-overlooked conditions. The framework is similar to the 10 essential public health services but focuses on rare disorders rather than common exposures or common health problems. The framework calls for public health officials to:

  • Assess the prevalence/incidence of specific rare disorders;
  • Monitor the health status and health-related quality of life of people with rare disorders and their families;
  • Quantify the impacts of rare disorders on disability, mortality, and healthcare system use, particularly hospital-based care;
  • Conduct research to identify preventable causes of health problems among people with rare disorders, including barriers to the consistent use of effective prophylaxis and treatment;
  • Establish systems for early and continuous screening where appropriate;
  • Educate and empower people with rare disorders along with their family members and primary care providers;
  • Ensure access to cost-effective and affordable screening, diagnostic, primary care, and specialty health services;
  • Evaluate the effectiveness, accessibility, and quality of health services for people with rare disorders and
  • Inform program and policy decision makers about cost-effective strategies to improve health outcomes for people with rare outcomes.

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Contact: Beverly Lytton
eAJPM@ucsd.edu
858-534-9340
Elsevier Health Sciences
Source:Eurekalert

Page: 1 2 3

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